Blood Cancers & Disorders: Discussions | Page 16

I was on keto better than 1 yr. Lost intended weight pcp extremely happy with labs...

https://connect.mayoclinic.org/comment/645538/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2021

Jak2 is negative...they keep telling me it's from smoking but I don't fit the profile and...

https://connect.mayoclinic.org/comment/1137758/

Discussion: Polycythemia vera (PV) and bone pain: What helps?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2024

I also have ET JAK2 taking HU. My primary tested me some years before diagnosis, and...

https://connect.mayoclinic.org/comment/801452/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2023

Hi Barbie......I have jak2.....myeloproliferative neoplasm, I believe it is similar to pv. Chronic fatigue most of...

https://connect.mayoclinic.org/comment/194342/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2019

Hello everyone, I am recently diagnosed with ET and the Jak2 mutation. Cubby 13, I feel...

https://connect.mayoclinic.org/comment/1293524/

Discussion: Started Hydroxyurea 5 weeks . How long does the fatigue last?

Support Group: Blood Cancers & Disorders

Posted: Apr 30 12:12pm

Hi, I am in the USA and no bone marrow biopsy was done on me to...

https://connect.mayoclinic.org/comment/1216299/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 19 9:21am

Hi @kapow I am 79 and was diagnosed a year ago with Essential Thrombocythemia and JAK2...

https://connect.mayoclinic.org/comment/887366/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

I was put on hydroxyurea when first diagnosed with JAK2/PV about a year ago and side-effects...

https://connect.mayoclinic.org/comment/828776/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

yes, my hemo didn't think my bone pain in shin and toes was from ET Jak2,...

https://connect.mayoclinic.org/comment/798768/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2023

Is TET2 a new driver mutation? All I have heard of is JAK2, CALR, and MPL....

https://connect.mayoclinic.org/comment/765429/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2022

Welcome, Lisa! Everyone’s story will be slightly different with a few similarities. We all have a...

https://connect.mayoclinic.org/comment/1162559/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

Hi again nohrt4me, Yes, it would be wonderful if patients like you with CALR doing very...

https://connect.mayoclinic.org/comment/1313447/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: May 26 2:45pm

Lori, I'm 75 take 325mg aspirin and 1500mg HU every other day and 1000mg on opposite...

https://connect.mayoclinic.org/comment/975739/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2023

I was diagnosed with JAK2 617F in 2/2020 and began hydroxyurea treatment in 4/2022. I just...

https://connect.mayoclinic.org/comment/670146/

Discussion: Have you ever had hiccups with or after chemotherapy?

Support Group: Cancer: Managing Symptoms

Posted: Jan 11, 2022

Welcome jewelfaux, When were you first diagnosed with ET JAK2 and what was your initial platelet...

https://connect.mayoclinic.org/comment/827844/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2023

Hi Jen— I’m in the same club. ET w/JAK2. Diagnosed last month. Platelets were 720 initially...

https://connect.mayoclinic.org/comment/1301134/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: May 10 12:07pm

I'm Jak2 positive also verified by 2 separate labs..I wasn't happy with my first hematologist not...

https://connect.mayoclinic.org/comment/1088001/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2024

Sorry, I didn't quite follow this. Does your husband's doc think the jump to 1,000 was...

https://connect.mayoclinic.org/comment/826408/

Discussion: Essential Thrombocytosis - what's your experience with Jakifi?

Support Group: Blood Cancers & Disorders

Posted: Mar 15, 2023

I have just been diagnosed, ET with JAK2 mutation....he wants me to start on Hydrea...it is...

https://connect.mayoclinic.org/comment/194370/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2020

The International Myeloma Foundation is at myeloma.org. Your link took me to the International Monetary Fund....

https://connect.mayoclinic.org/comment/740005/

Discussion: Have ET: What if spleen is enlarged?

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2022

Blood Cancers & Disorders Support Group