Blood Cancers & Disorders Support Group

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Comments (1,035)

@loribmt YES. She was diagnosed with High Risk MDS back in April/ May and started Vidaza...

https://connect.mayoclinic.org/comment/1401093/

Discussion: Vidaza, keep going or stop

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2025

Hi @daleanddonna I wanted to check in with you to see how your husband is doing....

https://connect.mayoclinic.org/comment/1380318/

Discussion: Newly diagnosed with AML (FTL3 TKD)

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2025

Hello @jeremy88. I would like to invite @chattykathy to this discussion as she has used neupogen...

https://connect.mayoclinic.org/comment/235266/

Discussion: MDS and Neupogen

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2018

Hello I was diagnosed with MDS today after a week in hospital with a hemoglobin count...

https://connect.mayoclinic.org/comment/1172503/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2024

I’ve wondered the same thing. Last December my husband had open heart surgery. I experienced stress...

https://connect.mayoclinic.org/comment/1312441/

Discussion: What Caused MDS in My Case?

Support Group: Blood Cancers & Disorders

Posted: May 25, 2025

Hi Steve, it’s not surprising your mom’s red blood counts continue to drop if her bone...

https://connect.mayoclinic.org/comment/1173360/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 14, 2024

Welcome to Connect @sjjs You popped into the perfect support group with members like @suetex who...

https://connect.mayoclinic.org/comment/1070030/

Discussion: Myelodysplastic Syndrome and Sjogren's

Support Group: Blood Cancers & Disorders

Posted: May 18, 2024

I was diagnosed in 9/2024 with MDS low risk. BMB with 5%blasts . Anemia and just...

https://connect.mayoclinic.org/comment/1176757/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2024

@justmeb5 I was diagnosed with AML in 2024 and had induction therapy which put me into...

https://connect.mayoclinic.org/comment/1493245/

Discussion: Does anyone have MDS with the SF3B1 mutation?

Support Group: Blood Cancers & Disorders

Posted: Jan 29 9:47am

Hi @barbwsm We’re all new at this at some point. I see you’ve been a member...

https://connect.mayoclinic.org/comment/1098504/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

@ray666 That's a tough decision to make. High risk MDS has more severe treatment options with...

https://connect.mayoclinic.org/comment/1382528/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Aug 30, 2025

@joanmroby Thank you for sharing about azacytadine being a common treatment for MDS. It’s one of...

https://connect.mayoclinic.org/comment/1556619/

Discussion: MDS and walking.

Support Group: Blood Cancers & Disorders

Posted: 2 days ago

God can help you have peace if you ask him in prayer I was diagnosed with...

https://connect.mayoclinic.org/comment/1403088/

Discussion: Very worried about MDS. I am extremely anxious and feel very alone.

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2025

I have MDS with the 5q variant and another variant as well. Taking Remlivid for the...

https://connect.mayoclinic.org/comment/1397794/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2025

I am very interested in your answer as I also have MDS and my monocyte count...

https://connect.mayoclinic.org/comment/976667/

Discussion: Anyone else diagnosed with CML after breast cancer radiation?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2023

Hello @nbadry. Welcome to Mayo Connect. While you’re waiting for other members to reply, have you...

https://connect.mayoclinic.org/comment/888671/

Discussion: MDS and thyroidectomy

Support Group: Blood Cancers & Disorders

Posted: Jul 2, 2023

I have MDS with low WBC. I like many also take iron supplement. If I take...

https://connect.mayoclinic.org/comment/1001159/

Discussion: Anyone take an iron supplement for low red blood cell count?

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2024

Thank you. Your comments are reassuring. He was diagnosed with MDS Leukemia. On Christmas Eve 2019....

https://connect.mayoclinic.org/comment/633714/

Discussion: Chronic GVHD ~ Let’s talk about it!

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Sep 8, 2021

My husband recently diagnosed with MDS. Just starting Chemo. I am curious as to what you...

https://connect.mayoclinic.org/comment/1379727/

Discussion: My MDS does not respond to treatments. What's next?

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2025

@vng As far as the type “ patient underwent bone marrow biopsy for the macrocytosis. This...

https://connect.mayoclinic.org/comment/1464064/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2025