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Discussion
Questions to ask a rheumatologist regarding sjogrens knowledge
I want to interview several rheumatologists in my area to discuss their experiences with Sjogrens disease. What questions should I ask to determine their knowledge...
Support Group: Autoimmune Diseases
Last active: May 10 6:59pm
Discussion
Sjogrens and dysautononia and mast cell activation
Hi Does anyone have the three conditions I have. The only place i have seen these grouped together is by the Neurologist at Mayo clinic...
Support Group: Autoimmune Diseases
Last active: Feb 14, 2024
Discussion
Anybody heard of Sjogrens caused by TBI?
Another cyclist unexpectedly broadsided me, and I went down hard. Arm, hip, and leg injuries healed, but brain didn’t. Completed 3 months with brain injury...
Last active: Nov 6, 2025
Discussion
Sjogrens patients, saliva issues, flares?
I posted earlier and got some hugs . Thanks. But I posting to see if any other Sjogrens patients had trouble with saliva.i am hoping...
Support Group: Autoimmune Diseases
Last active: Mar 12, 2024
Discussion
Undiagnosed - sjrogrens, lupus?
HELLO, I AM A 57 YEAR OLD FEMALE THAT HAS DRY EYES, BODY ACHES, DEPRESSION, INSOMNIA, FATIQUE, SHORTNESS OF BREATH, DRY MOUTH.I HAVE BEEN TO...
Support Group: Autoimmune Diseases
Last active: Jul 7, 2022
Discussion
Pain from sarcodosis, lupus and sjogrens
Hi. I have sarcodosis, lupus and sjogrens. I have noticed I’ve been getting Granulomas all over the place now and they are very painful. I...
Support Group: Autoimmune Diseases
Last active: Feb 11 9:13pm
Discussion
Sjogrens, SFN, unbalanced walking, nystagmus
After seeing a slew of doctors, ENT, Opthamologist , Neurologists, neuro Opthamologist and a neuoro otorhyngologist I am at a loss. I have double vision...
Support Group: Autoimmune Diseases
Last active: Jul 7, 2024
Discussion
Swollen Parotid Glands - I may have Sjögren’s
I’ve been on prednisone for Giant Cell Arteritis (GCA) and Polymylagia Rheumatica (PMR) since October 2024. I also started taking Actemra last year. Recently, I...
Support Group: Autoimmune Diseases
Last active: May 10 8:58am
Discussion
Would like to hear from people with Sjogrens
I was diagnosed with Sjogrens at age 23. I am now 38 and my main symptoms (aside from the dry eyes and mouth), were fatigue...
Support Group: Autoimmune Diseases
Last active: Nov 14, 2023
Discussion
White peony extract for Sjogerns
Does anyone take white peony extract to help with Sjogerns dry eyes and mouth? I would love to hear your experiences. Thanks
Support Group: Autoimmune Diseases
Last active: Mar 14, 2023