Autoimmune Diseases Support Group

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Comments (476)

So delighted to read the daily "scientific experiment" of our autoimmune life journey. Then the "Spoon...

https://connect.mayoclinic.org/comment/1372801/

Discussion: How do you plan your day and conserve energy? Are you a Spoonie?

Support Group: Autoimmune Diseases

Posted: Aug 17, 2025

I really admire you posting for the first time, so clear and honest. I'm glad you...

https://connect.mayoclinic.org/comment/1381255/

Discussion: Lichen Sclerosus: Any other women dealing with this disease?

Support Group: Women's Health

Posted: Aug 28, 2025

I was diagnosed with rheumatoid arthritis 10 years ago at age 62. Rheumatologist started me on...

https://connect.mayoclinic.org/comment/1259599/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Mar 16, 2025

@heatherdoney74 I’m so sorry you are going through this. I have had many of the symptoms...

https://connect.mayoclinic.org/comment/225293/

Discussion: Autoimmune? Undiagnosed and don’t know where to go next

Support Group: Autoimmune Diseases

Posted: Nov 12, 2019

@sandpiper09, I have several autoimmune diseases - the latest of which to be diagnosed is Lupus....

https://connect.mayoclinic.org/comment/146231/

Discussion: Tumid Lupus with SLE Symptoms?

Support Group: Autoimmune Diseases

Posted: Jul 5, 2017

I do not know if this would be helpful or not, but have you had your...

https://connect.mayoclinic.org/comment/754177/

Discussion: Undiagnosed Autoimmune Disease - No one will listen to me

Support Group: Autoimmune Diseases

Posted: Sep 26, 2022

@mlledaffodil I hope that you find an answer with hopefully a doctor that really can look...

https://connect.mayoclinic.org/comment/1476866/

Discussion: Anyone have any ideas on what this might be or potential solutions?

Support Group: Autoimmune Diseases

Posted: Jan 7 3:41pm

@saw2019 When I was 30 I had a virus with high fever, rashes, swollen knees. This...

https://connect.mayoclinic.org/comment/1338145/

Discussion: ANA test follow up results - anyone else experience this

Support Group: Autoimmune Diseases

Posted: Jun 29, 2025

HI, I am new to this site. I found your post when I was searching for...

https://connect.mayoclinic.org/comment/137306/

Discussion: Undiagnosed auto immune disease, put on Leflunomide

Support Group: Autoimmune Diseases

Posted: Mar 27, 2017

You didn't mention your age. PMR is primarily a disease of older people, over 50 at...

https://connect.mayoclinic.org/comment/1217669/

Discussion: Figuring out autoimmune disease where to start?

Support Group: Autoimmune Diseases

Posted: Jan 20, 2025

Hi John. Thanks for your quick response. No, the past year hasn't been my cup of...

https://connect.mayoclinic.org/comment/108632/

Discussion: Autoimmune diagnosing problem

Support Group: Autoimmune Diseases

Posted: Jan 5, 2018

I was diagnosed in 1997 and eventually went to the University of Florida Shands where they...

https://connect.mayoclinic.org/comment/1362504/

Discussion: know any causes of Chronic Nausea?

Support Group: Autoimmune Diseases

Posted: Aug 2, 2025

Marg, I went vegetarian around 1977 and it seemed to help for many years. Then remission...

https://connect.mayoclinic.org/comment/708214/

Discussion: Recently diagnosed with rheumatoid arthritis in the lung

Support Group: Autoimmune Diseases

Posted: May 14, 2022

My husband has a care team at Mayo for an unusual parotid gland cancer. At diagnosis...

https://connect.mayoclinic.org/comment/1388296/

Discussion: Still No Answers..Is it Just Me?

Support Group: Autoimmune Diseases

Posted: Sep 6, 2025

I feel your pain…I’ve been there. I was diagnosed itch Rheumatoid arthritis when I was 49,...

https://connect.mayoclinic.org/comment/1049721/

Discussion: Can anyone assist me with any help in regards to my skin condition

Support Group: Autoimmune Diseases

Posted: Apr 12, 2024

Hi patty Several years a top rheumotologist in NYC diagnosed me also with UCTD - other...

https://connect.mayoclinic.org/comment/958538/

Discussion: Undifferentiated Connective Tissue Disease turning into Lupus?

Support Group: Autoimmune Diseases

Posted: Nov 3, 2023

Oh thank you so much 💜 I'm going to try some of those things. I do...

https://connect.mayoclinic.org/comment/934800/

Discussion: New diagnosis of Addison disease

Support Group: Diabetes & Endocrine System

Posted: Sep 23, 2023

I do not know what AIED is but I am told that I have three auto-immune...

https://connect.mayoclinic.org/comment/910274/

Discussion: Anyone out there with Autoimmune inner ear disease (AIED)?

Support Group: Autoimmune Diseases

Posted: Aug 9, 2023

Im so sorry you have to go through this. In the 30+ years that I have...

https://connect.mayoclinic.org/comment/977033/

Discussion: Worried about upcoming rheumatologist appointment

Support Group: Autoimmune Diseases

Posted: Dec 8, 2023

To apriljeff, I have been reading this thread and thought I had responded but can’t find...

https://connect.mayoclinic.org/comment/1043288/

Discussion: Afraid will not be taken seriously

Support Group: Autoimmune Diseases

Posted: Mar 31, 2024