Autoimmune Diseases Support Group

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Comments (471)

Hello I am new to connect support groups and I’m glad I found this particular one...

https://connect.mayoclinic.org/comment/834626/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Mar 30, 2023

Hi, I can sympathize with you after coughing for months I was diagnosed with ILD (lung)...

https://connect.mayoclinic.org/comment/742873/

Discussion: Multiple autoimmune conditions and too many meds

Support Group: Autoimmune Diseases

Posted: Aug 28, 2022

Hello @naomisantiago06, I would like to add my welcome to Connect along with @boomerexpert and other...

https://connect.mayoclinic.org/comment/145530/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Nov 11, 2019

Dry eyes can cause blurry vision but several other autoimmune disorders can cause blurry vision caused...

https://connect.mayoclinic.org/comment/1177277/

Discussion: New to Autoimmune Diseases, concerned blurry vision

Support Group: Autoimmune Diseases

Posted: Nov 21, 2024

Interesting about Covid..I had the Omacron varient followed by “long Covid”. They really don’t know enough...

https://connect.mayoclinic.org/comment/1000551/

Discussion: Anyone out there with Autoimmune inner ear disease (AIED)?

Support Group: Autoimmune Diseases

Posted: Jan 20, 2024

I got both the Shingrix vaccine and the Moderna vaccine in the Spring of 2021 and...

https://connect.mayoclinic.org/comment/993591/

Discussion: Did anyone receive Glaxo Shingrix vaccine in June, July, August 2019?

Support Group: Autoimmune Diseases

Posted: Jan 8, 2024

What blood tests have you had? If your fingers turn blue it sounds like Raynaud's which...

https://connect.mayoclinic.org/comment/897715/

Discussion: Pending Sjogren's Diagnosis and Doctor Worries

Support Group: Autoimmune Diseases

Posted: Jul 17, 2023

11yr old daughter, after minor cold symptoms and trip to Caribbean, sudden back of knees pain,...

https://connect.mayoclinic.org/comment/851881/

Discussion: 11year old daughter, pain back of knees, now swollen ankles.

Support Group: Bones, Joints & Muscles

Posted: Apr 30, 2023

@georgeeliot, I'm 77 today :-) and also in the high risk category with an autoimmune disease...

https://connect.mayoclinic.org/comment/145587/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Apr 30, 2020

It's the SetPoint device. Research was done by the Feinstein Institute. As someone above said, it...

https://connect.mayoclinic.org/comment/1405068/

Discussion: Have you used the new vagus nerve stimulator approved for rheumatoid a

Support Group: Autoimmune Diseases

Posted: Sep 30, 2025

@lynniepenny I really relate when I read "feel like I have the flu a lot"!! Because...

https://connect.mayoclinic.org/comment/1301986/

Discussion: How do you cope with Mixed Connective Tissue Disease (MCTD)?

Support Group: Autoimmune Diseases

Posted: May 11, 2025

By the way, I did find a doctor who believed. Two visits later, he determined I...

https://connect.mayoclinic.org/comment/885451/

Discussion: ANA positive then negative then positive...

Support Group: Autoimmune Diseases

Posted: Jun 26, 2023

One treatment for rheumatoid arthritis is weekly shots of methotrexate. Which did help but I also...

https://connect.mayoclinic.org/comment/319588/

Discussion: Autoimmune something: Struck with extreme fatigue

Support Group: Autoimmune Diseases

Posted: Aug 19, 2020

Hi @sadie168, I add my welcome. You may also be interested in this discussion in the...

https://connect.mayoclinic.org/comment/254051/

Discussion: So many questions. Seeing Rheumatology and GI at Mayo JAX

Support Group: Autoimmune Diseases

Posted: Mar 8, 2019

Yup, you just have to keep thinking -- left foot, right foot, left foot, right foot...and...

https://connect.mayoclinic.org/comment/107543/

Discussion: Autoimmune Diseases and Fatigue

Support Group: Autoimmune Diseases

Posted: Mar 10, 2018

@cabrighten I, too have fatigue but nothing like yours. How have you managed this all these...

https://connect.mayoclinic.org/comment/902228/

Discussion: chronic fatigue

Support Group: Autoimmune Diseases

Posted: Jul 25, 2023

https://connect.mayoclinic.org/comment/1392056/

Discussion: Please help seronegative inflammatory arthritis

Support Group: Autoimmune Diseases

Posted: Sep 12, 2025

It is very possible that you have sero-negative Lupus or Rheumatoid Arthritis w/o RH factor (I...

https://connect.mayoclinic.org/comment/1189196/

Discussion: ANA Titer 1:1280 pattern homogeneous and speckled o/w negative work-up

Support Group: Autoimmune Diseases

Posted: Dec 12, 2024

sorry to say i have the same situation. perhaps there is not enough experimentation to help...

https://connect.mayoclinic.org/comment/140124/

Discussion: Psoriatic Arthritis: How do you manage PA and flares?

Support Group: Autoimmune Diseases

Posted: Jul 17, 2017

Hello. My mom is currently in the hospital, not Mayo; although we would love her to...

https://connect.mayoclinic.org/comment/929070/

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Sep 12, 2023

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