Blood Cancers & Disorders: Discussions | Page 12

Hi all, only the last two questions are relevant. I too had a bone marrow biopsy...

https://connect.mayoclinic.org/comment/1041299/

Discussion: What is doc looking for with a Bone Marrow Biopsy?

Support Group: Blood Cancers & Disorders

Posted: Mar 27, 2024

Hi again @snakebite , Thank you for responding and sharing your situation so fast! Like you,...

https://connect.mayoclinic.org/comment/1345194/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 10 12:26pm

Allow me to be the acronym buster (self-proclaimed :) MPN = Myeloproliferative neoplasms, a group of...

https://connect.mayoclinic.org/comment/328563/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2020

My experience was the best possible. I arrived, was put in a gown, and given a...

https://connect.mayoclinic.org/comment/1166063/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2024

Welcome to Connect, @pearly, and thank you for sharing your history. Essential thrombocythaemia (ET) is indeed...

https://connect.mayoclinic.org/comment/146291/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2017

Doctors and diagnoses are so confusing. I to have just recently been told I have myelofibrosis...

https://connect.mayoclinic.org/comment/1364020/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 5 7:49am

I was diagnosed 3 years ago with secondary (non cancerous) PV. I do not have the...

https://connect.mayoclinic.org/comment/870096/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

@davi0937 After converting to Myelofibrosis from ET, I was having to have frequent blood transfusions (about...

https://connect.mayoclinic.org/comment/1378392/

Discussion: Primary Myelofibrosis with JAK2: Anyone have Ojjaara (momelotinib)?

Support Group: Blood Cancers & Disorders

Posted: Aug 24 4:01pm

Hi @nolan, welcome to Mayo Clinic Connect. You'll notice that I moved your message to this...

https://connect.mayoclinic.org/comment/194373/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2021

Hi, I saw this on the supraclavicular and finally looked it up. I have had a...

https://connect.mayoclinic.org/comment/1367865/

Discussion: What causes persistent swelling in the left supraclavicular?

Support Group: Blood Cancers & Disorders

Posted: Aug 10 4:11pm

I've been taking 600mgs of hydroxyurea (Droxia formulation) daily for myelofibrosis for the past 6 yrs....

https://connect.mayoclinic.org/comment/1080798/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2024

I have had polycythemia vera for over a year. I have been on Besremi for 3...

https://connect.mayoclinic.org/comment/1296587/

Discussion: Anyone used Interferon instead of HU for ET: Benefits? Side effects?

Support Group: Blood Cancers & Disorders

Posted: May 4 2:16pm

Hi Tessa My mum was diagnosed with ET when she went to routinely donate blood. She...

https://connect.mayoclinic.org/comment/1069140/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: May 16, 2024

Hi @1pearl I am also in the US in VA, currently receiving treatment from a specialist...

https://connect.mayoclinic.org/comment/1216366/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 19 9:58am

Good for you, it is behind you now! I was super anxious for that procedure as...

https://connect.mayoclinic.org/comment/1363654/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 4 2:19pm

Lori, What a blessing !!! Thank you !!! Hospital missed PV Nov 2020 but; Hospitalized same...

https://connect.mayoclinic.org/comment/795959/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2023

I recently learned pterostilbene from blueberries offers greater quercetin absorption than resveratrol. Going in that direction...

https://connect.mayoclinic.org/comment/132654/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2020

Hi, I was diagnosed with ET January 2025 after routine physical from high platelets in lab...

https://connect.mayoclinic.org/comment/1347917/

Discussion: What to look for if ET is progressing to something else.

Support Group: Blood Cancers & Disorders

Posted: Jul 14 10:05am

It is a smart choice to see a specialist that has focus on Myelofibrosis. I live...

https://connect.mayoclinic.org/comment/1314992/

Discussion: Primary Myelofibrosis: What is life going to be like now?

Support Group: Blood Cancers & Disorders

Posted: May 28 1:47pm

Hi nohrt4me, Thanks for posting. Yes, there are concerns still with only CALR mutation too I...

https://connect.mayoclinic.org/comment/1225391/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 30 10:18am

Blood Cancers & Disorders Support Group