Blood Cancers & Disorders Support Group

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1,122 total results

Comments (1,035)

I have MDS, Myelodysplastic syndrome, refractory anemia with ring sideroblast. SF3B1 mutation positive. I receive Epoetin...

https://connect.mayoclinic.org/comment/1255124/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2025

Hi Holly. Yes, there are different types of MDS. The classifications help describe the disease, how...

https://connect.mayoclinic.org/comment/1312385/

Discussion: MDS types: How did you find out what type you have?

Support Group: Blood Cancers & Disorders

Posted: May 25, 2025

I just turned 61 in July. My hemotologist gave me the diagnosis of low risk MDS...

https://connect.mayoclinic.org/comment/1366160/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2025

Thankyou for your kind words, I started antibiotics yesterday but still feel very sick. I saw...

https://connect.mayoclinic.org/comment/756073/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2022

My husband was diagnosed three years ago with MDS and his immature gran % last month...

https://connect.mayoclinic.org/comment/1351037/

Discussion: Persistent elevation of absolute immature granulocytes 7 months 0.04

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2025

Intimidation can keep us from taking the next step. Your age is important and how you...

https://connect.mayoclinic.org/comment/1327382/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2025

Hi Brenda, You need to ask your hematologist if the kind of MDS you have is...

https://connect.mayoclinic.org/comment/961334/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2023

@dstraus @colleenyoung I’m so sorry! I completely missed the MDS reference. Of course, now I understand...

https://connect.mayoclinic.org/comment/597810/

Discussion: High ferritin levels and post shoulder tendon operation pain/Exhausted

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2021

Those counts are below 10k correct? Hydroxyurea will improve the count? Diagnosed with MDS about 3...

https://connect.mayoclinic.org/comment/914557/

Discussion: Platelet Count Variance

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2023

My husband has MDs. His platelets were at 28k. I started him on papaya and it’s...

https://connect.mayoclinic.org/comment/1211666/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2025

@hanya Yes, since my husband was diagnosed with MDS 2 years ago, I read and read...

https://connect.mayoclinic.org/comment/1411195/

Discussion: A Summary of My Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Oct 8, 2025

I have had MDS for a year now. On chemo also. Hopefully the chemo will continue...

https://connect.mayoclinic.org/comment/1180377/

Discussion: MDS in a 75 year old male

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2024

I have ET with the JAK2 mutation as well as MDS. I am taking 500mg of...

https://connect.mayoclinic.org/comment/930458/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2023

I take papaya leaf extract to Raise my platelets. It comes in capsules as well From...

https://connect.mayoclinic.org/comment/821155/

Discussion: How can I raise my platelet count? (With food)

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2023

Hello @cybears, welcome to Connect. I moved you discussion and combined it with an existing one...

https://connect.mayoclinic.org/comment/226231/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2019

Thanks for your note. Motorcycling - wow. I' m considering giving up driving! My hemoglobin was...

https://connect.mayoclinic.org/comment/1193476/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2024

Hi Lori, Thank You for sharing it is very helpful to hear your journey. If you...

https://connect.mayoclinic.org/comment/925852/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2023

Great to hear your progress an success in beating AML I have MDs an possibly moving...

https://connect.mayoclinic.org/comment/841869/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2023

@twitt1949 I am one of 5 siblings. I have genetic mutations and after breast cancer i...

https://connect.mayoclinic.org/comment/1522660/

Discussion: Myelodysplastic syndromes and stomach problem?

Support Group: Blood Cancers & Disorders

Posted: Mar 8 4:30pm

My husband who just today hit 83, was diagnosed with the same MDS-RS-MLD as you in...

https://connect.mayoclinic.org/comment/1351074/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2025