Blood Cancers & Disorders Support Group

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Comments (337)

I’m extremely late to this as I’m sure that by now you’ve been either diagnosed or...

https://connect.mayoclinic.org/comment/1192993/

Discussion: What might this be? polycythemia vera, PCOS, lupus, something else?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2024

Welcome, @jerrel, though I see you’ve been a member for several years but this is your...

https://connect.mayoclinic.org/comment/1239177/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2025

Hi @themyth, with Polycythemia Vera, too many red blood cells are produced resulting in the high...

https://connect.mayoclinic.org/comment/821819/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

sandy1959 @sandy1959, Itch (also known as pruritus) Yes! Itching is 100% sign of cancer look under...

https://connect.mayoclinic.org/comment/817590/

Discussion: Essential thrombocythemia (ET) and breaking out in hives: What helps?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

Hi @mordonmordon. Recently, while visiting my hematologist/oncologist for followup appts, my blood work showed an increasing...

https://connect.mayoclinic.org/comment/781624/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2022

I was originally miss diagnosed with polycythemia Vera. Because I was borderline anemic and I worked...

https://connect.mayoclinic.org/comment/1044688/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2024

I am 73 years old, diagnosed with Polycythemia Vera last August. Hdroxyurea treatment started with 500mg...

https://connect.mayoclinic.org/comment/1415002/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2025

@chorusgirl500 There are different forms of polycythemia. Primary Polycythemia Vera generally involves an acquired mutation in...

https://connect.mayoclinic.org/comment/1467028/

Discussion: Diagnosed polycythemia vera at 26: Any young PV patients out there?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2025

@rabab101, I found this information and negative or non-detectable JAK2 "Negative results for all JAK2 mutations...

https://connect.mayoclinic.org/comment/834318/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2023

My mother had polycythemia Vera in the 1990's. She had it for about 10 years and...

https://connect.mayoclinic.org/comment/1301191/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: May 10, 2025

Hi @raremiracle2, I had 1st phlebotomy in 2021 and this year second time. My history started...

https://connect.mayoclinic.org/comment/808508/

Discussion: Your tips as I prepare for first phlebotomy

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

I have polycythemia Vera..Cancer is not new to me, I had breast cancer in 2009 with...

https://connect.mayoclinic.org/comment/1093620/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2024

Hospital missed Polycythemia Vera Nov 2020 but; Mother/ Wife age 50 Hospitalized for cellulitis 2x (same...

https://connect.mayoclinic.org/comment/795964/

Discussion: Chronic Myeloid Leukemia (CML)

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2023

New subject. I have Polycythemia Vera not sure how long however I noticed my cells were...

https://connect.mayoclinic.org/comment/1126243/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2024

@tkp22, I can understand you're worried. It sounds like your health care team is being thorough....

https://connect.mayoclinic.org/comment/719785/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2022

Wow that is an extremely high amount to start on but I can only assume it...

https://connect.mayoclinic.org/comment/1065766/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2024

I have had Polycythemia Vera (PV) for 6 years now. No other symptoms before diagnose other...

https://connect.mayoclinic.org/comment/1031426/

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2024

Katrink, welcome to the Mayo Polycythemia Vera (PV) page. I was diagnosed with PV in 2018...

https://connect.mayoclinic.org/comment/1400143/

Discussion: Diagnosed with Polycythemia Vera in August. I was given Hdroxyurea

Support Group: Blood Cancers & Disorders

Posted: Sep 24, 2025

@1pearl my UCLA doctor is very nice but when I selected him we did not know...

https://connect.mayoclinic.org/comment/1421368/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2025

mlm0601, I have had little or no effects from taking Hydroxyurea (Hydrea) for 6 years now....

https://connect.mayoclinic.org/comment/1052803/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2024