Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

751 total results

Comments (697)

Diagnosed with "MDS" Aug of 2024...I have been getting the Retacrit injection weekly to generate more...

https://connect.mayoclinic.org/comment/1176999/

Discussion: Retacrit + Venofer for B-thalassemia

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2024

She is healing well. Still has balance and vision issues but she is functional. I have...

https://connect.mayoclinic.org/comment/1195416/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2024

I agree with this prognosis....my MDS is in remission of AML with no blasts. After 8...

https://connect.mayoclinic.org/comment/1171862/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2024

I have had MDS for 31/2 years. On vidaza for the same time. Leukemia cells in...

https://connect.mayoclinic.org/comment/951872/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2023

@ikampel2 managing a chronic illness is challenging enough, but to be without support from friends and...

https://connect.mayoclinic.org/comment/94438/

Discussion: I have Myelodysplastic Syndrome (MDS) spawned from ITP

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2016

Hi All, My Mother (77yr old) has had MDS for a few years now, I found...

https://connect.mayoclinic.org/comment/1170127/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2024

Hi! I am impressed you have been on "Watch and Wait" for so many years. Revlamid...

https://connect.mayoclinic.org/comment/1080342/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2024

Hello @bradmm, I am not a medical professional, but the listed symptoms of MDS include: -...

https://connect.mayoclinic.org/comment/253113/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2019

Hello @kmak1939stuart. I wanted to drop by to see how you’re doing. Last time we spoke...

https://connect.mayoclinic.org/comment/1097816/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 2, 2024

Lindagi, I just read this today 3/28, and it's great information for my husband who was...

https://connect.mayoclinic.org/comment/1041861/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2024

Cheryl I have such a heavy heart reading your post. I will ask my ladies in...

https://connect.mayoclinic.org/comment/882318/

Discussion: I have anemia and low blood Platelets due to previous drinking.

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2023

Mom has myelodysplastic syndromes (MDS) with deletion 5q and started 5mg of Revlimid this week. One...

https://connect.mayoclinic.org/comment/617192/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2021

Thanks for your reply. The doctor suspects MDS but I also have CIPO and Sjogren's and...

https://connect.mayoclinic.org/comment/274263/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2019

My husband has MDS, been tired for a long time. He just stated his Arenesp shots...

https://connect.mayoclinic.org/comment/1193392/

Discussion: Can anything help ongoing fatigue from myelodysplastic syndromes (MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2024

Thank you for this story of good outcomes and hope! You are back at work 63...

https://connect.mayoclinic.org/comment/1085668/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 12, 2024

Hi Sharyn, with your MDS, your immune system is weakened. So, having an abscess and a...

https://connect.mayoclinic.org/comment/756028/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2022

My husband has MDS and he would itch so bad he would leave his skin bruised....

https://connect.mayoclinic.org/comment/1040351/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Mar 26, 2024

I have had MDS low risk for for 7 years on a watch and see. It’s...

https://connect.mayoclinic.org/comment/821161/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2023

I have a diagnosis of MDS/MPN- RARS-T. My platelets have been too high. When I began...

https://connect.mayoclinic.org/comment/1183829/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2024

As far as I know, ET with a positive JAK2 mutation normally suggests you have a...

https://connect.mayoclinic.org/comment/284525/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2019