Blood Cancers & Disorders Support Group

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Comments (251)

Hi, @2012can - I'm so glad that you were able to get your neuropathy and other...

https://connect.mayoclinic.org/comment/987954/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2023

I am so glad to find and join this group. I have struggled with doctors not...

https://connect.mayoclinic.org/comment/884229/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2023

Hi, Dell. I really feel badly for you. AML seems to be a really tough thing....

https://connect.mayoclinic.org/comment/163802/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2017

Hi, @pmm - what to do if the hematologists/oncologists at your clinic "don't treat MGUS"? I...

https://connect.mayoclinic.org/comment/987303/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2023

Thank you. I have been educating myself daily on AL and its affect on the body...

https://connect.mayoclinic.org/comment/88320/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2019

Wow, y’all are so inspiring. I was Diagnosed with Sytemic Amyloidosis AL. It is not a...

https://connect.mayoclinic.org/comment/1058433/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Apr 27 4:05pm

My mother has been ill with a variety of issues that no one could figure out...

https://connect.mayoclinic.org/comment/88324/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2019

@Lisal64 One problem I have is lazy doctors. These are people who don't know anything about...

https://connect.mayoclinic.org/comment/692176/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2022

Judy, sadly that’s par for the course with some of our blood diseases…fatigue. And with that...

https://connect.mayoclinic.org/comment/724281/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2022

My heart took a hop, skip snd a jump last night and woke me up just...

https://connect.mayoclinic.org/comment/738710/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2022

It’s not at all uncommon to have a reaction with the first rituxan infusion. I did...

https://connect.mayoclinic.org/comment/645367/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2021

I would like to share my BMT story. I had an autologous stem cell transplant 8...

https://connect.mayoclinic.org/comment/716285/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 10, 2022

Welcome to Connect @jstpeachey! I know I shouldn’t but I just have to use your @name...

https://connect.mayoclinic.org/comment/889456/

Discussion: One-week pre Autogolous BMT: I'm afraid I'm not prepared

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 3, 2023

Sorry to hear you’ve lost relatives to cancer. Cancer runs in my family also, however it’s...

https://connect.mayoclinic.org/comment/929260/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

Yes, it’s incredibly tricky trying to avoid environmental contaminants, and there’s also individual susceptibility (so my...

https://connect.mayoclinic.org/comment/961363/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2023

I also have MGUS which was discovered in lab work few years ago by accident. I...

https://connect.mayoclinic.org/comment/943307/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2023

Hi @nick86, sorry to hear you have MGUS at a young age. The benefit to finding...

https://connect.mayoclinic.org/comment/957929/

Discussion: Does anyone have any info on MGUS treatment or risk of progression?

Support Group: Blood Cancers & Disorders

Posted: Nov 2, 2023

Thanks Kay, I was diagnosed with AL amyliodosis on October 9th, now it is Oct 24th....

https://connect.mayoclinic.org/comment/1161982/

Discussion: Just diagnoised with Amyloidosis, kappa light chain restricted.

Support Group: Blood Cancers & Disorders

Posted: Oct 24 9:01am

BTW, if you read NIH funded or other research the 2020 and newer pubs are good...

https://connect.mayoclinic.org/comment/1159127/

Discussion: Just diagnoised with Amyloidosis, kappa light chain restricted.

Support Group: Blood Cancers & Disorders

Posted: Oct 18 2:55pm

Is there anyone here with a confirmed diagnosis of multiple myeloma with amylidosis?

https://connect.mayoclinic.org/comment/869018/

Discussion: Diagnosed with both multiple myeloma and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: May 30, 2023