Blood Cancers & Disorders Support Group

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Comments (697)

I have been diagnosed with MDS with platelets running in the low 30 even down to...

https://connect.mayoclinic.org/comment/867472/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: May 27, 2023

Thank You for sharing Jean-Pierre! If you don’t mind me asking how long have you had...

https://connect.mayoclinic.org/comment/961009/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2023

I can’t offer any advice on thrombocytopenia. I have MDS/MPN Overlap with Thrombocytosis and MF. With...

https://connect.mayoclinic.org/comment/291711/

Discussion: Autoimmune disease and thrombocytopenia

Support Group: Autoimmune Diseases

Posted: Feb 2, 2020

I have MDS and am recently been dealing with low platelets I have been in search...

https://connect.mayoclinic.org/comment/1268659/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 28 11:52am

Anne-Marie, thank you for the information on MDS Centers of Excellence. I am fortunate since I...

https://connect.mayoclinic.org/comment/963241/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

Since you mentioned ET and the VA in one sentence may I ask if you were...

https://connect.mayoclinic.org/comment/194347/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2019

I wish I could give you some of my platelets! Mine are running 500 plus up...

https://connect.mayoclinic.org/comment/802496/

Discussion: My platelets are 120000

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2023

I use aranesp injections when I red blood count goes way low I also have mds-rs-sld...

https://connect.mayoclinic.org/comment/667437/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2022

I'm 80 with 5 mutated chromosome s. Diagnosed initially with JAK2 rhen Runx1 etc. MDS/AML ....

https://connect.mayoclinic.org/comment/1260920/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 18 8:15am

I just saw this post. My aunt had MF and developed AML 30 yrs ago. Now...

https://connect.mayoclinic.org/comment/996062/

Discussion: Long awaited Drug for myelofibrosis (MF) has been released

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2024

After many years of dealing with MDS and MF my spleen was Huge. I had a...

https://connect.mayoclinic.org/comment/1029072/

Discussion: Polycythemia causing enlarged spleen

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2024

I am 59 with MDS. My platelets were bouncing around under 100 after BM transplant. Doctor...

https://connect.mayoclinic.org/comment/864385/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 22, 2023

huron Have you entered either of these 2 cancers above in the search. There are many...

https://connect.mayoclinic.org/comment/1276353/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 7 10:48am

Hello--I am new to this, so not sure about how everything works; if I'm getting it...

https://connect.mayoclinic.org/comment/829666/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2023

Hi Lori and thank you for your response. I was diagnosed with MDS about 3 months...

https://connect.mayoclinic.org/comment/1257092/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Mar 13 1:04pm

Hi @fortuitous, There’s another member in Connect (@sherbs)with the same DDX41 mutation only with MDS, not...

https://connect.mayoclinic.org/comment/1188086/

Discussion: Does anyone else have AML with ddx41 genetic mutation?

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2024

Please get the bone marrow biopsy you need those answers. My husband has had at least...

https://connect.mayoclinic.org/comment/1003201/

Discussion: At my wits end. Not sure where to go from here.

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2024

I have low platelets. My “normal” is around 68,000. I was diagnosed with ITP. It’s an...

https://connect.mayoclinic.org/comment/1025699/

Discussion: Low platelet count of around 120,000: What should be looked at?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2024

I have MDS and am anemic. I recently had an iron infusion as my doc thinks...

https://connect.mayoclinic.org/comment/1000790/

Discussion: Anyone take an iron supplement for low red blood cell count?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2024

Are your other blood numbers down too? A drop in the white blood counts would allow...

https://connect.mayoclinic.org/comment/856514/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023