Autoimmune Diseases Support Group

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Comments (471)

Sounds like you are doing great! Anyway, all I know is that they say the "gut"...

https://connect.mayoclinic.org/comment/137311/

Discussion: Undiagnosed auto immune disease, put on Leflunomide

Support Group: Autoimmune Diseases

Posted: May 17, 2017

Hello @jip499 and welcome to Connect. You ask a good question. I found some information on...

https://connect.mayoclinic.org/comment/724180/

Discussion: Plaquenil eye problems

Support Group: Autoimmune Diseases

Posted: Jul 6, 2022

Thank you so much for the suggestions. I had thought about all the paperwork that will...

https://connect.mayoclinic.org/comment/669417/

Discussion: RA and sudden hand pain, couldn't hold my pen: Anyone?

Support Group: Autoimmune Diseases

Posted: Jan 9, 2022

Yes, again you are correct. I have been pished around. The kidney doctor refused to address...

https://connect.mayoclinic.org/comment/642366/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 5, 2021

Last week I was told by my orthopedist that the painful swelling in both of my...

https://connect.mayoclinic.org/comment/1084343/

Discussion: Looking for the best lifestyle changes to reduce symptoms

Support Group: Autoimmune Diseases

Posted: Jun 10, 2024

I was diagnosed with rheumatoid arthritis when I was 5 years old. I turned my ankle...

https://connect.mayoclinic.org/comment/807376/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Feb 7, 2023

I just found this link after joining the Autoimmune group. I am a 69-year-old woman with...

https://connect.mayoclinic.org/comment/768226/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Nov 1, 2022

God Bless You! I am just this week being treated for lupus. I am much older...

https://connect.mayoclinic.org/comment/859123/

Discussion: What might this be? polycythemia vera, PCOS, lupus, something else?

Support Group: Blood Cancers & Disorders

Posted: May 13, 2023

Have you been to a neurologist? Get an emg/nerve conduction test. My neuropathy is autoimmune. And...

https://connect.mayoclinic.org/comment/1547736/

Discussion: I don't know what to do next - I'm tired

Support Group: Autoimmune Diseases

Posted: Apr 11 8:30am

Since early childhood, I have experienced significant exercise intolerance, with an inability to walk distances greater...

https://connect.mayoclinic.org/comment/1408270/

Discussion: Multiple family members with autoimmune diseases....is there a link?

Support Group: Autoimmune Diseases

Posted: Oct 4, 2025

There are several blood tests that can be helpful in addition to the EMG test. All...

https://connect.mayoclinic.org/comment/1046520/

Discussion: Has anyone really gotten over CIDP?

Support Group: Autoimmune Diseases

Posted: Apr 6, 2024

Hi, everyone. I haven't done the AIP diet per se, but I'm looking into what anti-inflammatory...

https://connect.mayoclinic.org/comment/1044591/

Discussion: AIP diet for autoimmune illnesses

Support Group: Autoimmune Diseases

Posted: Apr 3, 2024

Just joined this group. I was diagnosed in January 2022 with Sjogren's/Sicca after undergoing a Sialoendoscopy...

https://connect.mayoclinic.org/comment/1031944/

Discussion: Sjogrens patients, saliva issues, flares?

Support Group: Autoimmune Diseases

Posted: Mar 11, 2024

I got the Shingles shots and still got the shingles. I got it in my right...

https://connect.mayoclinic.org/comment/1366734/

Discussion: I have shingles and am astounded at how painful it is. Anyone else?

Support Group: Autoimmune Diseases

Posted: Aug 8, 2025

I think this is the right place for me to start. I was a long-term, brittle,...

https://connect.mayoclinic.org/comment/1300058/

Discussion: How do you cope with Mixed Connective Tissue Disease (MCTD)?

Support Group: Autoimmune Diseases

Posted: May 8, 2025

I am down to 2.5mg prednisone from 15mg a year ago. Also taking 400mg plaquenil daily....

https://connect.mayoclinic.org/comment/1232924/

Discussion: PMR Flare with New Issues

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 9, 2025

I have been on the biologic Rinvoq for seronegative rheumatoid arthritis and ended up in the...

https://connect.mayoclinic.org/comment/1207290/

Discussion: Biologics side affects

Support Group: Autoimmune Diseases

Posted: Jan 9, 2025

Hi LisaBeans. I am sorry you are suffering so, and are in limbo as far as...

https://connect.mayoclinic.org/comment/137284/

Discussion: Undiagnosed auto immune disease, put on Leflunomide

Support Group: Autoimmune Diseases

Posted: Feb 14, 2017

I wa diagnosed with rheumatoid arthritis 10 years ago. Started with methotrexate and hydrochloquin and celebrex....

https://connect.mayoclinic.org/comment/1259586/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Mar 16, 2025

I don’t have hashimotos or lupus. But yes, if you have one autoimmune, it’s likely others...

https://connect.mayoclinic.org/comment/990236/

Discussion: Frustrated and continuing to look for diagnosis

Support Group: Autoimmune Diseases

Posted: Jan 2, 2024

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