Autoimmune Diseases Support Group

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Comments (504)

https://connect.mayoclinic.org/comment/824149/

Discussion: Any LEMS (Lambert-Eaton Myasthenic Syndrome) people out there?

Support Group: Autoimmune Diseases

Posted: Mar 10, 2023

Hello @pakeemer, Welcome to Connect. I know it has to be difficult with symptoms that are...

https://connect.mayoclinic.org/comment/810673/

Discussion: Desperately Trying to Get Diagnosed

Support Group: Autoimmune Diseases

Posted: Feb 13, 2023

Hi. Kerry here. Just came back today from first visit with what i have to say...

https://connect.mayoclinic.org/comment/809575/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Feb 10, 2023

Good morning.Very sorry to hear about your diagnosis but I have APS five years now.Of course...

https://connect.mayoclinic.org/comment/802172/

Discussion: What can I expect with Antiphospholipid Syndrome (APS)?

Support Group: Autoimmune Diseases

Posted: Jan 27, 2023

Perhaps you could ask the rheum for further testing, there are so many lab tests they...

https://connect.mayoclinic.org/comment/792273/

Discussion: Trying to find answers and right diagnosis and Dr

Support Group: Autoimmune Diseases

Posted: Jan 4, 2023

I was diagnosed with MG at 21 and am now 69. For decades I had very...

https://connect.mayoclinic.org/comment/744858/

Discussion: Myasthenia gravis - can it come back?

Support Group: Autoimmune Diseases

Posted: Sep 3, 2022

@agirlthing1977, @nedradenise, @aspine, and all...I've had double vision for many years, maybe 20-25...It's no fun and...

https://connect.mayoclinic.org/comment/736559/

Discussion: Double Vision and Autoimmune Diseases like MG: Can anyone relate?

Support Group: Autoimmune Diseases

Posted: Aug 12, 2022

Sundance, I am not sure if will help but R. Paul St. Amand, M.D. and Claudia...

https://connect.mayoclinic.org/comment/713091/

Discussion: Help with Chronic Fatigue Syndrome

Support Group: Just Want to Talk

Posted: May 31, 2022

Dakari, I was diagnosed with RA in January 2022. Looking back, I’ve had RA episodes since...

https://connect.mayoclinic.org/comment/704567/

Discussion: So many questions. Seeing Rheumatology and GI at Mayo JAX

Support Group: Autoimmune Diseases

Posted: May 2, 2022

Good morning @charlie01 I’m so sorry you were diagnosed with myositis. Autoimmune disease can be so...

https://connect.mayoclinic.org/comment/683708/

Discussion: Inclusion Body Myositis: I'd like to talk with others

Support Group: Autoimmune Diseases

Posted: Feb 23, 2022

I was diagnosed with GCA in July of 2019. Had all the symptoms and was waiting...

https://connect.mayoclinic.org/comment/680426/

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 13, 2022

I have a completely different set but I'm up to four; Graves, Celiacs, (I can't remember...

https://connect.mayoclinic.org/comment/677851/

Discussion: Multiple Autoimmune Diseases & Post Covid

Support Group: Autoimmune Diseases

Posted: Feb 5, 2022

I got diagnosed with SLE three months ago. Inflammation and pain are affecting me the most...

https://connect.mayoclinic.org/comment/677077/

Discussion: Anyone with lupus or SLE: How do you manage your condition?

Support Group: Autoimmune Diseases

Posted: Feb 2, 2022

Hello @kmb181, Welcome to Connect. I know it has to be difficult not getting any real...

https://connect.mayoclinic.org/comment/672163/

Discussion: PMR and RA

Support Group: Autoimmune Diseases

Posted: Jan 18, 2022

@kmize I’m so sorry about your frustration of the long wait for diagnosis. The waiting time...

https://connect.mayoclinic.org/comment/655693/

Discussion: Muscular weakness

Support Group: Autoimmune Diseases

Posted: Nov 19, 2021

Kathryn, I have also been diagnosed with Dermatomyositis since 2018. Are you on statins for high...

https://connect.mayoclinic.org/comment/644627/

Discussion: Dermatomyositis

Support Group: Autoimmune Diseases

Posted: Oct 13, 2021

@athenalee and @joannemm30809 Here is a Ted Talk link. This really explains what everyone is going...

https://connect.mayoclinic.org/comment/643475/

Discussion: Does it seem like autoimmune diseases are on the rise?

Support Group: Autoimmune Diseases

Posted: Oct 8, 2021

Thank you, good suggestion. My auto immune diagnosis is CURRENTLY RA and fibromyalgia. Started with a...

https://connect.mayoclinic.org/comment/642091/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 4, 2021

This must be so difficult for your son @abrown2 . It sounds like it could be...

https://connect.mayoclinic.org/comment/623622/

Discussion: Autoimmune Fatigue and/or Chronic Fatigue

Support Group: Autoimmune Diseases

Posted: Aug 5, 2021

Hello, i also have an autoimmune disease that was difficult to diagnose. Once an MRI was...

https://connect.mayoclinic.org/comment/612891/

Discussion: Is a rheumatologist who I should see about autoimmune conditions?

Support Group: Autoimmune Diseases

Posted: Jun 30, 2021

Post-COVID Recovery & COVID-19

8882

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Digestive Health

15946

12 minutes ago

Polymyalgia Rheumatica (PMR)

4585

32 minutes ago

Liver Diseases

329

17 hours ago

Fibromyalgia

3163

22 hours ago