"Dysregulated" immune system?
I have had a confounding constellation of symptoms since 2020 and am hoping to get advice, as I'm in the process of ruling out autoimmune and have been tentatively given a diagnosis of a "dysregulated" immune system, which is more a theory than a true diagnosis. Symptoms are cyclical as follows: folliculitis-like skin eruptions on scalp, particularly back of neck, followed by enlarged occipital lymph nodes. Next, oral apthous ulcers and throat ulcers behind tonsillar pillars. Major fatigue and joint pain, particularly in small joints such as fingers, toes, wrists, ankles, etc. Relevant history: 39 y/o female with 2 kids (normal deliveries, healthy), normal to slightly underweight, former professional athlete (dance), had mono at 18 and was hospitalized due to extreme throat and mouth inflammation affecting airway and had extreme fatigue for 3 months and less exercise capacity for over a year. Showed high titers for 15+ years on EBV labs, in current, past, and reactivation categories. ANA positive but only low-titer at 1:80, RNP-antibody showed positive only on some ANA w/reflex tests. All labs normal otherwise aside from sed rate and other inflammatory markers being slightly elevated. PCP thought it could be incomplete Behcet's Syndrome/Disease, but Rheumatologist tested for the related gene and it was negative. Imaging shows no joint degradation. These "cycles" happen every few months and more frequently if I am busy/stressed and don't have adequate time to rest. I do have other health conditions like chronic migraine and myclonis (muscle spasm/tic) in head/neck/shoulders and get Botox for these. STD panel always negative (monogamous +20 years) and no known genetic issues. Body is very reactive to smells, particulates, etc also. Honestly any thoughts or advice on next steps is much appreciated and I can certainly provide more info as needed. Currently see Primary, Neurologist, immunologist, have seen Rheumatology. Thanks to all for reading!!!