Autoimmune Diseases Support Group

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Comments (402)

I also have multiple issues going on. I was diagnosed with inflammatory arthritis, with some joints...

https://connect.mayoclinic.org/comment/919890/

Discussion: Multiple Arthritis issues - Is this unusual?

Support Group: Autoimmune Diseases

Posted: Aug 27, 2023

So understandable. I felt so ill and kept a list of my symptoms (long and ever-changing)...

https://connect.mayoclinic.org/comment/1237436/

Discussion: Invisible illness how do you cope?

Support Group: Autoimmune Diseases

Posted: Feb 15 10:20am

I am so sorry you’re struggling with so much pain and disability. It’s amazing you are...

https://connect.mayoclinic.org/comment/1121989/

Discussion: Anyone else have PBC + hEDS? Can’t be just me…

Support Group: Autoimmune Diseases

Posted: Aug 12, 2024

Hi Paula, I was diagnosed with Tumid Lupus in April of 2016, two days before my...

https://connect.mayoclinic.org/comment/117609/

Discussion: Tumid Lupus

Support Group: Autoimmune Diseases

Posted: Jul 17, 2017

@jshdma. I've been to three dermatologist who use the generic statement regarding LP, "we don't know...

https://connect.mayoclinic.org/comment/948129/

Discussion: Oral lichen Planus: What home remedies or medications help you?

Support Group: Autoimmune Diseases

Posted: Oct 15, 2023

@shawntperryverizonnet Just by posting, you’ve joined! How long have you had RA? Is it pretty well...

https://connect.mayoclinic.org/comment/842255/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Apr 12, 2023

Hello @oregongirl, thanks for the private message. I thought I would tag you here in the...

https://connect.mayoclinic.org/comment/145326/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Feb 4, 2019

Several years ago I was diagnosed with an autoimmune disease when a crater opened up on...

https://connect.mayoclinic.org/comment/107470/

Discussion: Autoimmune Diseases and Fatigue

Support Group: Autoimmune Diseases

Posted: Jan 28, 2018

Sounds like you are doing great! Anyway, all I know is that they say the "gut"...

https://connect.mayoclinic.org/comment/137311/

Discussion: Undiagnosed auto immune disease, put on Leflunomide

Support Group: Autoimmune Diseases

Posted: May 17, 2017

I got the Shingles shots and still got the shingles. I got it in my right...

https://connect.mayoclinic.org/comment/1366734/

Discussion: I have shingles and am astounded at how painful it is. Anyone else?

Support Group: Autoimmune Diseases

Posted: Aug 8 10:53pm

Last week I was told by my orthopedist that the painful swelling in both of my...

https://connect.mayoclinic.org/comment/1084343/

Discussion: Looking for the best lifestyle changes to reduce symptoms

Support Group: Autoimmune Diseases

Posted: Jun 10, 2024

Hello @jip499 and welcome to Connect. You ask a good question. I found some information on...

https://connect.mayoclinic.org/comment/724180/

Discussion: Plaquenil eye problems

Support Group: Autoimmune Diseases

Posted: Jul 6, 2022

Thank you so much for the suggestions. I had thought about all the paperwork that will...

https://connect.mayoclinic.org/comment/669417/

Discussion: RA and sudden hand pain, couldn't hold my pen: Anyone?

Support Group: Autoimmune Diseases

Posted: Jan 9, 2022

Yes, again you are correct. I have been pished around. The kidney doctor refused to address...

https://connect.mayoclinic.org/comment/642366/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 5, 2021

God Bless You! I am just this week being treated for lupus. I am much older...

https://connect.mayoclinic.org/comment/859123/

Discussion: What might this be? polycythemia vera, PCOS, lupus, something else?

Support Group: Blood Cancers & Disorders

Posted: May 13, 2023

I was diagnosed with rheumatoid arthritis when I was 5 years old. I turned my ankle...

https://connect.mayoclinic.org/comment/807376/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Feb 7, 2023

I just found this link after joining the Autoimmune group. I am a 69-year-old woman with...

https://connect.mayoclinic.org/comment/768226/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Nov 1, 2022

There are several blood tests that can be helpful in addition to the EMG test. All...

https://connect.mayoclinic.org/comment/1046520/

Discussion: Has anyone really gotten over CIDP?

Support Group: Autoimmune Diseases

Posted: Apr 6, 2024

Hi, everyone. I haven't done the AIP diet per se, but I'm looking into what anti-inflammatory...

https://connect.mayoclinic.org/comment/1044591/

Discussion: AIP diet for autoimmune illnesses

Support Group: Autoimmune Diseases

Posted: Apr 3, 2024

Just joined this group. I was diagnosed in January 2022 with Sjogren's/Sicca after undergoing a Sialoendoscopy...

https://connect.mayoclinic.org/comment/1031944/

Discussion: Sjogrens patients, saliva issues, flares?

Support Group: Autoimmune Diseases

Posted: Mar 11, 2024

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