Blood Cancers & Disorders Support Group

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Comments (1,382)

Hi everyone, hope all is well. My name is Claire and I also have essential thrombocythemia...

https://connect.mayoclinic.org/comment/194319/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2019

I woud like to reply to the 26 year old who believes she/he has pylocythemia Jak2...

https://connect.mayoclinic.org/comment/1471523/

Discussion: Diagnosed polycythemia vera at 26: Any young PV patients out there?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2025

I was also recently diagnosed (JAK2 ET) after having a routine blood test. I am in...

https://connect.mayoclinic.org/comment/1140842/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2024

I just saw your post. May I ask your age? I was diagnosted with ET JAK2...

https://connect.mayoclinic.org/comment/1465336/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2025

Blurred vision is not uncommon with Polycythemia Vera. Not sure if it’s from too high red...

https://connect.mayoclinic.org/comment/1092197/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2024

Hi Leonard I also tested for a mutation it’s a monoclonal protein spike. So with that...

https://connect.mayoclinic.org/comment/974150/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2023

Hi @trillium, while many patients with polycythemia vera (PV), essential thrombocythemia (ET) or myelofibrosis (MF) have...

https://connect.mayoclinic.org/comment/336437/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Mar 2, 2021

Ive been diagnosed with PV one of the MPN'S and I could tell something was wrong...

https://connect.mayoclinic.org/comment/1088522/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2024

@ryjon So sorry, May I ask if you have any of the symptoms described here: Polycythemia...

https://connect.mayoclinic.org/comment/1457405/

Discussion: Chronic upper body pain-Is it PV related?

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2025

@cmchesh I read the report you are referring to about the JAK2 switch. I've mentioned it...

https://connect.mayoclinic.org/comment/1453461/

Discussion: Polycythemia vera (PV): Does altitude matter?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2025

Hello, @lmkmom I’ve been reading through a couple of your previous posts to see that you’ve...

https://connect.mayoclinic.org/comment/1320465/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2025

I've had ET Jak2 since 2020, with HU and baby aspirin. I know I'm not supposed...

https://connect.mayoclinic.org/comment/1446205/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2025

Thanks pattycake11 Yes, all other blood work and scans ultra sounds didn’t show anything except the...

https://connect.mayoclinic.org/comment/1066227/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2024

Hi there, I was diagnosed with CEL in December 2023 and will be having a stem...

https://connect.mayoclinic.org/comment/1061468/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: May 3, 2024

I and my wife (Becky) who was diagnosed with ET with Jak2 mutation this September (2024)....

https://connect.mayoclinic.org/comment/1186365/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2024

So question. Just for reference, I’m ET with jak2. My platelets are currently in the mid...

https://connect.mayoclinic.org/comment/1540957/

Discussion: Essential Thrombocytosis General Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 2 8:21am

Welcome to Connect, @lostmonk. High/borderline hemoglobin and hematocrit sometimes can be attributed to asleep apnea or...

https://connect.mayoclinic.org/comment/935997/

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2023

Hi, Eileen, since I, too, was diagnosed this summer with ET JAK2, I would be interested...

https://connect.mayoclinic.org/comment/772655/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2022

I was diagnosed with ET jak2 mutation a yr ago june..My plts range between 450 and...

https://connect.mayoclinic.org/comment/1116872/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2024

@1995victoria You can believe me or not. I am a PhD molecular biologist and geneticist who...

https://connect.mayoclinic.org/comment/1419855/

Discussion: Endometerial cancer with essential throbocythemia (ET) Jak 2 mutation

Support Group: Gynecologic Cancers

Posted: Oct 20, 2025