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Autoimmune Diseases Support Group

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Discussion
Anyone have multiple pulmonary embolisms and autoimmune conditions?
I have giant cell arthritis and Sjogren syndrome since February I have had five pulmonary embolisms two of them have been while I was on...
Last active: May 27, 2024
Discussion
Sjogren's likely - how to prepare for rheumatologist
Hello, I'm a 57-year-old woman who's new to this group and just recently tested positive (78) for Salivary Protein 1 (SP1) Igg antibodies and (27)...
Support Group: Autoimmune Diseases
Last active: Nov 26, 2024
Discussion
Pending Sjogren's Diagnosis and Doctor Worries
Hi all! I've been hunting for a community to talk about my autoimmune journey with, and I am so thankful this place exists. I'm a...
Support Group: Autoimmune Diseases
Last active: Jul 21, 2023
Discussion
Sjogren's, Lupus....Open Heart Surgery
Does anyone have any experience with how their Sjogren's and or Lupus diseases reacted to Open Heart Surgery? I don't know what to expect, keep...
Support Group: Autoimmune Diseases
Last active: Dec 31, 2025
Discussion
Late Stage Primary Sjogren's Syndrome
I have advanced autoimmune disease , particularly Sjogren’s syndrome (about 30 years) Most doctors have never seen anyone like me, so most of the ones...
Support Group: Autoimmune Diseases
Last active: Sep 25, 2025
Discussion
Sjögren's Syndrome, Infusion
I start on Oct 28. I get IVIG 2 weeks later,I have horrible burning in my legs, legs are very cold!!! My Rheumatologist, it has...
Support Group: Autoimmune Diseases
Last active: Oct 24, 2024
Discussion
Managing Small Fiber Neuropathy, Sjogren's, Hashimoto's
Hello, I have a Neurologist, I'm looking for a Rumatologist is there any criteria? I saw 2 but they said they did not have to...
Support Group: Autoimmune Diseases
Last active: Oct 3, 2024
Discussion
Body odor without sweat -- Sjogren's Syndrome?
Hello all. I have been suffering for some chronic health issues since June and am being evaluated for a variety of possible conditions, including Sjogren's...
Support Group: Autoimmune Diseases
Last active: Jul 5, 2023
Discussion
Information Sojgren's Syndrome
I have Sojgren's Syndrome and Small Fiber Neuropathy. My question, I understand S.F.N about the pain and where it goes but Sojgren's understand the dry...
Support Group: Autoimmune Diseases
Last active: Apr 8, 2025
Discussion
Sjogren's and small fiber neuropathy: Seeing a rheumatologist
WHEN I GOT OUT OF THE CAR TO GO INTO THE HOSPITAL FOR A PROCEDURE I COULD HARDLY WALK ALL OF A SUDDEN?? MY HUSBAND...
Support Group: Autoimmune Diseases
Last active: Dec 19, 2025