Blood Cancers & Disorders: Discussions | Page 10

Hi, I have had Essential Thrombocythemia for over 15 years. I was on Anagrelide, and this...

https://connect.mayoclinic.org/comment/1202567/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 2 3:32pm

My husband has been diagnosed with myeloid Metaplasia with Myelofibrosis . White count was 30,000 and...

https://connect.mayoclinic.org/comment/101832/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 21, 2016

Hi again @snakebite , Thank you for responding and sharing your situation so fast! Like you,...

https://connect.mayoclinic.org/comment/1345194/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: 4 days ago

Lori, I wanted to update you on my husbands progress of his myelofibrosis. He finished his...

https://connect.mayoclinic.org/comment/1300132/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 8 11:38pm

Hi @dax1million. Try not to be too discouraged after yesterday’s appointment. I know, that’s easier said...

https://connect.mayoclinic.org/comment/1252125/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Mar 6 8:42pm

@susanvij I'm so sorry to hear of your brother's diagnosis. I understand that this is a...

https://connect.mayoclinic.org/comment/50509/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2017

When I was diagnosed with Myelofibrosis back in 03/2024 my Hematologist placed me on Danazol. I...

https://connect.mayoclinic.org/comment/1132106/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 28, 2024

Hi katgob, I'm certainly not one to diagnose your situation. But, I will tell you that...

https://connect.mayoclinic.org/comment/986132/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Dec 24, 2023

Essential thrombocythemia is an example of a myeloproliferative neoplasm. These are blood cancers that happen when...

https://connect.mayoclinic.org/comment/918211/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2023

Hi, I’ve lived a relatively good life after being diagnosed with ET at 20 and I’m...

https://connect.mayoclinic.org/comment/958246/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2023

Saw haematologist all good. I still have essential thrombocythemia. Tests show slight scaring of the bone...

https://connect.mayoclinic.org/comment/1206674/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 8 10:08am

Hi Nancy @1nan, I have not seen these cells referenced in my lab reports but I...

https://connect.mayoclinic.org/comment/313989/

Discussion: Tear Drop Cells and Ovalocytes: Anyone had these in lab reports?

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2020

Hi, I was diagnosed with ET January 2025 after routine physical from high platelets in lab...

https://connect.mayoclinic.org/comment/1347917/

Discussion: What to look for if ET is progressing to something else.

Support Group: Blood Cancers & Disorders

Posted: 12 hours ago

I have had polycythemia vera for over a year. I have been on Besremi for 3...

https://connect.mayoclinic.org/comment/1296587/

Discussion: Anyone used Interferon instead of HU for ET: Benefits? Side effects?

Support Group: Blood Cancers & Disorders

Posted: May 4 2:16pm

ET - prefibrotic myelofibrosis JAK2 - Chronic Myeloproliferative disease on 26th day HU 500mg per day...

https://connect.mayoclinic.org/comment/901889/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2023

Just curious if your doc has suggested trying something other than hydroxyurea? Dad also had ET,...

https://connect.mayoclinic.org/comment/1030898/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2024

Hi @1pearl, I know in retrospect you’re feeling that you shouldn’t have gotten the bone marrow...

https://connect.mayoclinic.org/comment/1348033/

Discussion: What to look for if ET is progressing to something else.

Support Group: Blood Cancers & Disorders

Posted: 10 hours ago

Hi, I think it is a good idea to have a Bone Marrow Biopsy before treatment...

https://connect.mayoclinic.org/comment/1270976/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Mar 31 12:53pm

It is a smart choice to see a specialist that has focus on Myelofibrosis. I live...

https://connect.mayoclinic.org/comment/1314992/

Discussion: Primary Myelofibrosis: What is life going to be like now?

Support Group: Blood Cancers & Disorders

Posted: May 28 1:47pm

et1055, I found this comment from Colleen, one of our monitors, on another thread. I myself...

https://connect.mayoclinic.org/comment/1168338/

Discussion: Are visual disturbances related to ET or hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2024

Blood Cancers & Disorders Support Group