Autoimmune Diseases Support Group

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Comments (367)

There are several blood tests that can be helpful in addition to the EMG test. All...

https://connect.mayoclinic.org/comment/1046520/

Discussion: Has anyone really gotten over CIDP?

Support Group: Autoimmune Diseases

Posted: Apr 6, 2024

Hi, everyone. I haven't done the AIP diet per se, but I'm looking into what anti-inflammatory...

https://connect.mayoclinic.org/comment/1044591/

Discussion: AIP diet for autoimmune illnesses

Support Group: Autoimmune Diseases

Posted: Apr 3, 2024

Just joined this group. I was diagnosed in January 2022 with Sjogren's/Sicca after undergoing a Sialoendoscopy...

https://connect.mayoclinic.org/comment/1031944/

Discussion: Sjogrens patients, saliva issues, flares?

Support Group: Autoimmune Diseases

Posted: Mar 11, 2024

I have been on the biologic Rinvoq for seronegative rheumatoid arthritis and ended up in the...

https://connect.mayoclinic.org/comment/1207290/

Discussion: Biologics side affects

Support Group: Autoimmune Diseases

Posted: Jan 9 5:52am

I am down to 2.5mg prednisone from 15mg a year ago. Also taking 400mg plaquenil daily....

https://connect.mayoclinic.org/comment/1232924/

Discussion: PMR Flare with New Issues

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 9 11:00am

Hi LisaBeans. I am sorry you are suffering so, and are in limbo as far as...

https://connect.mayoclinic.org/comment/137284/

Discussion: Undiagnosed auto immune disease, put on Leflunomide

Support Group: Autoimmune Diseases

Posted: Feb 14, 2017

I don’t have hashimotos or lupus. But yes, if you have one autoimmune, it’s likely others...

https://connect.mayoclinic.org/comment/990236/

Discussion: Frustrated and continuing to look for diagnosis

Support Group: Autoimmune Diseases

Posted: Jan 2, 2024

I am striving for a Mediterranean type diet although I am not quite there yet. No...

https://connect.mayoclinic.org/comment/708273/

Discussion: Recently diagnosed with rheumatoid arthritis in the lung

Support Group: Autoimmune Diseases

Posted: May 14, 2022

Hello @lily2013 and I'd also like to welcome you to Mayo Connect. I really admire your...

https://connect.mayoclinic.org/comment/182114/

Discussion: Facial Swelling - no diagnosis

Support Group: Autoimmune Diseases

Posted: Jan 23, 2018

I have been on Low Dose Naltrexone for 4 months starting at 1.5mg and now at...

https://connect.mayoclinic.org/comment/611218/

Discussion: Anyone have experience with Low Dose Naltrexone instead of prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 24, 2021

Hi Zara--I don't have any real insights into what's causing your problems, but I do understand...

https://connect.mayoclinic.org/comment/659804/

Discussion: Reactive Arthritis?

Support Group: Autoimmune Diseases

Posted: Dec 5, 2021

Alyse, I have moderate rheumatoid arthritis (RA) and have been on those toxic medications (Methotraxate, Celeblex...

https://connect.mayoclinic.org/comment/107404/

Discussion: Autoimmune Diseases and Fatigue

Support Group: Autoimmune Diseases

Posted: Aug 26, 2016

Hi Codered, I merged your discussion with this existing discussion about EVUSHELD as mentioned by Dr....

https://connect.mayoclinic.org/comment/664446/

Discussion: Just approved: Evusheld for the pre-exposure prevention of COVID-19

Support Group: Transplants

Posted: Dec 22, 2021

Reviewed by Barbara Goldstein, MD (February 01, 2016) Undifferentiated connective tissue disease (UCTD) is a systemic...

https://connect.mayoclinic.org/comment/264055/

Discussion: UCTD, low MCV, low MCH and low neutrophils

Support Group: Autoimmune Diseases

Posted: May 31, 2019

Welcome to Mayo Connect! I want to just caution you that rheumatologists are not likely to...

https://connect.mayoclinic.org/comment/950173/

Discussion: Shoulder, knee, wrist and finger pain, itching skin

Support Group: Autoimmune Diseases

Posted: Oct 19, 2023

I don't have RA so I can't speak with any experience about RA. However, I'm somewhat...

https://connect.mayoclinic.org/comment/809500/

Discussion: PMR and RA

Support Group: Autoimmune Diseases

Posted: Feb 10, 2023

@lisabeans Yes, I do have a rheumatologist. Her tests rule out Lupus. I already have rheumatoid...

https://connect.mayoclinic.org/comment/149836/

Discussion: Have a few autoimmune disorders - now have consistent low grade fever

Support Group: Autoimmune Diseases

Posted: May 1, 2017

Hi, I'm Deborah. I have primary sjogrens and degenerative arthritis. I have been on hydroxychloroquine for...

https://connect.mayoclinic.org/comment/1178557/

Discussion: Sjogren's likely - how to prepare for rheumatologist

Support Group: Autoimmune Diseases

Posted: Nov 23, 2024

Hi, I'm new here and grateful for the opportunity to connect with other's like you that...

https://connect.mayoclinic.org/comment/1040301/

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Mar 25, 2024

sorry, computer got hung up. the following is what i have: rheumatoid arthritis, psoriatic arthritis, psjogrens,...

https://connect.mayoclinic.org/comment/108590/

Discussion: Autoimmune diagnosing problem

Support Group: Autoimmune Diseases

Posted: Aug 2, 2017

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