Blood Cancers & Disorders Support Group

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Comments (842)

With your MDS you aren’t able to produce enough red blood cells. Aransep, developed for patients...

https://connect.mayoclinic.org/comment/1071684/

Discussion: Why are there no discussions about cancer of the blood?

Support Group: Blood Cancers & Disorders

Posted: May 20, 2024

Hi @barbwsm We’re all new at this at some point. I see you’ve been a member...

https://connect.mayoclinic.org/comment/1098504/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

I am feeling well. A little tired, but that seems to be a common side effect...

https://connect.mayoclinic.org/comment/1180958/

Discussion: MDS in a 75 year old male

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2024

Hi just wondering if anyone with MDS has experienced rash on face and neck. I have...

https://connect.mayoclinic.org/comment/948726/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2023

Yes, i'm dealing with JAK 2 mutation, had a biopsy which confirmed MDS/MPN syndrome. I take...

https://connect.mayoclinic.org/comment/777367/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2022

Aransep for MDS not anemia. Since beginning of diagnosis. Keeps HGB up to 10 if possible....

https://connect.mayoclinic.org/comment/1071677/

Discussion: Why are there no discussions about cancer of the blood?

Support Group: Blood Cancers & Disorders

Posted: May 20, 2024

I have CLL that was treated in 2016, 2017-2019. Hemaglobin rose to 15 million in 2020,...

https://connect.mayoclinic.org/comment/828716/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2023

@bromlj1 - I’m deeply sorry you’re navigating a high-risk MDS diagnosis—it’s a lot to take in....

https://connect.mayoclinic.org/comment/1313015/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 26 6:12am

I had bloodwork yesterday, and my red and white cells are in the normal range, but...

https://connect.mayoclinic.org/comment/1146970/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2024

I have had afib for fifty years and was diagnosed last year for pv. Cardiologists and...

https://connect.mayoclinic.org/comment/770824/

Discussion: PV and atrial fibrillation

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2022

Your husband is post transplant? Did he have lgl previous? My husband has MDS too and...

https://connect.mayoclinic.org/comment/1111658/

Discussion: T cell large granulocytic leukemia

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

Hi I have MDS with 5Q and started taking Lenalidomide about 2 1/2 weeks ago. I...

https://connect.mayoclinic.org/comment/1256422/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Mar 12 3:50pm

Hi @gothman. It’s been several months since our last conversation and I wanted to check in...

https://connect.mayoclinic.org/comment/1266769/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 25 5:30pm

Hello @jlw218 and welcome to Neuroendocrine support group on Mayo Connect. I appreciate your helpfulness to...

https://connect.mayoclinic.org/comment/1177317/

Discussion: Neuroendocrine insulinoma and MDS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2024

@momz I was diagnosed with MDS with Refractory Anemia and multi lineage dysplasia in February 2021....

https://connect.mayoclinic.org/comment/926928/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2023

Hi @1pearl, There are a number of different blood conditions and cancers with subsets to each....

https://connect.mayoclinic.org/comment/1348374/

Discussion: What to look for if ET is progressing to something else.

Support Group: Blood Cancers & Disorders

Posted: Jul 14 7:13pm

Good morning, @tyson1221 I know you’re anxious to get a diagnosis because of your low blood...

https://connect.mayoclinic.org/comment/807507/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2023

Hi @dwolden, It’s been quite awhile since we chatted. Your husband was just starting chemo for...

https://connect.mayoclinic.org/comment/1080255/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 3, 2024

I had to wait two years before I started treatment. My hemoglobin dropped to 10. Started...

https://connect.mayoclinic.org/comment/1164875/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2024

My friend has MDS in the late stages . He is receiving 4-6 units of blood...

https://connect.mayoclinic.org/comment/1120430/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2024