Blood Cancers & Disorders Support Group

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Comments (233)

Me again.Waldenstroms for over a year with Imbruvica and Ruxience. IGM coming down way too slowly...

https://connect.mayoclinic.org/comment/1264059/

Discussion: Waldenstroms: What to expect immunoglobulin infusions with rutuxan?

Support Group: Blood Cancers & Disorders

Posted: Mar 22 10:45am

Hi @katytx, if you use the group search function, you will find many discussions and members...

https://connect.mayoclinic.org/comment/1231574/

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Feb 7 12:28pm

When I was under the diagnosis for Waldenstrom I had similar issues. It was extremely painful...

https://connect.mayoclinic.org/comment/1236293/

Discussion: Waldenstroms: Can severe neck and shoulder pain be due to meds?

Support Group: Blood Cancers & Disorders

Posted: Feb 13 6:53pm

My diagnosis is still Waldenstrom’s. Going for 4 infusion and still on oral meds.hair falling out...

https://connect.mayoclinic.org/comment/1244500/

Discussion: Waldenstroms: Can severe neck and shoulder pain be due to meds?

Support Group: Blood Cancers & Disorders

Posted: Feb 24 10:42am

Hi newwaldenguy. Yes, I recently found I have Waldenstrom and 2 of the 3 doctors I...

https://connect.mayoclinic.org/comment/1231022/

Discussion: Anyone have zanubrutinib/Brukinsa denied?

Support Group: Blood Cancers & Disorders

Posted: Feb 6 5:33pm

I'm 68 years young and diagnosed with Waldenstrom's Macroglobulinemia 8 months ago. My oncologists/hematologists started me...

https://connect.mayoclinic.org/comment/1385201/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Sep 2 3:42pm

Hi there, I have Waldenstroms, or what is a slow growing form of non Hodgkins B...

https://connect.mayoclinic.org/comment/1365273/

Discussion: Anyone have Rituximab infusion for lymphoma treatment? Did it help?

Support Group: Blood Cancers & Disorders

Posted: Aug 6 6:56pm

I am sorry to read that your levels indicate the need for plasmapheresis due to hyperviscosity...

https://connect.mayoclinic.org/comment/1201340/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2024

A year ago he told me that he didn’t think the MGUS would progress to Waldenstrom’s...

https://connect.mayoclinic.org/comment/1179842/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2024

I posted question about.Having Waldenstroms diagnosed a year ago. for a year and getting rutuxin infusions...

https://connect.mayoclinic.org/comment/1256953/

Discussion: Waldenstroms: What to expect immunoglobulin infusions with rutuxan?

Support Group: Blood Cancers & Disorders

Posted: Mar 13 10:51am

Waldenströms for over a yearly y. Been on rituxan and Imbruvica entire time. What can I...

https://connect.mayoclinic.org/comment/1256186/

Discussion: Waldenstroms: What to expect immunoglobulin infusions with rutuxan?

Support Group: Blood Cancers & Disorders

Posted: Mar 12 10:56am

We have an update, although more diagnostic have to be run to fully confirm things, followed...

https://connect.mayoclinic.org/comment/1268759/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 28 2:02pm

I was recently diagnosed with a rare blood cancer called Waldenstrom's Macroglobulinemia (aka: Lymphoplasmacytic Lymphoma). I've...

https://connect.mayoclinic.org/comment/1062621/

Discussion: New to kappa light chain testing

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024