Blood Cancers & Disorders Support Group

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Comments (2,263)

Your transition from ET to PV--was that new diagnosis from symptoms, blood tests or bone marrow...

https://connect.mayoclinic.org/comment/1324133/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2025

@eileen11108 Eileen, Your case sounds similar to mine. I was diagnosed in 2023, ET/Jak2, and take...

https://connect.mayoclinic.org/comment/1557630/

Discussion: Side effects of hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: 2 days ago

Hi @jola13, there are several members living with essential thrombocythemia (ET) here like @shenriq @jbgeorge @jackt00...

https://connect.mayoclinic.org/comment/876115/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2023

There's a lot to take in! Our blood has four main components: White blood cells, red...

https://connect.mayoclinic.org/comment/1211059/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2025

I am very thankful that fatigue is the only side affect I have. I am blessed...

https://connect.mayoclinic.org/comment/971695/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2023

My wife, who is 72 was recently diagnosed with ET. She had a blood test prior...

https://connect.mayoclinic.org/comment/1145648/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2024

I also have et, ido take hydrea,my side effect is feeling very tired ,and slowly down...

https://connect.mayoclinic.org/comment/1008616/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2024

I've also had a double by pass done over 16 years ago, and having et is...

https://connect.mayoclinic.org/comment/1008615/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2024

I find that younger hematologists, perhaps with more current knowledge and data, call ET a "disorder"...

https://connect.mayoclinic.org/comment/989672/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2024

PV has some of the same clot risks as ET, but a more complicated array of...

https://connect.mayoclinic.org/comment/738362/

Discussion: Have ET: What if spleen is enlarged?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

Just FYI, about 15 years ago, the World Health Organization reclassified ET as cancer. Clinicians and...

https://connect.mayoclinic.org/comment/1277853/

Discussion: My platelet count has increased after a year on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2025

I was diagnosed at age 60, but onset of high platelets about age 54. Just on...

https://connect.mayoclinic.org/comment/1312439/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: May 25, 2025

@sdcgcarroll Patient Power offers tips, but a lot of their articles like this one just rehash...

https://connect.mayoclinic.org/comment/1541024/

Discussion: Essential Thrombocytosis General Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 2 9:15am

@loribmt hello, thank you for your response! I have not talked to my doctor nor had...

https://connect.mayoclinic.org/comment/1556753/

Discussion: Essential Thrombocythemia JAK2 symptoms of dizziness/vision distortion

Support Group: Blood Cancers & Disorders

Posted: 3 days ago

@sdcgcarroll While HU is indeed a chemo drug, taking the capsules is nothing like getting a...

https://connect.mayoclinic.org/comment/1531177/

Discussion: ET: untreated elevated platelets for over 13 years

Support Group: Blood Cancers & Disorders

Posted: Mar 20 8:04am

Bienvenue, @luciedaco. Votre témoignage donne de l'espoir et votre esprit est formidable. Comment avez-vous récupéré la...

https://connect.mayoclinic.org/comment/598552/

Discussion: Husband with POEMS Syndrome

Support Group: Caregivers

Posted: Apr 30, 2021

I can tell you from experience that in the U.S. you CAN get life insurance with...

https://connect.mayoclinic.org/comment/1048896/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 11, 2024

Hi there I’m 25 and just been diagnosed with Crohns and ET I’m on meds for...

https://connect.mayoclinic.org/comment/802477/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2023

@1995victoria I have endometrial cancer, not ET. I hope they get rid of your endometrial cancer...

https://connect.mayoclinic.org/comment/1422146/

Discussion: Endometerial cancer with essential throbocythemia (ET) Jak 2 mutation

Support Group: Gynecologic Cancers

Posted: Oct 23, 2025

My Heme doc said there are basically 4 types of ET, and only one = cancer....

https://connect.mayoclinic.org/comment/877571/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2023