Autoimmune Diseases Support Group

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Comments (1,724)

@neisie13 HI I see a neurologist for migraines. I told him my story and he ordered...

https://connect.mayoclinic.org/comment/1545574/

Discussion: Dry mouth and bitter taste

Support Group: Ear, Nose & Throat (ENT)

Posted: Apr 8 9:50am

I have Sjogren's and have Crohn's which is in remission, thanks to Low Dose Naltrexone which...

https://connect.mayoclinic.org/comment/1551118/

Discussion: I think i have sjogrens-no formal diagnosis, lots of symptoms.

Support Group: Autoimmune Diseases

Posted: Apr 15 10:27am

Mimi1204, anti ccp is considered to have more accuracy than RF for RA though sometimes mistakenly...

https://connect.mayoclinic.org/comment/1556282/

Discussion: RA or something else??

Support Group: Autoimmune Diseases

Posted: Apr 21 3:34pm

I'm a 77 year old female who has been suffering for decades, one diagnosis then no...

https://connect.mayoclinic.org/comment/1557299/

Discussion: I don't know what to do next - I'm tired

Support Group: Autoimmune Diseases

Posted: Apr 23 6:12am

@gypsyblue Neuropathy is common with Sjogren's. The tests I am referring to are ordered by neurologist...

https://connect.mayoclinic.org/comment/1561756/

Discussion: Sjogren's Syndrome?

Support Group: Autoimmune Diseases

Posted: Apr 28 10:54am

Hi, I've been battling SSc for 12 years now. I also have sjogren's syndrome, Fibromyalgia, Interstitial...

https://connect.mayoclinic.org/comment/1558130/

Discussion: Scleroderma (Systemic Sclerosis): Anyone else?

Support Group: Autoimmune Diseases

Posted: Apr 24 5:10am

Do you have a GI specialist? Would an EGD with dilation help? Sure helps me. I...

https://connect.mayoclinic.org/comment/1576672/

Discussion: Dry mouth remedies

Support Group: Autoimmune Diseases

Posted: May 17 11:58am

intheorchard, components in this case refers directly to the lab work used to make this (...

https://connect.mayoclinic.org/comment/1581214/

Discussion: What would "components of Sjogren's" mean?

Support Group: Autoimmune Diseases

Posted: May 23 10:15am

Hi I am sorry that some of your concerns were not answered and the others were...

https://connect.mayoclinic.org/comment/1581661/

Discussion: What would "components of Sjogren's" mean?

Support Group: Autoimmune Diseases

Posted: May 23 11:23pm

@palehaas I was also a healthcare worker tho medical social worker for 23 years. I worked...

https://connect.mayoclinic.org/comment/1584493/

Discussion: Oral Lichen Planus After Pfizer Covid Vaccines?

Support Group: Autoimmune Diseases

Posted: May 27 10:15am

@colleenyoung Thanks so much for this info. My daughter is now expecting an in her fourth...

https://connect.mayoclinic.org/comment/1565776/

Discussion: D.E.S. Daughter with an Autoimmune Disorder! Anyone else???

Support Group: Autoimmune Diseases

Posted: May 3 5:00pm

@lummy Phil, I also use Xylimelts and thank you for reaching out. My dentist gave me...

https://connect.mayoclinic.org/comment/1544192/

Discussion: Dry mouth and bitter taste

Support Group: Ear, Nose & Throat (ENT)

Posted: Apr 6 1:47pm

@synthiame My blood work finally showed a Sjogren's diagnosis after many years of symptoms. I have...

https://connect.mayoclinic.org/comment/1544819/

Discussion: Dry mouth and bitter taste

Support Group: Ear, Nose & Throat (ENT)

Posted: Apr 7 10:22am

@larochka81 It took six months to a year for it to work on my balance, dizziness,...

https://connect.mayoclinic.org/comment/1544517/

Discussion: Leg Weakness and Mobility Issues

Support Group: Autoimmune Diseases

Posted: Apr 7 2:07am

@synthiame Yes, I also tend to write stories when I answer a post. I just went...

https://connect.mayoclinic.org/comment/1546055/

Discussion: Dry mouth and bitter taste

Support Group: Ear, Nose & Throat (ENT)

Posted: Apr 8 9:27pm

@issy58 I haven't experienced constipation. I was originally referred to a rheumatologist 15 years ago because...

https://connect.mayoclinic.org/comment/1546411/

Discussion: Sjogren's Question

Support Group: Autoimmune Diseases

Posted: Apr 9 10:24am

@j77 I had a blood test and a lip biopsy that came out negative. They can...

https://connect.mayoclinic.org/comment/1547195/

Discussion: Sjogren's Question

Support Group: Autoimmune Diseases

Posted: Apr 10 10:57am

@danarosef, you're right. There is a brief period where new members can't post links. We do...

https://connect.mayoclinic.org/comment/1550426/

Discussion: Sjogren's Question

Support Group: Autoimmune Diseases

Posted: Apr 14 12:22pm

@issy58 trying to send you info but this system is not allowing me too! guess it...

https://connect.mayoclinic.org/comment/1547852/

Discussion: Sjogren's Question

Support Group: Autoimmune Diseases

Posted: Apr 11 10:16am

Hi , I've been diagnosed with limited scleroderma, crest as well... I am switching Dr's to...

https://connect.mayoclinic.org/comment/1552433/

Discussion: Scleroderma (Systemic Sclerosis): Anyone else?

Support Group: Autoimmune Diseases

Posted: Apr 17 4:58am

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