Blood Cancers & Disorders Support Group

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Comments (254)

I was diagnosed with Waldenström's while a neurologist at a university teaching hospital who was looking...

https://connect.mayoclinic.org/comment/1026664/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2024

Welcome to Connect, @jessabell I see you’re newly diagnosed with WM. We have quite a few...

https://connect.mayoclinic.org/comment/994283/

Discussion: Waldenstrom macroglobulinemia: What can I expect with chemo?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2024

Hi my name is William Kelly I don’t have any answers but I can tell you...

https://connect.mayoclinic.org/comment/988380/

Discussion: Waldenstrom macroglobulinemia (WM): Deciding treatment options

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2023

Now having a diagnosis, I just filled out my Bio and will repost here, because it...

https://connect.mayoclinic.org/comment/981394/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

I am sorry to hear about your husband's diagnosis and wish him the best. If you...

https://connect.mayoclinic.org/comment/975036/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2023

dazlin, I have had MGUS for two years now (also have Waldenström's non-Hodgkin's lymphoma) but my...

https://connect.mayoclinic.org/comment/974476/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2023

Hi @fyrizonly, I can understand the unsettling feeling of not knowing what to expect, especially when...

https://connect.mayoclinic.org/comment/970011/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2023

I was diagnosed with Waldenstrom’s in 2010. I have not had any disabilities from it that...

https://connect.mayoclinic.org/comment/963614/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

Welcome to the club, @badnewsforme We just had another new member join the WM group yesterday....

https://connect.mayoclinic.org/comment/912217/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

Hi Patrick, (@drwill) Please accept my delayed welcome to Connect. I see you were recently diagnosed...

https://connect.mayoclinic.org/comment/890524/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2023

Hi @psue4, welcome. I moved your post to this existing discussion: - Waldenstrom Macroglobulinemia with MYD88-wild...

https://connect.mayoclinic.org/comment/851526/

Discussion: Waldenstrom Macroglobulinemia with MYD88-wild type

Support Group: Blood Cancers & Disorders

Posted: Apr 29, 2023

Has anyone been diagnosed with Myd88/ Waldenstrom Macroglobulinemia? (Sp x) If so, could you offer how...

https://connect.mayoclinic.org/comment/850802/

Discussion: Waldenstrom Macroglobulinemia with MYD88-wild type

Support Group: Blood Cancers & Disorders

Posted: Apr 28, 2023

I am not knowledgeable about Waldenstrom’s but I live in Dayton MN and have SMM Smoldering...

https://connect.mayoclinic.org/comment/847350/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2023

Welcome @aann, I moved your message about starting chemotherapy treatment for Waldenstrom macroglobulinemia to this existing...

https://connect.mayoclinic.org/comment/816110/

Discussion: Waldenstrom macroglobulinemia: What can I expect with chemo?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2023

I had low iron in 10s for 15 years, oral iron always brought it back up....

https://connect.mayoclinic.org/comment/796597/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2023

After covid vaccine, my hemoglobin would not come back up despite oral iron and 5 iron...

https://connect.mayoclinic.org/comment/762659/

Discussion: Erythrocytosis: Any suggestions for low ferritin due to phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Oct 18, 2022

Thank you for the suggestions but my bad guys are headed towards a very rare form...

https://connect.mayoclinic.org/comment/731681/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2022

There are antibodies that the body makes to fight diseases. There are five kinds IgD &...

https://connect.mayoclinic.org/comment/729426/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2022

Well Jackie, if you’ve ever read about me and my various post, I must have the...

https://connect.mayoclinic.org/comment/728920/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2022

Yes, definitely. I would appreciate any help with dealing physically and mentally with my Waldenstrom cancer....

https://connect.mayoclinic.org/comment/663064/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2021