Blood Cancers & Disorders Support Group

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Comments (418)

Hi Eileen, So i have been in Pegasys for 3 months now. I inject once a...

https://connect.mayoclinic.org/comment/807365/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2023

Hi Lori, started couple days ago but didn't pay attention until I weighed myself and no...

https://connect.mayoclinic.org/comment/916493/

Discussion: PV with high blood pressure and now edema??

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2023

I have only taken hydroxyurea and Jakafi. I was in a clinical study for a while...

https://connect.mayoclinic.org/comment/1368004/

Discussion: I would deeply appreciate feedback on patients diagnosed with CMML

Support Group: Blood Cancers & Disorders

Posted: Aug 10 8:32pm

Hi Jacklyn, my husband was first diagnosed with MDS last Oct and recently progressed to AML....

https://connect.mayoclinic.org/comment/1337905/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jun 29 2:48pm

I was started on 500 mg per day, then up to three extra per week after...

https://connect.mayoclinic.org/comment/1177399/

Discussion: palmar-plantar erythrodysesthesia and ET

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2024

Good question! I am sorry you're experiencing these problems. Looking back, are you having more dizziness/brain...

https://connect.mayoclinic.org/comment/1180614/

Discussion: Lightheadedness, Brain fog, Itchy: Side effects of HU or ET itself?

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2024

I have also experienced “motility” issues over the past few months and decided it might just...

https://connect.mayoclinic.org/comment/1316619/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: May 30 1:22pm

Hi Lori - Judy here keeping you posted. Cutting my Tasigna from 600 mg to 300...

https://connect.mayoclinic.org/comment/765651/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2022

I was originally miss diagnosed with polycythemia Vera. Because I was borderline anemic and I worked...

https://connect.mayoclinic.org/comment/1044688/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2024

I am so fortunate with my Mycosis fungoides which I call CTCL, as I was diagnosed...

https://connect.mayoclinic.org/comment/943799/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023

Hi @markgventnor, welcome to the forum. It’s interesting that you posted about a rash as I...

https://connect.mayoclinic.org/comment/994338/

Discussion: MGUS & Rash

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2024

I am not a farmer but I have ET (essential thrombocythemia). I have had it for...

https://connect.mayoclinic.org/comment/913030/

Discussion: Male 65 year old farmer with thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

by samlupowitz @samlupowitz, 2 Nice to talk to a fellow Florian, My chronic extremely fatigue is...

https://connect.mayoclinic.org/comment/803028/

Discussion: Myelofibrosis or long Covid?

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2023

About 3 years ago I had what I thought was a bug bite on my shin,...

https://connect.mayoclinic.org/comment/701623/

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2022

During a 5th spine surgery at age 79, I was diagnosed with Jak2 mutation. My platelet...

https://connect.mayoclinic.org/comment/801488/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2023

Hi @rjperk633 Such a lovely update about your mom! Wishing her a belated 88th birthday. I’m...

https://connect.mayoclinic.org/comment/1314073/

Discussion: Newly diagnosed MDS-IB2 and vidaza

Support Group: Blood Cancers & Disorders

Posted: May 27 12:16pm

I was diagnosed two years ago with PVCV but doctored for two years before that with...

https://connect.mayoclinic.org/comment/1086040/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024

Have you been tested for Allergic Contact Dermatitis, ACD? Google the 5 Day Extended Patch Test....

https://connect.mayoclinic.org/comment/959339/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2023

Hi all! I had posted on here a while back but I have had new symptoms....

https://connect.mayoclinic.org/comment/753312/

Discussion: How does leukemia (or similar diseases) present in blood work?

Support Group: Blood Cancers & Disorders

Posted: Sep 24, 2022

When I was diagnosed, with PCV and Jak 2 positive, the first thing they did was...

https://connect.mayoclinic.org/comment/891492/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2023