Autoimmune Diseases Support Group

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Comments (543)

Follow up to my above post. IVIG may be having more impact than I thought. I...

https://connect.mayoclinic.org/comment/1222821/

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jan 27, 2025

I was diagnosed almost a year ago. Started on methotrexate, then added sulfasalazine( that did not...

https://connect.mayoclinic.org/comment/1217964/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Jan 21, 2025

Hi martamarie11. I'm 79 and had hysterectomy at age 40 due to endometrosis. Was diagnosed 30...

https://connect.mayoclinic.org/comment/1209802/

Discussion: Newly diagnosed and confused over treatment for lichen sclerosus

Support Group: Autoimmune Diseases

Posted: Jan 12, 2025

I see the Neurologist on the 10th of January and he will do another EMG test,...

https://connect.mayoclinic.org/comment/1197675/

Discussion: ANA Titer 1:1280 pattern homogeneous and speckled o/w negative work-up

Support Group: Autoimmune Diseases

Posted: Dec 26, 2024

I went through RN school doctors are not perfect. One doctor pumped me full of Demerol...

https://connect.mayoclinic.org/comment/1154723/

Discussion: RARE disease caused permanent damage d/t dismissed by Drs for 7 yrs

Support Group: Autoimmune Diseases

Posted: Oct 10, 2024

My wife has been diagnosed with lupus and Sjögren's Syndrome for about two years now. Her...

https://connect.mayoclinic.org/comment/1359287/

Discussion: ANA positive for Lupus

Support Group: Autoimmune Diseases

Posted: Jul 29, 2025

Hello, it must be a relief as well as a scare to find out it is...

https://connect.mayoclinic.org/comment/1344836/

Discussion: Facing my first rheumatology appointment tomorrow

Support Group: Autoimmune Diseases

Posted: Jul 10, 2025

Hi Gep, So sorry you are going through this strange and difficult disease. My husband was...

https://connect.mayoclinic.org/comment/1332871/

Discussion: CLIPPERS: Looking to connect with others

Support Group: Autoimmune Diseases

Posted: Jun 22, 2025

@dmmeyers62 The search for good, knowledgeable can be difficult, can’t it? And no fun! You might...

https://connect.mayoclinic.org/comment/1331600/

Discussion: Kidney disease with celiac disease

Support Group: Autoimmune Diseases

Posted: Jun 20, 2025

I can relate to the mysteriousness of your symptoms. Here I am without any diagnosis. They...

https://connect.mayoclinic.org/comment/1314832/

Discussion: Help me diagnose

Support Group: Chronic Pain

Posted: May 28, 2025

I had an ischemic stroke in 2015 at age of 36, no pre-existing health conditions or...

https://connect.mayoclinic.org/comment/1294421/

Discussion: Xarelto or Warafin for APS?

Support Group: Autoimmune Diseases

Posted: May 1, 2025

This is the first I’d ever heard of this, but a quick internet search helped me...

https://connect.mayoclinic.org/comment/1281729/

Discussion: My hair is twisted under my scalp…it moves down my body coming out

Support Group: Autoimmune Diseases

Posted: Apr 14, 2025

I was diagnosed with sjogren's and fibromyalgia about 3 years ago but experienced symptoms much longer...

https://connect.mayoclinic.org/comment/1247175/

Discussion: Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

Support Group: Autoimmune Diseases

Posted: Feb 28, 2025

Hi Nononanette, I feel exactly like you do in terms of being frustrated in not knowing...

https://connect.mayoclinic.org/comment/1237248/

Discussion: Anyone experience a rise in liver enzymes with imuran/azathiaprone?

Support Group: Autoimmune Diseases

Posted: Feb 15, 2025

Hi @lindaray. You’ve certainly been through the wringer with little ‘ol tooth #3 with a new...

https://connect.mayoclinic.org/comment/1220753/

Discussion: crown is making saliva thick and dried. Feels like peeling.

Support Group: Autoimmune Diseases

Posted: Jan 24, 2025

I feel bad for you...you have it much worse than me (for now). Exercise is recommended,...

https://connect.mayoclinic.org/comment/1219865/

Discussion: How do you cope with Mixed Connective Tissue Disease (MCTD)?

Support Group: Autoimmune Diseases

Posted: Jan 23, 2025

Hi dstone501957, I have what I think is something similar, but the pain is in the...

https://connect.mayoclinic.org/comment/1215632/

Discussion: Idiopathic Autoimmune Treatment For Symptom

Support Group: Autoimmune Diseases

Posted: Jan 18, 2025

Welcome @ladybug623, Sorry to hear you haven't found any answers yet. You mentioned you have been...

https://connect.mayoclinic.org/comment/1156771/

Discussion: Flare ups?

Support Group: Autoimmune Diseases

Posted: Oct 14, 2024

@jardillo Welcome o Mayo Clinic Connect! You’ve come to the right place to try to get...

https://connect.mayoclinic.org/comment/1155141/

Discussion: Has anyone else here been diagnosed with both MS and myasthenia gravis

Support Group: Autoimmune Diseases

Posted: Oct 10, 2024

i understand your frustrations with socialized medicine. Do you know people in Australia who are being...

https://connect.mayoclinic.org/comment/1105550/

Discussion: Hashimoto's Thyroiditis and IVIG Treatment?*

Support Group: Autoimmune Diseases

Posted: Jul 14, 2024

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