Blood Cancers & Disorders Support Group

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Comments (491)

Thank you Lori for your helpful information. I've done a lot of research and reading about...

https://connect.mayoclinic.org/comment/743376/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Aug 30, 2022

Jerkin and everyone else, good morning, Once in a while I do have some itching which...

https://connect.mayoclinic.org/comment/1086872/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2024

Well the sweating subsided when I lost 70 lbs not trying after all RBS COUNT CLIMBED!...

https://connect.mayoclinic.org/comment/912134/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

I have CLL, diagnosed in 2015. This August in 2023 I developed a rash that covers...

https://connect.mayoclinic.org/comment/991067/

Discussion: Hemochromatosis: How do you deal with extreme itchiness?

Support Group: Skin Health

Posted: Jan 3, 2024

I should have stuck with Hydroxyurea. The first Besremi shot in Feb. Biweekly thereafter. Starter dose...

https://connect.mayoclinic.org/comment/1386975/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2025

Hey Jacklyn, If my doctor told me that she’s thinking of delaying treatment because my numbers...

https://connect.mayoclinic.org/comment/1353520/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2025

Your doctor has pretty much ruled out PV, even with the bone marrow biopsy. Hydroxyurea (HU)...

https://connect.mayoclinic.org/comment/1197581/

Discussion: Are the symptoms in my head? Polycythemia Vera + Mastocytosis (age-23)

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2024

I know this is a rather old post, I hope someone is still reading it. I...

https://connect.mayoclinic.org/comment/1160241/

Discussion: Hemochromatosis: How do you deal with extreme itchiness?

Support Group: Skin Health

Posted: Oct 21, 2024

2 weeks ago diagnosed with CMML 1 with Myelofibrosis 3+/3, after my 3rd Bone Marrow Aspiration...

https://connect.mayoclinic.org/comment/1509609/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 19 10:30am

I have been having problems with itching too. My upper back actually feels like something is...

https://connect.mayoclinic.org/comment/978320/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2023

I have neuropathy from head to toe and no one can determine the cause. Also have...

https://connect.mayoclinic.org/comment/825206/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2023

Hi Stephanie, Yes people with Lividoid Vasculopathy have reported having ulcers that itch very badly. I...

https://connect.mayoclinic.org/comment/52568/

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2018

What a wonderful update! It is so good he has you to advocate for him too....

https://connect.mayoclinic.org/comment/1377074/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 23, 2025

I have been diagnosed with myelo- fibrosis about seven years ago. Before that it was a...

https://connect.mayoclinic.org/comment/50504/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2013

https://www.nccn.org/patients/guidelines/content/PDF/mpn-patient.pdf I think you will find this helpful. It will take a couple of readings before...

https://connect.mayoclinic.org/comment/1201894/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2025

Update: So I had my follow up with my cardiologist and according to him there's nothing...

https://connect.mayoclinic.org/comment/885330/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2023

Thanks for moving me Colleen, much appreciated. I live in a small coal mining community in...

https://connect.mayoclinic.org/comment/731543/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2022

Hi @sandy1959, actually itching is one of the most commonly reported symptoms of essential thrombocytosis. Hives...

https://connect.mayoclinic.org/comment/817463/

Discussion: Essential thrombocythemia (ET) and breaking out in hives: What helps?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

I also have the disorder of High Factor VIII. I had a bilateral pulmonary embolism occur...

https://connect.mayoclinic.org/comment/593601/

Discussion: High Factor VIII (8) Blood Clotting Disorder and its Impacts on life

Support Group: Blood Cancers & Disorders

Posted: Apr 11, 2021

I'm 70, ET-CALR x15 yrs, HU x 6 yrs. Recently have been experiencing worsening skin itching...

https://connect.mayoclinic.org/comment/1085383/

Discussion: Ongoing effects of ET and drugs

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2024