Blood Cancers & Disorders Support Group

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Comments (362)

I’m 76 years old and was diagnosed with polycythemia vera with Jack to in 2021. I...

https://connect.mayoclinic.org/comment/1401713/

Discussion: Diagnosed with Polycythemia Vera in August. I was given Hdroxyurea

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2025

Aloha.. I have been taking Hydroxyurea 500mg daily for over 20 years. I still have my...

https://connect.mayoclinic.org/comment/1321243/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2025

Hi @ausableriver, Polycythemia Vera is a condition where the bone marrow makes too many red blood...

https://connect.mayoclinic.org/comment/1003392/

Discussion: Secondary polycythemia: What are the treatment options?

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2024

I was diagnosed with Polycythemia Vera three years ago. I was experiencing symptoms akin to high...

https://connect.mayoclinic.org/comment/231775/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2018

Welcome to Connect, @lostmonk. High/borderline hemoglobin and hematocrit sometimes can be attributed to asleep apnea or...

https://connect.mayoclinic.org/comment/935997/

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2023

Hi @nicolekapr, welcome. Sorry to hear you've had a particularly difficult day with fatigue and being...

https://connect.mayoclinic.org/comment/336626/

Discussion: Polycythemia Vera: Is there anything I can do for fatigue at home?

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2021

So my DX has been identified as secondary Polycythemia. I was so damn excited it was...

https://connect.mayoclinic.org/comment/895407/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

It’s unbelievably frustrating when our life takes such an abrupt turn for no reason…not that having...

https://connect.mayoclinic.org/comment/879788/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

Allow me to be the acronym buster (self-proclaimed :) MPN = Myeloproliferative neoplasms, a group of...

https://connect.mayoclinic.org/comment/328563/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2020

Welcome to Connect, @denvirg It looks like you and your doctor have found the sweet spot...

https://connect.mayoclinic.org/comment/1358206/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2025

@nypara66 Most of the time persons with blood disorders such as polycythemia or hemochromatosis are disqualified...

https://connect.mayoclinic.org/comment/851485/

Discussion: Blood Donor: Is it safe to donate blood if you have a blood condition?

Support Group: Blood Cancers & Disorders

Posted: Apr 29, 2023

Hi, I have Essential Thrombocythemia with JAK 2 mutation and perhaps these folks looking for answers...

https://connect.mayoclinic.org/comment/194318/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2019

I joined the JAK2 club in 2018. I have Polycythemia Vera which is a MPN sister...

https://connect.mayoclinic.org/comment/1184707/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2024

Hi @fishergramma Welcome to Mayo Connect and thank you for sharing your personal experience with MGUS,...

https://connect.mayoclinic.org/comment/746753/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2022

I was exposed to Agent Orange in 1968-69, at the height of the Vietnam War. I...

https://connect.mayoclinic.org/comment/1434552/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2025

@kat260 I’m 79 got my final diagnosis last week. It is Polycythemia Vera(MPN NOS-with Neutrophilic Leukocytosis)...

https://connect.mayoclinic.org/comment/1524111/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 3:19pm

I was diagnosed with polycythemia vera 10 years ago, at the beginning I was getting a...

https://connect.mayoclinic.org/comment/1010255/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

Welcome to Mayo Connect, @lisbob40 Having blood a condition like polycythemia vera (PV) can be confusing....

https://connect.mayoclinic.org/comment/1416057/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2025

I started on seven days a week and felt like crap. Hair loss, and super sensitive...

https://connect.mayoclinic.org/comment/1204224/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2025

In response to @Lindaw123 - I would think Vit D3 would only have an adverse reaction...

https://connect.mayoclinic.org/comment/800883/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2023

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