Blood Cancers & Disorders Support Group

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Comments (486)

ET jacks up histamine production. I'm not sure researchers know why this is part of the...

https://connect.mayoclinic.org/comment/1259381/

Discussion: ET Jak2 mutation itching

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2025

Yes, I certainly had many of the common CLL/SLL signs and symptoms. Intense fatigue and tiredness,...

https://connect.mayoclinic.org/comment/1056602/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2024

Hi, my Mom was diagnosed with Polycythemia Vera after her labs went crazy. They did not...

https://connect.mayoclinic.org/comment/718613/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2022

Hello Donna, I've been waiting to see some results before I answered you. The third day...

https://connect.mayoclinic.org/comment/747426/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2022

@roughanne Hello. I was diagnosed with JAK2/PV almost 6 years ago. I’m 78 soon. Started on...

https://connect.mayoclinic.org/comment/1437600/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2025

Hi Justin, I have been thinking that maybe I should get another opinion at Mayo because...

https://connect.mayoclinic.org/comment/188873/

Discussion: Is Idiopathic Erythrocytosis (Polycythemia) cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2018

I have only taken hydroxyurea and Jakafi. I was in a clinical study for a while...

https://connect.mayoclinic.org/comment/1368004/

Discussion: I would deeply appreciate feedback on patients diagnosed with CMML

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2025

Agree regarding the itching - tops of hands, chest, back (where I cannot reach!), and arms....

https://connect.mayoclinic.org/comment/1316060/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: May 29, 2025

Hello, I am new here but wanted to ask a few questions. I am waiting on...

https://connect.mayoclinic.org/comment/1276146/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2025

Lori: My reply was somewhat in jest, but not entirely. But, yes, for several years I...

https://connect.mayoclinic.org/comment/1081863/

Discussion: Why doesn't a Mayo Wellness Checkup Include a Blood Test?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2024

I had long-term issues, too, that no one addressed. First, I had very low platelets (60-ish)...

https://connect.mayoclinic.org/comment/1473346/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Jan 3 7:15am

I have diagnosis found during normal blood screen prior to procedure. Seen two hematologist both specialist...

https://connect.mayoclinic.org/comment/912113/

Discussion: Male 65 year old farmer with thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

I have PV JAK2 diagnosis in fact I changed hematologists and the second Hematologist asked if...

https://connect.mayoclinic.org/comment/1095124/

Discussion: I was diagnosed with Polycythemia vera last Sept. Is pain normal?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2024

Good evening. Welcome to Connect and Happy New Year. When I read your very recent post...

https://connect.mayoclinic.org/comment/991075/

Discussion: Hemochromatosis: How do you deal with extreme itchiness?

Support Group: Skin Health

Posted: Jan 3, 2024

I am 59, male, oficially diagnosed with PV w/Jak2 November 2024. Phlebotomies every week until I...

https://connect.mayoclinic.org/comment/1464522/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2025

@vivoconte It amazes me far reaching this disease can occur. I am glad you connected with...

https://connect.mayoclinic.org/comment/1414942/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2025

dodgegirl2 First time for me to post on here. Like many of you, we have multiple...

https://connect.mayoclinic.org/comment/1102565/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2024

I find your post interesting because back in 2019 when I first discovered something was wrong...

https://connect.mayoclinic.org/comment/738066/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2022

I totally understand your angst. As a 76 year old female, I felt great before the...

https://connect.mayoclinic.org/comment/1520763/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Mar 6 8:06am

@loribmt I’m happy to hear you had a good result with your bone marrow transplant. Thank...

https://connect.mayoclinic.org/comment/1524587/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 11 10:47am