Blood Cancers & Disorders Support Group

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Comments (254)

I am not knowledgeable about Waldenstrom’s but I live in Dayton MN and have SMM Smoldering...

https://connect.mayoclinic.org/comment/847350/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2023

Welcome @aann, I moved your message about starting chemotherapy treatment for Waldenstrom macroglobulinemia to this existing...

https://connect.mayoclinic.org/comment/816110/

Discussion: Waldenstrom macroglobulinemia: What can I expect with chemo?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2023

I had low iron in 10s for 15 years, oral iron always brought it back up....

https://connect.mayoclinic.org/comment/796597/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2023

After covid vaccine, my hemoglobin would not come back up despite oral iron and 5 iron...

https://connect.mayoclinic.org/comment/762659/

Discussion: Erythrocytosis: Any suggestions for low ferritin due to phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Oct 18, 2022

Thank you for the suggestions but my bad guys are headed towards a very rare form...

https://connect.mayoclinic.org/comment/731681/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2022

There are antibodies that the body makes to fight diseases. There are five kinds IgD &...

https://connect.mayoclinic.org/comment/729426/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2022

Well Jackie, if you’ve ever read about me and my various post, I must have the...

https://connect.mayoclinic.org/comment/728920/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2022

Yes, definitely. I would appreciate any help with dealing physically and mentally with my Waldenstrom cancer....

https://connect.mayoclinic.org/comment/663064/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2021

Linda, I was diagnosed with WM in 2014. I posted recently and included my connection with...

https://connect.mayoclinic.org/comment/663061/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2021

I have IgG-secreting Lymphoplasmacytic Lymphoma which, although somewhat similar to Waldenstrom's, is even rarer than Waldenstrom's....

https://connect.mayoclinic.org/comment/1472529/

Discussion: Lymphoplasmacytic Lymphoma that is not WM?

Support Group: Blood Cancers & Disorders

Posted: Jan 1 9:58pm

@positivethinking Yes. I was first diagnosed with neuropathy, then MGUS and now Waldenstrom macroglobulinemia, say that...

https://connect.mayoclinic.org/comment/1453886/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2025

@kenc she is near Stanford so I am talking with her about getting a referral to...

https://connect.mayoclinic.org/comment/1452745/

Discussion: Diagnosing large B-cell lymphoma

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2025

@auntieoakley I am but my mother in law hasn’t agreed to it yet. She lives in...

https://connect.mayoclinic.org/comment/1451139/

Discussion: Diagnosing large B-cell lymphoma

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2025

If only IgM is elevated, then Waldenstrom's Macroglobulinemia is possible. Rarer than MM, but much less...

https://connect.mayoclinic.org/comment/1448906/

Discussion: Do my blood tests results indicate MGUS or MM?

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2025

@dcuste also all my blood tests results I Google searched point to Waldenström macroglobulinemia (WM) —...

https://connect.mayoclinic.org/comment/1435917/

Discussion: Bone marrow biopsy and/or blood tests for MGUS

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2025

My doctor is my oncologist that treats me for Waldenstroms non hodgkins …

https://connect.mayoclinic.org/comment/1424960/

Discussion: Waldenstroms patient diagnosed with brain menigioma: What to expect?

Support Group: Blood Cancers & Disorders

Posted: Oct 27, 2025

Hello @jswv Some links I have squirreled away: - Have you joined the Waldenstrom's Foundation --...

https://connect.mayoclinic.org/comment/1394891/

Discussion: WM / MZL

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2025

Thank you for your comment, and I’m sorry to hear about your husband. I am in...

https://connect.mayoclinic.org/comment/1393317/

Discussion: WM / MZL

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2025

A friend was diagnosed with Leukemia who did stem cell transplant from her own body. She...

https://connect.mayoclinic.org/comment/1392561/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Sep 12, 2025

I'm 68 years young and diagnosed with Waldenstrom's Macroglobulinemia 8 months ago. My oncologists/hematologists started me...

https://connect.mayoclinic.org/comment/1385201/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2025