Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

417 total results

Comments (362)

Hi @pennyhedgecoth and welcome to the Blood Cancers & Disorders group. I'm glad you found us....

https://connect.mayoclinic.org/comment/329372/

Discussion: JAK2 ASXL1 Mutations: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2020

In 2018 I was diagnosed with Polycythemia Vera (PV) which is a sister to your essential...

https://connect.mayoclinic.org/comment/1219391/

Discussion: Any advice for taking Hydroxyurea when you're sick?

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2025

Hi @oliviamitza Welcome to Mayo Connect. I’m so sorry to hear that your mom’s blood condition...

https://connect.mayoclinic.org/comment/1505453/

Discussion: Polycythemia Vera: What is next when treatment stops working?

Support Group: Blood Cancers & Disorders

Posted: Feb 14 9:32am

Hi @nisi Welcome to Mayo Connect. I’m so sorry to see that there’s been a change...

https://connect.mayoclinic.org/comment/1523951/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 11:45am

Welcome to Connect, @qbf This is one of those situations where it’s not good to speculate....

https://connect.mayoclinic.org/comment/1008961/

Discussion: Polycythemia Vera - Help getting Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2024

doreensel @doreenseal- Just googled 1.) Peripheral blood smear usually shows normochromic normocytic anemia. Rouleaux formation is...

https://connect.mayoclinic.org/comment/818442/

Discussion: Anemia found on bloodwork: When to see a hematologist?

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2023

kto1452, I have had Polycythemia Vera since 2018. My hematology doctor told me I will be...

https://connect.mayoclinic.org/comment/783875/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2022

Good Morning, So, back in March I had a bone marrow biopsy and aspiration done and...

https://connect.mayoclinic.org/comment/231807/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2020

Thanks for comment. Joe has polycythemia vera (PV Platelets go high sometimes the red blood cells...

https://connect.mayoclinic.org/comment/1067692/

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: May 14, 2024

Welcome to Connect, @shellep16 As fellow member @eloise999 mentioned, an allogenic SCT (using donor cells) would...

https://connect.mayoclinic.org/comment/1324156/

Discussion: Stem Cell Replacement

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2025

Hi @1pearl I am also in the US in VA, currently receiving treatment from a specialist...

https://connect.mayoclinic.org/comment/1216366/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2025

Yes, just to reiterate what was said above, patients with ET should never donate blood or...

https://connect.mayoclinic.org/comment/1047370/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2024

Hello Pink Flamingo, I understand medical insurance companies are difficult to navigaye among other issues. If...

https://connect.mayoclinic.org/comment/836434/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

Is it possible to live with Polycythemia Vera (PV) without phlebotomies? Everyone's situation is different. All...

https://connect.mayoclinic.org/comment/1235645/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2025

I’m extremely late to this as I’m sure that by now you’ve been either diagnosed or...

https://connect.mayoclinic.org/comment/1192993/

Discussion: What might this be? polycythemia vera, PCOS, lupus, something else?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2024

Wow! Thanks so much for the information Lori! I had done some research on my own...

https://connect.mayoclinic.org/comment/1365958/

Discussion: Chronic upper body pain-Is it PV related?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2025

I have had polycythemia vera for over a year. I have been on Besremi for 3...

https://connect.mayoclinic.org/comment/1296587/

Discussion: Anyone used Interferon instead of HU for ET: Benefits? Side effects?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2025

Welcome, @jerrel, though I see you’ve been a member for several years but this is your...

https://connect.mayoclinic.org/comment/1239177/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2025

Hi @themyth, with Polycythemia Vera, too many red blood cells are produced resulting in the high...

https://connect.mayoclinic.org/comment/821819/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

I was originally miss diagnosed with polycythemia Vera. Because I was borderline anemic and I worked...

https://connect.mayoclinic.org/comment/1044688/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2024

1
…
10
11
12
13
14
…
19