Blood Cancers & Disorders: Discussions | Page 14

Did you have a bone marrow test? I chose not to. My oncologist/ hematologist said PV...

https://connect.mayoclinic.org/comment/1163289/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 27 6:57am

She decided to put me on an iron supplement and do a JAK2 test to figure...

https://connect.mayoclinic.org/comment/298975/

Discussion: High WBC and platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2020

I have ET with the JAK2 mutation and my hematologist-oncologist has me on both HU and...

https://connect.mayoclinic.org/comment/1085943/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 13 7:00am

I was asymptomatic with high platelets for 10 years with no treatment. Just monitored platelet counts....

https://connect.mayoclinic.org/comment/846848/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2023

Normal platelets are 150 to 450 per LabCorp. Also, your other counts are normal. I would...

https://connect.mayoclinic.org/comment/942814/

Discussion: Pros and Cons of JAK2 testing

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2023

I was 65 years old and was diagnosed with ET/Jak2 mutation. My platelet count was 1...

https://connect.mayoclinic.org/comment/786781/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2022

I was on keto better than 1 yr. Lost intended weight pcp extremely happy with labs...

https://connect.mayoclinic.org/comment/645538/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2021

Hi Karen, I am unfamiliar with TET2 mutation. I have ET JAK2. I live in the...

https://connect.mayoclinic.org/comment/783703/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2022

Is TET2 a new driver mutation? All I have heard of is JAK2, CALR, and MPL....

https://connect.mayoclinic.org/comment/765429/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2022

yes, my hemo didn't think my bone pain in shin and toes was from ET Jak2,...

https://connect.mayoclinic.org/comment/798768/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2023

Hi @kapow I am 79 and was diagnosed a year ago with Essential Thrombocythemia and JAK2...

https://connect.mayoclinic.org/comment/887366/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

I was put on hydroxyurea when first diagnosed with JAK2/PV about a year ago and side-effects...

https://connect.mayoclinic.org/comment/828776/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

Hi Barbie......I have jak2.....myeloproliferative neoplasm, I believe it is similar to pv. Chronic fatigue most of...

https://connect.mayoclinic.org/comment/194342/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2019

I also have ET JAK2 taking HU. My primary tested me some years before diagnosis, and...

https://connect.mayoclinic.org/comment/801452/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2023

Jak2 is negative...they keep telling me it's from smoking but I don't fit the profile and...

https://connect.mayoclinic.org/comment/1137758/

Discussion: Polycythemia vera (PV) and bone pain: What helps?

Support Group: Blood Cancers & Disorders

Posted: Sep 7 10:30am

I'm Jak2 positive also verified by 2 separate labs..I wasn't happy with my first hematologist not...

https://connect.mayoclinic.org/comment/1088001/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 16 2:05pm

Sorry, I didn't quite follow this. Does your husband's doc think the jump to 1,000 was...

https://connect.mayoclinic.org/comment/826408/

Discussion: Essential Thrombocytosis - what's your experience with Jakifi?

Support Group: Blood Cancers & Disorders

Posted: Mar 15, 2023

I have just been diagnosed, ET with JAK2 mutation....he wants me to start on Hydrea...it is...

https://connect.mayoclinic.org/comment/194370/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2020

Thank you for the responses. My doctor at Kaiser ordered the JAK2 test, but I freaked...

https://connect.mayoclinic.org/comment/941863/

Discussion: Worried about slightly elevated platelet count

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2023

@jewelfaux and @nypara66, You’re both correct. It is possible to determine if a patient has the...

https://connect.mayoclinic.org/comment/1023538/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 27 8:29am

Blood Cancers & Disorders Support Group