Blood Cancers & Disorders Support Group

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Comments (418)

I did not stop taking Hydroxyurea when I had knee surgery nor for any general illnesses...

https://connect.mayoclinic.org/comment/730094/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Jul 24, 2022

Robyn Scherber, MD - Living with an MPN Sept. 12, 2019 - Polycythemia Vera Disease Progression...

https://connect.mayoclinic.org/comment/807931/

Discussion: Possible Polycythemia Tinnitus, Dizziness, Headache, Fatigue

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2023

Thank you @mefely. That's an interesting statement, does not help regrow, but does help keep it....

https://connect.mayoclinic.org/comment/1260618/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Mar 17 6:55pm

I have been trying to get help and told this is what I have, 2 years...

https://connect.mayoclinic.org/comment/806632/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2023

I have been taking 600mgs of HU(Droxia formulation) since PMF diagnosis in 2018. It has lowered...

https://connect.mayoclinic.org/comment/1087439/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2024

Welcome to Connect, @wesm. Polycythemia Vera is a condition where your body is producing too many...

https://connect.mayoclinic.org/comment/1094588/

Discussion: I was diagnosed with Polycythemia vera last Sept. Is pain normal?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2024

Good morning, @fishingfever Your @name made me smile as I’m guessing you’re just itching to get...

https://connect.mayoclinic.org/comment/704569/

Discussion: Hodgkin’s lymphoma and Covid vaccines

Support Group: Blood Cancers & Disorders

Posted: May 2, 2022

Hello, new to these posts, groups and all of this information. I have had atopic dermatitis...

https://connect.mayoclinic.org/comment/161948/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2019

I was diagnosed with IgA MGUS WHEN I WAS 52. I’m now 61. The typical age...

https://connect.mayoclinic.org/comment/1248366/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 1 11:28pm

I’m at a loss after being told by my dermatologist she believes I have PV. I...

https://connect.mayoclinic.org/comment/1255864/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Mar 11 8:15pm

Hello @mvoge. Oh my goodness, intense itching is the worst! I had that with some of...

https://connect.mayoclinic.org/comment/882044/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2023

I take HU, 500 mg, 4x week, baby aspirin 2x day, and iron supplements 1x day....

https://connect.mayoclinic.org/comment/1210555/

Discussion: Does ET or HU affect liver functions?

Support Group: Blood Cancers & Disorders

Posted: Jan 13 10:49am

I was diagnosed with a myelodysplastic disorder over a year ago. Last fall a bone marrow...

https://connect.mayoclinic.org/comment/1104835/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2024

On Sat, Dec 14, 2024 at 7:34 AM Mayo Clinic Connect < nf+9223a906+28451071@n1.hubapplication.com> wrote: > ##...

https://connect.mayoclinic.org/comment/1190261/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2024

Yes, age or ET is one of my constant questions. I'm 70 now. Just based on...

https://connect.mayoclinic.org/comment/1052910/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2024

Hi @nathangolden. I'm sorry to hear about your bone pain. While I don't have bone pain...

https://connect.mayoclinic.org/comment/875257/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

Been searching for over 2 years, one hematologist oncologist has diagnosed PV. 1 test for jak-2...

https://connect.mayoclinic.org/comment/872618/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

One of the things I have noticed is that my doctors all seem to have different...

https://connect.mayoclinic.org/comment/919942/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 27, 2023

Welcome to Connect, @chella65. As you can see you’re not alone with your new diagnosis of...

https://connect.mayoclinic.org/comment/879767/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

Angie, I'm 66, diagnosed with IgA Kappa MGUS 2/15/23, husband died of Multiple Myeloma 7/24/22. Mine...

https://connect.mayoclinic.org/comment/1053450/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2024