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Comments (307)
Hello @soonerfan, How did your appointment on the 29th of March turn out? Were you able...
https://connect.mayoclinic.org/comment/1048610/
This is interesting, and potentially very helpful. The real point is that if you feel the...
https://connect.mayoclinic.org/comment/900332/
To follow up on my post 3 days ago. I am the 70-year-old that was diagnosed...
https://connect.mayoclinic.org/comment/1250436/
Oh, thank you! I'll check that out. I'm scheduled for Dec. 1. Am sick with COVID...
https://connect.mayoclinic.org/comment/969673/
Hi there ChefT, thank you kindly for your reply :) I have been concerned about amyloidosis,...
https://connect.mayoclinic.org/comment/883702/
I was diagnosed in 2021 by Stanford Amyloid Center. They recommended the regimen called dara-CyBorD and...
https://connect.mayoclinic.org/comment/1519050/
I was at a routine visit in January 2024 and my cardiologist said I needed a...
https://connect.mayoclinic.org/comment/1556433/
Colleen, thanks for the link. I did a lot of reading and realized one sad fact....
https://connect.mayoclinic.org/comment/738604/
@jwillits8 Looks to me like a good case for some autoimmune sleuthing. There are many good...
https://connect.mayoclinic.org/comment/629541/
I have MGUS (BMB 15% but oncologist says still MGUS) was tested last summer for amyloidosis...
https://connect.mayoclinic.org/comment/1279867/
@mary612 Mary, I really feel for you and your husband and all of these difficult decisions!!...
https://connect.mayoclinic.org/comment/1042733/
Do not worry Jenrico. Your symptoms are common for AL but will improve the more you...
https://connect.mayoclinic.org/comment/88307/
Lori, Yes I appreciate what you are saying. Sometimes it is best to leave well enough...
https://connect.mayoclinic.org/comment/775155/
My understanding of Waldenstroms and amyloidosis is that it is a genetic disease that strikes primarily...
https://connect.mayoclinic.org/comment/113909/
My husband has MGUS and amyloidosis and received treatments and then a stem cell transplant in...
https://connect.mayoclinic.org/comment/847175/
Lori, Thank you for the article, and for your inquiry also I am still uncertain as...
https://connect.mayoclinic.org/comment/775063/
In 2020 I started having different health problems - shortness of breath, swelling in legs. Primary...
https://connect.mayoclinic.org/comment/1466775/
S. I suggest you chat with your doctor. I found these two references that you may...
https://connect.mayoclinic.org/comment/889926/
Actually it’s not going too bad. The chemo is shots. I have completely 2 rounds/ am...
https://connect.mayoclinic.org/comment/1082496/
Hi @drw32, I am glad to see you find Connect and others with Cardiomyopathy of Transthyretin-Mediated...
https://connect.mayoclinic.org/comment/1530239/
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