Blood Cancers & Disorders Support Group

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Comments (634)

Me too! I had my LN this summer and also no treatment I had it done...

https://connect.mayoclinic.org/comment/765020/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2022

they say cll is a slow moving blood cancer and usually it is a watch and...

https://connect.mayoclinic.org/comment/737471/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2022

Hello, to this group! CLL has been my companion since 1996, so you can see I...

https://connect.mayoclinic.org/comment/941181/

Discussion: Diagnosed with chronic lymphocytic leukemia: What can I do?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

Good morning, @joeeduffy and welcome to Connect. I think you’ve found the support group for your...

https://connect.mayoclinic.org/comment/1007740/

Discussion: I just discovered I have leukemia

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2024

Hi @marytheresacll! I know you’re always so positive and trying not to worry about your health....

https://connect.mayoclinic.org/comment/1013864/

Discussion: CLL - Symptoms at Stage 0

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2024

@dpfohl1, how was your diagnosis of CLL discovered? I assume that since you are asymptomatic, your...

https://connect.mayoclinic.org/comment/1096407/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2024

CLL Diagnosis at 80 Stage 0 Discovered Incidentally I have very brief lasting chills — so...

https://connect.mayoclinic.org/comment/754228/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2022

I’m still experiencing a burning sensation in my back and arms in the morning when I...

https://connect.mayoclinic.org/comment/992939/

Discussion: Chronic Lymphocytic Leukaemia: New symptom of burning sensation

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2024

@jam5, you are watching new treatment developments for CLL very closely. :-) You're right that zanubrutinib...

https://connect.mayoclinic.org/comment/800352/

Discussion: Starting Bendamustine and Rituxin for Follicular Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jan 22, 2023

I had normal blood work over the summer of 2022, then I started losing weight and...

https://connect.mayoclinic.org/comment/963193/

Discussion: Might have CLL: Does it come on fast?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

Hi @marytheresacll It’s been a couple of months since we spoke last. I think you were...

https://connect.mayoclinic.org/comment/1061227/

Discussion: CLL - Symptoms at Stage 0

Support Group: Blood Cancers & Disorders

Posted: May 3, 2024

I have the prothrombin mutation along with Factor V Leiden. I also have CLL and a...

https://connect.mayoclinic.org/comment/913820/

Discussion: Factor ll prothrombin mutation

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2023

Yes, I meant CLL. I am scheduled for a Wide Neck Dissection on The 29th of...

https://connect.mayoclinic.org/comment/751077/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2022

I have been diagnosed with a rare CLL, MGUS, and NXG. B cell therapy is helping...

https://connect.mayoclinic.org/comment/990930/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2024

My passion is in landscaping, focusing on flowers. I have no doubt my love of nature,...

https://connect.mayoclinic.org/comment/944682/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: Oct 9, 2023

I also had a long duration cold in Oct. I ended up with a sinus infection...

https://connect.mayoclinic.org/comment/1178696/

Discussion: Anyone have a low IgM and struggling with a cold virus

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2024

Wanting to know information concerning treatment with Brukinsa(zanabrutinib) versus Bendamustine and Rituxan for CLL What are...

https://connect.mayoclinic.org/comment/800065/

Discussion: Starting Bendamustine and Rituxin for Follicular Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jan 22, 2023

I would love to hear from anyone who has CLL and if you are on osteomeds?...

https://connect.mayoclinic.org/comment/1088786/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2024

Isn’t CLL very rare in younger people (I’m 22). How do I approach my doctor about...

https://connect.mayoclinic.org/comment/279518/

Discussion: Troubling illness for 3 months.

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2019

Hi @pebbles I appreciate the update. Is the elevated alkaline phosphatase an indicator of CLL? I...

https://connect.mayoclinic.org/comment/238071/

Discussion: CLL - Referral to CLL Specialist

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2019