Blood Cancers & Disorders: Discussions | Page 16

Actually my Dr just ordered the EPO bloodwork for me. I have MDS/MPN-RS-T with jak2 mutation....

https://connect.mayoclinic.org/comment/595082/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2021

I have had CLL/SLL for many years and have not had much treatment, but have found...

https://connect.mayoclinic.org/comment/908921/

Discussion: Had CLL for about 2 years, Dr is now thinking of treatment

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2023

Welcome @zinsam, I moved your message to this existing discussion about thrombocythemia so you can connect...

https://connect.mayoclinic.org/comment/893506/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

My daughter was diagnosed wit JAK2 October 2020 She hasn’t had any clotting yet so praying...

https://connect.mayoclinic.org/comment/194377/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 10, 2021

https://www.mpnresearchfoundation.org/understanding-mpns/ The MPN Reasearch Foundation is a good information resource tostart with. Also try Googling Myeloproliferative...

https://connect.mayoclinic.org/comment/978550/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2023

Hello Scott- My oncologist did the bone marrow procedure 3 years ago and confirmed the cause...

https://connect.mayoclinic.org/comment/652292/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2021

I have been on low dose HU since 2022 for ET JAK2. I am currently taking...

https://connect.mayoclinic.org/comment/1156193/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 13 7:13am

I have had ET, JAK2 positive, for 12 years. Received no treatment until 20 months ago...

https://connect.mayoclinic.org/comment/997147/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 14 12:48pm

I have been taking Eliquis for AFib for several years. This was ordered by my cardiologist....

https://connect.mayoclinic.org/comment/811705/

Discussion: PV and atrial fibrillation

Support Group: Blood Cancers & Disorders

Posted: Feb 15, 2023

Hi donlynn, I moved your questions to this existing discussion on the same topic of JAK2...

https://connect.mayoclinic.org/comment/599836/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: May 6, 2021

Hi Barbie 75....I also have jak2 and take 500mg Hyderabad six days a week. I still...

https://connect.mayoclinic.org/comment/194338/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2019

For what it’s worth, some docs call this a cancer while others say it’s a neoplasm....

https://connect.mayoclinic.org/comment/1061678/

Discussion: Essential Thrombocythaemia

Support Group: Blood Cancers & Disorders

Posted: May 3 6:32pm

I have seen two hematologists, both very good with evaluating and treating the ET, but have...

https://connect.mayoclinic.org/comment/831683/

Discussion: Essential Thrombocythemia, anemia and Celiac Disease, the Trifecta

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2023

Hello, I didn’t start on HD until mine hit 842. After 3 months I’m down to...

https://connect.mayoclinic.org/comment/1026054/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Mar 2 11:02am

I can understand the 2 words cancer and chemo are extremely scary. But with ET Jak2,...

https://connect.mayoclinic.org/comment/1091505/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 22 6:47am

Remember to breathe and stay connected to others on this site more than searching the internet...

https://connect.mayoclinic.org/comment/1162735/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25 4:09pm

I forgot to mention that my Bone Marrow did show JAK2 mutation back in 2015. I...

https://connect.mayoclinic.org/comment/203953/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2019

I, too, am interested in what feedback others have. My platelets are in the 500s and...

https://connect.mayoclinic.org/comment/941103/

Discussion: Worried about slightly elevated platelet count

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

Agreed! I found out last fall that I have ET and the Jak2 mutation. BMB was...

https://connect.mayoclinic.org/comment/840900/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2023

I also have JAK2. I was told that I could live a normal life. I have...

https://connect.mayoclinic.org/comment/956978/

Discussion: JAK2 V617F positive, now what?

Support Group: Blood Cancers & Disorders

Posted: Oct 31, 2023

Blood Cancers & Disorders Support Group