Blood Cancers & Disorders Support Group | Page 10

@gajokos I was diagnosed with Myelofibrosis (MF) in June of the year. My mutation is MPL...

https://connect.mayoclinic.org/comment/1494765/

Discussion: Are there support groups for Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 31 9:11am

I am seeing Dr. Teffari at Mayo Clinic. He's the lead specialist in the world for...

https://connect.mayoclinic.org/comment/1194113/

Discussion: Primary Myelofibrosis: Continue watch & wait? 2nd opinion?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2024

I couldn't get my Anagralide through hospital was going to cost the earth to get through...

https://connect.mayoclinic.org/comment/1202803/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2025

I have just been diagnosed with Myelodysplastic Syndromes ( MDS-a bone marrow decease) & Myelofibrosis (MF-blood...

https://connect.mayoclinic.org/comment/194288/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2019

Hi davi0937, Thank you for posting. Great to had 17 years before getting myelofibrosis. Does that...

https://connect.mayoclinic.org/comment/1348903/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2025

@loribmt Could you share more information about your experience with the bone marrow transplant? I was...

https://connect.mayoclinic.org/comment/1489472/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 23 12:42pm

Welcome to Connect, @ronegeorge. Thank you for sharing your encouraging experience with using Hydroxyurea to control...

https://connect.mayoclinic.org/comment/1081066/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2024

It’s been a blessing to connect daily with others who share similar concerns. I was diagnosed...

https://connect.mayoclinic.org/comment/1452770/

Discussion: Thanks: Just want to say thank you

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2025

I was diagnosed June 2025 MPL mutation with SRSF2 mutation. I’m on a clinical trial for...

https://connect.mayoclinic.org/comment/1501715/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 9 11:56am

@1pearl would you mind sharing your doctors name at City of Hope? I’ve been considering going...

https://connect.mayoclinic.org/comment/1420257/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2025

I’m a 83-year-old female, diagnosed with lymphoma and myelofibrosis (JAK2 mutation) in June of 2024. I’ve...

https://connect.mayoclinic.org/comment/1252690/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2025

@colran When I was originally diagnosed with ET in 2005 at the age of 50, I...

https://connect.mayoclinic.org/comment/1527344/

Discussion: ET management, Is anyone here taking Jakafi or Pegasus?

Support Group: Blood Cancers & Disorders

Posted: Mar 15 9:58am

I, too, wanted a second opinion. I have Primary Myelofibrosis. My local clinic boasts as being...

https://connect.mayoclinic.org/comment/1420021/

Discussion: Seeking opinion about where to get a second opinion.

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2025

Follow your instincts! Continue to search for solutions. Try the resources that Lori gave you. My...

https://connect.mayoclinic.org/comment/1550163/

Discussion: Primary Myelofibrosis: so unsure of everything, need answers

Support Group: Blood Cancers & Disorders

Posted: Apr 14 7:44am

Maybe your doctor should look on CDC, NIH and World Health Org..... In hematology, essential thrombocythemia...

https://connect.mayoclinic.org/comment/1280701/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2025

@pesterthief, I found this information: "Primary idiopathic myelofibrosis is a rare myeloproliferative condition which can present...

https://connect.mayoclinic.org/comment/1168109/

Discussion: Any suggestions on what time of day is best for taking Hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2024

Hello everybody,so this picture is my bone marrow biopsy results,I went to the doc and he...

https://connect.mayoclinic.org/comment/1039033/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2024

This is pretty normal - I had pain in that area for about a month -...

https://connect.mayoclinic.org/comment/889844/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Over the last few years, studies have shown that reducing the allele burden for PV and...

https://connect.mayoclinic.org/comment/1222127/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2025

There are more of us out there with myelofibrosis than you realize. Even Facebook has a...

https://connect.mayoclinic.org/comment/1579702/

Discussion: Are there support groups for Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: 23 hours ago