Support Groups

Autoimmune Diseases Support Group

Public Support Group
300 total results
Discussions (27)
MCTD
Hello. I’m a 49 year old woman living with pain and weird symptoms(hair loss, GI symptoms, dry eyes, pain everywhere) every single day. I’ve been...
Support Group: Autoimmune Diseases
Last active: Mar 31 1:15pm
Puritus with MCTD
Does anyone experience itching prior to a flare or at the beginning of a flare?
Support Group: Autoimmune Diseases
Last active: Apr 27, 2024
MCTD and Angular Cheilitis
I was recently diagnosed with MCTD. I frequently get angular cheilitis. It seems to happen when I don’t feel well. The rheumatologist doesn’t think it...
Support Group: Autoimmune Diseases
Last active: Apr 2, 2024
Possible MCTD and Vasculitis
I'm a 34 yr old female mother of two. I started experiencing a hive like rash in 2014. It took three years before one of...
Support Group: Autoimmune Diseases
Last active: Jun 17, 2023
Low WBC and MCTD
I have been following this group for some time just to listen and try to get some insight and some answers from others with autoimmune...
Support Group: Autoimmune Diseases
Last active: Dec 18, 2023
MCTD, Fibromyalgia, Reynauds
Hello, I'm new here. I was just diagnosed with MCTD, Fibromyalgia, and Reynauds. Just wanted to connect with others dealing with similar things. I have...
Support Group: Autoimmune Diseases
Last active: Sep 15, 2023
MCTD and saline implants - connection ?
Hello. I have been having severe brain fog and fatigue and had every test under the sun the last year including an MRI of the...
Support Group: Autoimmune Diseases
Last active: Mar 15 2:01am
Severe brain fog with possible MCTD
I finally found a rheumatologist after 4 years of issues who ask the right questions and took the time to go through my test history....
Support Group: Autoimmune Diseases
Last active: Nov 28, 2024
MCTD (Mixed Connective Tissue Disease)
Ok, here goes my story....4 Weeks ago I was diagnosed with Mixed Connective Tissue disease...I am normally a busy busy person, I work full time...
Support Group: Autoimmune Diseases
Last active: Dec 16, 2024
If you suspect Lupus or MCTD, be sure
And see an ear nose and throat doctor. My ENT is the one that discovered my lupus. I was having trouble breathing while laying down....
Support Group: Autoimmune Diseases
Last active: Jul 11, 2024
Carob Seed flour question related to MCTD
My daughter suffers from MCTD and I am looking at getting Organic unsweetened Almond milk for her but one of the products has Carob seed...
Support Group: Autoimmune Diseases
Last active: Nov 29, 2024
MCTD, Fibromyalgia, and Hot Weather - Oh My!
Hello all,I am writing at the end of both summer and my wits! I have been diagnosed with MCTD, fibro, celiac, reynauds, neuropathy.... the list...
Support Group: Autoimmune Diseases
Last active: Sep 18, 2023
MCTD: Preparing for evaluation appointment at Mayo Clinic
Recently diagnosed with MCTD (Lupus & PA/OA, tested positive for RA, but no symptoms yet) Prescribed Plaquenil & just started Tremfya (1st injection was last...
Support Group: Autoimmune Diseases
Last active: Jan 17, 2024
MCTD- post recent diagnosis. How to manage with employer?
I was recently diagnosed with MCTD (Sept) after having numerous tests done and have seen rheumatologist twice. This last time he increased my dose of...
Support Group: Autoimmune Diseases
Last active: Feb 19 1:02pm
Process for getting Mixed Connective Tissue Disease (MCTD) diagnosis
Hello, I just found this group online and I’m hoping there’s someone who can give me some encouragement. I have lived with chronic pain and...
Support Group: Autoimmune Diseases
Last active: May 30, 2023
Could High Anti-U1 RNP with Negative ANA be MCTD?
I've had years of stiffness, persistent back pain (no slipped discs, etc., ruled out with imaging), and fatigue. It was so severe in 2018 that...
Support Group: Autoimmune Diseases
Last active: Mar 14 7:16am
MCTD flares and hip/thigh pain that is limiting mobility and activity.
Has anyone with MCTD experienced a flare up that has lasted for months? My hips and thighs get so tight I can barely walk, stairs...
Support Group: Autoimmune Diseases
Last active: Apr 9, 2024
Anyone get premature ventricular contractions during MCTD flares,
My flares start as more fatigue and lightheadedness. I can also then get premature ventricular contractions (isolated, 2 per minute.). Anyone else get this, and...
Support Group: Autoimmune Diseases
Last active: Jan 4 11:27pm
Diagnosed with MCTD recently. RNP 1.5, Reynauds and swollen fingers.
Hi, I am new to this group and in general to support groups. This is my first. I am a 37 old female. All was...
Support Group: Autoimmune Diseases
Last active: Apr 24, 2023