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Bladder Cancer Support Group

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Discussion
Anyone dealing with UTUC (Upper Tract Urothelial Carcinoma)?
https://connect.mayoclinic.org/discussion/anyone-dealing-with-utuc/
Diagnosed with non muscle invasive lowgrade UTUC. Have had three tumors ablated over the course of 1 1/2 years. Time to try Jelmyto?
Support Group: Bladder Cancer
Last active: Dec 20, 2025
Discussion
Upper Tract Urothelial Carcinoma: Interested in ureter repair options
https://connect.mayoclinic.org/discussion/upper-tract-urothelial-carcinoma-1/
I have been diagnosed with a low-grade carcinoma tumor in my right ureter. Rather than a lifetime of ablation and uteroscopy treatments, I have opted...
Support Group: Bladder Cancer
Last active: Sep 1, 2025
Discussion
Jelmyto in my future: What's treatment like? What should I know?
https://connect.mayoclinic.org/discussion/jelmyto-in-my-future/
Hello everyone. I was diagnosed with UTUC (upper tract urothelial carcinoma) in 2022. It was staged at low grade non invasive. My first urologist wanted...
Support Group: Bladder Cancer
Last active: 5 days ago
Discussion
Post-nephroureterectomy for UTUC - now abnormal bladder cells
https://connect.mayoclinic.org/discussion/post-nephroureterectomy-for-utuc-now-abnormal-bladder-cells/
I was diagnosed with high grade, muscle invasive Upper Tract Urothelial Carcinoma a year ago. After 12 cycles of Gemcitabin/Cisplatin, the right kidney, urether, bladder...
Support Group: Bladder Cancer
Last active: Dec 21, 2025