Blood Cancers & Disorders Support Group

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Comments (337)

Finally received the results of my BMB. Polycythemia Vera was confirmed. Additionally, my MGUS has progressed....

https://connect.mayoclinic.org/comment/714838/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2022

I have not heard about a link between JAK2 and the COVID-19 vaccinations. When my doctor...

https://connect.mayoclinic.org/comment/1032105/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2024

My doctor says platelets should be between 140 - 450. I have heard different ranges but...

https://connect.mayoclinic.org/comment/1029002/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2024

Hi Optimust, Thank you for your reply. I was aware that vitamin B12 is water soluble...

https://connect.mayoclinic.org/comment/198913/

Discussion: High Levels of Vitamin B12 and Ferritin: Any pointers?

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2019

Hello @patpambern, I have PV and have had spontaneous itching when newly diagnosed. I now take...

https://connect.mayoclinic.org/comment/1190759/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 15, 2024

Welcome to Connect, @nobody1 Interesting concept, using ozone treatments to treat blood disorders. But to date,...

https://connect.mayoclinic.org/comment/1353738/

Discussion: Polycythemia: Are you asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2025

Aloha.. I have been taking Hydroxyurea 500mg daily for over 20 years. I still have my...

https://connect.mayoclinic.org/comment/1321243/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2025

I’m 76 years old and was diagnosed with polycythemia vera with Jack to in 2021. I...

https://connect.mayoclinic.org/comment/1401713/

Discussion: Diagnosed with Polycythemia Vera in August. I was given Hdroxyurea

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2025

Hi @ausableriver, Polycythemia Vera is a condition where the bone marrow makes too many red blood...

https://connect.mayoclinic.org/comment/1003392/

Discussion: Secondary polycythemia: What are the treatment options?

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2024

I was diagnosed with Polycythemia Vera three years ago. I was experiencing symptoms akin to high...

https://connect.mayoclinic.org/comment/231775/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2018

@hipsu5, I am also a member of the myeloproliferative neoplasm (MPN) club. My condition is called...

https://connect.mayoclinic.org/comment/1484417/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: 3 days ago

Welcome to Connect, @lostmonk. High/borderline hemoglobin and hematocrit sometimes can be attributed to asleep apnea or...

https://connect.mayoclinic.org/comment/935997/

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2023

Hi @nicolekapr, welcome. Sorry to hear you've had a particularly difficult day with fatigue and being...

https://connect.mayoclinic.org/comment/336626/

Discussion: Polycythemia Vera: Is there anything I can do for fatigue at home?

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2021

Allow me to be the acronym buster (self-proclaimed :) MPN = Myeloproliferative neoplasms, a group of...

https://connect.mayoclinic.org/comment/328563/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2020

It’s unbelievably frustrating when our life takes such an abrupt turn for no reason…not that having...

https://connect.mayoclinic.org/comment/879788/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

So my DX has been identified as secondary Polycythemia. I was so damn excited it was...

https://connect.mayoclinic.org/comment/895407/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

Welcome to Connect, @denvirg It looks like you and your doctor have found the sweet spot...

https://connect.mayoclinic.org/comment/1358206/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2025

@nypara66 Most of the time persons with blood disorders such as polycythemia or hemochromatosis are disqualified...

https://connect.mayoclinic.org/comment/851485/

Discussion: Blood Donor: Is it safe to donate blood if you have a blood condition?

Support Group: Blood Cancers & Disorders

Posted: Apr 29, 2023

Hi, I have Essential Thrombocythemia with JAK 2 mutation and perhaps these folks looking for answers...

https://connect.mayoclinic.org/comment/194318/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2019

I joined the JAK2 club in 2018. I have Polycythemia Vera which is a MPN sister...

https://connect.mayoclinic.org/comment/1184707/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2024