Blood Cancers & Disorders Support Group

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Comments (2,263)

@nohrt4me thank you for your response. I honestly haven’t taken HU off the table (even tho...

https://connect.mayoclinic.org/comment/1541550/

Discussion: Essential Thrombocytosis General Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 2 8:50pm

Also the Leukemia/Lymphoma have wonderful in-person conferences, so if you get on the email list, you...

https://connect.mayoclinic.org/comment/1061295/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 3, 2024

I have night pains in my knees and lower legs especially when in bed. I do...

https://connect.mayoclinic.org/comment/878744/

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2023

Lori, thanks for that info! Everyone with ET runs a slightly elevated risk of progressing to...

https://connect.mayoclinic.org/comment/865140/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 23, 2023

I wonder what stats are for ET Jak2, if taking HU+baby aspirin, and still get a...

https://connect.mayoclinic.org/comment/1089089/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2024

Maybe Anagrelid was what he was talking about? It is a cytoreductive drug used for ET.

https://connect.mayoclinic.org/comment/1347138/

Discussion: Has anyone been switched from Hydrea to Aggrenox?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2025

I have ET and take hydroxyurea. I was told no blood or organ donations ever.

https://connect.mayoclinic.org/comment/851791/

Discussion: Blood Donor: Is it safe to donate blood if you have a blood condition?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2023

Hi there just wondering do you have any autoimmune issues as well as ET?

https://connect.mayoclinic.org/comment/1295574/

Discussion: Anyone used Interferon instead of HU for ET: Benefits? Side effects?

Support Group: Blood Cancers & Disorders

Posted: May 3, 2025

Interested in yr gout. I attended one of those ask-the-mpn-expert programs via Zoom. (Sponsored by MPN...

https://connect.mayoclinic.org/comment/1237324/

Discussion: Hydroxyurea “Holidays” – How Long Have You Paused?

Support Group: Blood Cancers & Disorders

Posted: Feb 15, 2025

@ebertolis Hello, ebertolis! As long as my mis-programmed bone marrow is pumping out excess platelets, I...

https://connect.mayoclinic.org/comment/1507816/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Feb 17 6:29am

@colran When I was originally diagnosed with ET in 2005 at the age of 50, I...

https://connect.mayoclinic.org/comment/1527344/

Discussion: ET management, Is anyone here taking Jakafi or Pegasus?

Support Group: Blood Cancers & Disorders

Posted: Mar 15 9:58am

I am on Hydroxuria since Nov. 2022. Taking 1000 mg per day, unfortunately 500 mg did...

https://connect.mayoclinic.org/comment/1555774/

Discussion: Side effects of hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: 4 days ago

Lots of things affect platelet counts in normal people: stress, food, medication, etc. ET is a...

https://connect.mayoclinic.org/comment/950835/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2023

Two types of interferon, Pegasys and newer generation Besremi. Many ET patients take baby aspirin only...

https://connect.mayoclinic.org/comment/1339184/

Discussion: Question for 2025 and ET Patients

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2025

If you’re relatively new to your ET diagnosis you probably have a lot of questions and...

https://connect.mayoclinic.org/comment/1132865/

Discussion: Bone Marrow Aspiration - Long Term Pain Expecations

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2024

An ET diagnosis can be overwhelming, but this is the place to get answers. You're among...

https://connect.mayoclinic.org/comment/1265393/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2025

I've had tinnitus for YEARS. I haven't notice change since ET or HU.

https://connect.mayoclinic.org/comment/1096729/

Discussion: Anybody developed high fever taking hydroxy? Treatment for ET

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2024

@hipsu5 Good times… I have ET, Jak 2 positive… Life is good

https://connect.mayoclinic.org/comment/1484699/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 17 11:16am

Glad you will see the pulmonologist next week and hope that will reduce some of your...

https://connect.mayoclinic.org/comment/1265432/

Discussion: ET progression if all blood cells are increasing?

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2025

I Googled why was essential thrombocythemia reclassified from a blood disorder to blood cancer ? I...

https://connect.mayoclinic.org/comment/1301793/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2025