Blood Cancers & Disorders Support Group

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Comments (337)

Hi @fishergramma Welcome to Mayo Connect and thank you for sharing your personal experience with MGUS,...

https://connect.mayoclinic.org/comment/746753/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2022

I was diagnosed with polycythemia vera 10 years ago, at the beginning I was getting a...

https://connect.mayoclinic.org/comment/1010255/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

In response to @Lindaw123 - I would think Vit D3 would only have an adverse reaction...

https://connect.mayoclinic.org/comment/800883/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2023

Hi @pennyhedgecoth and welcome to the Blood Cancers & Disorders group. I'm glad you found us....

https://connect.mayoclinic.org/comment/329372/

Discussion: JAK2 ASXL1 Mutations: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2020

My 68 year old friend had a pulmonary embolism on 5/18/22. This was two weeks after...

https://connect.mayoclinic.org/comment/1122553/

Discussion: Research on COVID 19 vax causing Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2024

In 2018 I was diagnosed with Polycythemia Vera (PV) which is a sister to your essential...

https://connect.mayoclinic.org/comment/1219391/

Discussion: Any advice for taking Hydroxyurea when you're sick?

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2025

I started on seven days a week and felt like crap. Hair loss, and super sensitive...

https://connect.mayoclinic.org/comment/1204224/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2025

Welcome to Mayo Connect, @lisbob40 Having blood a condition like polycythemia vera (PV) can be confusing....

https://connect.mayoclinic.org/comment/1416057/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2025

doreensel @doreenseal- Just googled 1.) Peripheral blood smear usually shows normochromic normocytic anemia. Rouleaux formation is...

https://connect.mayoclinic.org/comment/818442/

Discussion: Anemia found on bloodwork: When to see a hematologist?

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2023

kto1452, I have had Polycythemia Vera since 2018. My hematology doctor told me I will be...

https://connect.mayoclinic.org/comment/783875/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2022

Good Morning, So, back in March I had a bone marrow biopsy and aspiration done and...

https://connect.mayoclinic.org/comment/231807/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2020

Welcome to Connect, @qbf This is one of those situations where it’s not good to speculate....

https://connect.mayoclinic.org/comment/1008961/

Discussion: Polycythemia Vera - Help getting Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2024

Hi @1pearl I am also in the US in VA, currently receiving treatment from a specialist...

https://connect.mayoclinic.org/comment/1216366/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2025

Welcome to Connect, @shellep16 As fellow member @eloise999 mentioned, an allogenic SCT (using donor cells) would...

https://connect.mayoclinic.org/comment/1324156/

Discussion: Stem Cell Replacement

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2025

Thanks for comment. Joe has polycythemia vera (PV Platelets go high sometimes the red blood cells...

https://connect.mayoclinic.org/comment/1067692/

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: May 14, 2024

I have had polycythemia vera for over a year. I have been on Besremi for 3...

https://connect.mayoclinic.org/comment/1296587/

Discussion: Anyone used Interferon instead of HU for ET: Benefits? Side effects?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2025

Wow! Thanks so much for the information Lori! I had done some research on my own...

https://connect.mayoclinic.org/comment/1365958/

Discussion: Chronic upper body pain-Is it PV related?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2025

Yes, just to reiterate what was said above, patients with ET should never donate blood or...

https://connect.mayoclinic.org/comment/1047370/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2024

Is it possible to live with Polycythemia Vera (PV) without phlebotomies? Everyone's situation is different. All...

https://connect.mayoclinic.org/comment/1235645/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2025

Hello Pink Flamingo, I understand medical insurance companies are difficult to navigaye among other issues. If...

https://connect.mayoclinic.org/comment/836434/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023