Blood Cancers & Disorders Support Group

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Comments (304)

Well Lori, I made contact with my Oncologist like you suggested. It was something she said...

https://connect.mayoclinic.org/comment/738564/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

Good morning. Hoping this message finds you well. I found your message and wanted to share...

https://connect.mayoclinic.org/comment/874720/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jun 8, 2023

In 2020 I started having different health problems - shortness of breath, swelling in legs. Primary...

https://connect.mayoclinic.org/comment/1466775/

Discussion: Looking for guidance...possible amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2025

I would like to view the video but receive a message that it is not available....

https://connect.mayoclinic.org/comment/1337037/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2025

Thank you so much for sending all of this information I will read and look at...

https://connect.mayoclinic.org/comment/715963/

Discussion: Low T-Cell - Bone Marrow Biopsy

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2022

This might be a little different than yours, but I had my diagnosis for amyloidosis on...

https://connect.mayoclinic.org/comment/1079509/

Discussion: How long from diagnosis of AML typically comes the BMT?

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2024

I am so sorry he had to go through all that! I haven’t heard of Amyloidosis....

https://connect.mayoclinic.org/comment/906869/

Discussion: Looking for advice: Could this be MGUS, because of low m-spike?

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2023

Good morning Free spirit. I was diagnosed IgM Kappa in 2012. I was stable until 2023...

https://connect.mayoclinic.org/comment/1353132/

Discussion: Long term MGUS: What changes have you had? Do's and Don'ts?

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2025

I had neuropathy in my left foot/toes and terrible nerve pain. The mm and amyloidosis were...

https://connect.mayoclinic.org/comment/104687/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2016

I researched and found out the purpose. My hemo/onc had my gastroenterologist do a biopsy for...

https://connect.mayoclinic.org/comment/754121/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2022

I'm so sorry you're having to deal with all of this, it is indeed a big...

https://connect.mayoclinic.org/comment/1216639/

Discussion: Lymphocytes on CBC

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2025

@crissy2450 of the eight siblings of my family, and a dozen or so of their grown...

https://connect.mayoclinic.org/comment/217290/

Discussion: Chemo side effects

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2018

Sounds very frustrating for you. Seems every institution including Mayo has a “watch and wait” protocol...

https://connect.mayoclinic.org/comment/883525/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2023

I understand every feeling you're having and relate to the fact hat it's difficult to find...

https://connect.mayoclinic.org/comment/104705/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2017

Hi @jebcyn. That’s a really inspirational story! It’s amazing how just the change in chemo regimens...

https://connect.mayoclinic.org/comment/782599/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

Peggyjean- Thank you so much for sharing your hard ordeals with me. All the information you...

https://connect.mayoclinic.org/comment/1120375/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2024

@theadosi hello there. It’s been pretty tough for me to be honest. I was also a...

https://connect.mayoclinic.org/comment/1489255/

Discussion: Looking for advice: Could this be MGUS, because of low m-spike?

Support Group: Blood Cancers & Disorders

Posted: 5 days ago

I had a terribly painful experience with the first bone marrow biopsy, and my doctor said...

https://connect.mayoclinic.org/comment/1332963/

Discussion: Very anxious about bone marrow biopsy

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2025

@pro Welcome to Mayo Connect! We're glad you found us. We are patients/caregivers/family members here, offering...

https://connect.mayoclinic.org/comment/81213/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2020

Hello @bob100, I’m truly sorry to hear about your wife’s diagnosis, but I also quickly want...

https://connect.mayoclinic.org/comment/88315/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2019