Autoimmune Diseases Support Group

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Comments (1,724)

You should go on the John’s Hopkins Sjogren site and review the information there. I had...

https://connect.mayoclinic.org/comment/889901/

Discussion: Body odor without sweat -- Sjogren's Syndrome?

Support Group: Autoimmune Diseases

Posted: Jul 4, 2023

Hi, I have Lupus and as many of the autoimmune diseases share problems with osteoporosis and...

https://connect.mayoclinic.org/comment/908431/

Discussion: Lupus, Fibro plus losing most of my hair

Support Group: Autoimmune Diseases

Posted: Aug 6, 2023

Hi, I'm Deborah. I have primary sjogrens and degenerative arthritis. I have been on hydroxychloroquine for...

https://connect.mayoclinic.org/comment/1178557/

Discussion: Sjogren's likely - how to prepare for rheumatologist

Support Group: Autoimmune Diseases

Posted: Nov 23, 2024

I have had RA for over 25 years. Back then the anti-ccp ,which is a more...

https://connect.mayoclinic.org/comment/1527516/

Discussion: What are the standard tests for Rheumatoid Arthritis?

Support Group: Autoimmune Diseases

Posted: Mar 15 12:36pm

I also have Sjogren’s and Sicca Syndrome with Keratoconjunctivitis. I ended tearing the tissue on my...

https://connect.mayoclinic.org/comment/1028384/

Discussion: How do you deal with dry eyes?

Support Group: Eye Conditions

Posted: Mar 6, 2024

@lisalucier Lisa Lucier, Connect Moderator My first symptom of sjogren ’s was 23 years ago. One...

https://connect.mayoclinic.org/comment/111308/

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: May 5, 2018

@jimiwho I apologize. I just saw this post. In my experience and a lot of what...

https://connect.mayoclinic.org/comment/1591094/

Discussion: Hopeful

Support Group: Autoimmune Diseases

Posted: Jun 5 7:44am

@wendyhope In case you are considering this treatment, for Lupus, there are many studies with CAR-T...

https://connect.mayoclinic.org/comment/1597244/

Discussion: Anyone had CAR-T treatment for Scleroderma or Lupus? Any other CAR-T?

Support Group: Autoimmune Diseases

Posted: Jun 13 1:07pm

Thankyou for your post. I'm also a retired nurse and feeling very alone with this new...

https://connect.mayoclinic.org/comment/1603851/

Discussion: Medication Review Resources

Support Group: Autoimmune Diseases

Posted: Jun 22 1:21pm

After going through 4 rheumatologists, I’m now diagnosed with RA, lupus, and Sjogren’s Disease. I’ve had...

https://connect.mayoclinic.org/comment/1603887/

Discussion: UCTD and lung nodules

Support Group: Autoimmune Diseases

Posted: Jun 22 2:01pm

@becsbuddy Good morning..reason Becky is Systemic Lupus, Sjögren’s & type 2 Diabetes (under control AIC 6.1🎉...

https://connect.mayoclinic.org/comment/1596970/

Discussion: Anyone had CAR-T treatment for Scleroderma or Lupus? Any other CAR-T?

Support Group: Autoimmune Diseases

Posted: Jun 13 7:23am

Yes, they can be...did they describe the nodes as anything other than non-cancerous? Opaque, calcified, glass...

https://connect.mayoclinic.org/comment/1602762/

Discussion: UCTD and lung nodules

Support Group: Autoimmune Diseases

Posted: Jun 21 5:53am

@johnbishop Hello, I am 73 yr old female dx with CiDP 2 yrs ago and Sjögren’s...

https://connect.mayoclinic.org/comment/1608179/

Discussion: DADS-M Neuropathy with Anti-Mag Antibodies...anybody else?

Support Group: Neuropathy

Posted: 5 days ago

@kathan55 Anything over 1:40 is considered positive on ANA and studies seem to show that the...

https://connect.mayoclinic.org/comment/1591773/

Discussion: Can I have an autoimmune disease with perfect lab results?

Support Group: Autoimmune Diseases

Posted: Jun 6 8:03am

@becsbuddy Dr. Phillips was the first clinician who treated my Lyme (and co-infections) after my PCP...

https://connect.mayoclinic.org/comment/1600028/

Discussion: Any Lyme disease sufferers out there?

Support Group: Autoimmune Diseases

Posted: Jun 17 9:40am

I was Jascayd for few months for IPF then antibody testing showed I have Sjogrens but...

https://connect.mayoclinic.org/comment/1603883/

Discussion: RA and RA-ILD medications

Support Group: Autoimmune Diseases

Posted: Jun 22 1:51pm

I'm interested in everyone's stories here, and sorry for all of the illness you have been...

https://connect.mayoclinic.org/comment/1593150/

Discussion: D.E.S. Daughter with an Autoimmune Disorder! Anyone else???

Support Group: Autoimmune Diseases

Posted: Jun 7 11:26pm

For those who are considering CAR-T treatments, I am sharing a thought regarding multi-target CAR-T vs...

https://connect.mayoclinic.org/comment/1597889/

Discussion: Anyone had CAR-T treatment for Scleroderma or Lupus? Any other CAR-T?

Support Group: Autoimmune Diseases

Posted: Jun 14 1:21pm

I am a celiac and have been gluten free for 20 years. And was just diagnosed...

https://connect.mayoclinic.org/comment/1600233/

Discussion: Anyone else gone gluten and dairy free to help improve symptoms

Support Group: Autoimmune Diseases

Posted: Jun 17 2:45pm

@med951, I moved your post to this related discussion to connect you with others: - Azathioprine...

https://connect.mayoclinic.org/comment/1542838/

Discussion: Anyone taking Azathioprine for neuropathy caused by Sjogrens?

Support Group: Autoimmune Diseases

Posted: Apr 4 3:46pm

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