Autoimmune Diseases Support Group

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Comments (402)

In the UK a clearly out of range anti-CCP blood test result is an automatic referral...

https://connect.mayoclinic.org/comment/1362570/

Discussion: Rheumatoid arthritis.

Support Group: Autoimmune Diseases

Posted: Aug 3 3:13am

I had the exact same experience with Paxlovid! I have lupus, and had regular hip pain....

https://connect.mayoclinic.org/comment/1151326/

Discussion: Paxlovid and Autoimmune Disease

Support Group: Autoimmune Diseases

Posted: Oct 3, 2024

Hi. It depends on the severity of your lupus. Like someone mentioned, if it starts to...

https://connect.mayoclinic.org/comment/1022268/

Discussion: Living with Systemic Lupus: Can I live a normal life?

Support Group: Autoimmune Diseases

Posted: Feb 25, 2024

I know exactly what it is to live with Rheumatoid Arthritis. I have had it since...

https://connect.mayoclinic.org/comment/145638/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Aug 11, 2020

Disease modifying drugs like plaquenil can take months to provide any relief. As far as what...

https://connect.mayoclinic.org/comment/108488/

Discussion: Autoimmune diagnosing problem

Support Group: Autoimmune Diseases

Posted: Jul 20, 2016

Yes, I do have tinnitus. A low roaring - like the engine of an airplane. I...

https://connect.mayoclinic.org/comment/1067581/

Discussion: What can I expect with Antiphospholipid Syndrome (APS)?

Support Group: Autoimmune Diseases

Posted: May 14, 2024

Welcome @diamondletty. It just pulls the rug out from under your feet when a loved one...

https://connect.mayoclinic.org/comment/815200/

Discussion: Husband diagnosed with RA

Support Group: Autoimmune Diseases

Posted: Feb 21, 2023

I have this. From https://www.hss.edu/conditions_undifferentiated-connective-tissue-disease-overview.asp#what Definition: used to describe a condition in people who have symptoms...

https://connect.mayoclinic.org/comment/789144/

Discussion: Undifferentiated Connective Tissue Disease

Support Group: Autoimmune Diseases

Posted: Dec 26, 2022

I’m really sorry you’re suffering like this. I have osteoarthritis and rheumatoid arthritis, a knee and...

https://connect.mayoclinic.org/comment/675059/

Discussion: Autoimmune diagnosing problem

Support Group: Autoimmune Diseases

Posted: Jan 26, 2022

Have you and your care team found that periodic Vectra® panels (12 serum proteins) is useful...

https://connect.mayoclinic.org/comment/1331252/

Discussion: antibody testing laboratory

Support Group: Autoimmune Diseases

Posted: Jun 20 11:08am

Just my experience and my personal opinion. Many of us have trouble getting diagnosed, I think...

https://connect.mayoclinic.org/comment/1200697/

Discussion: Nighttime Dry Mouth

Support Group: Autoimmune Diseases

Posted: Dec 30, 2024

Help...need some suggestions for coping with an RA flair! So I have made significant changes in...

https://connect.mayoclinic.org/comment/864287/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: May 22, 2023

I was two days short of getting my Shingles shot. I had gotten the flu and...

https://connect.mayoclinic.org/comment/1360973/

Discussion: I have shingles and am astounded at how painful it is. Anyone else?

Support Group: Autoimmune Diseases

Posted: Jul 31 5:53pm

For many years, I struggled with the debilitating pain of rheumatoid arthritis. The stiffness in my...

https://connect.mayoclinic.org/comment/1305634/

Discussion: Statin Induced Rhabdomyolysis or Myositis Disorder

Support Group: Bones, Joints & Muscles

Posted: May 16 3:49pm

@regeana I echo @kariulrich advice on speaking with your doctor. You have many things going on...

https://connect.mayoclinic.org/comment/56451/

Discussion: MCTD (Mixed Connective Tissue Disease)

Support Group: Autoimmune Diseases

Posted: Mar 26, 2017

Hello, friends!! My name is Rachel Cherry. I was diagnosed with juvenile rheumatoid arthritis when I...

https://connect.mayoclinic.org/comment/1217917/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Jan 21 7:16am

I had severe wrist pain and initally my reg dr thought possible carpel tunnel and I...

https://connect.mayoclinic.org/comment/111278/

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Apr 10, 2017

Hi @kaprizzz, I also have an extremely high ANA with some type of titer. I really...

https://connect.mayoclinic.org/comment/934964/

Discussion: Positive ANA: What might be the cause?

Support Group: Autoimmune Diseases

Posted: Sep 23, 2023

BAYHORSE, Fibromyalgia does not show up in bloodwork. I have had it for 27 years. I...

https://connect.mayoclinic.org/comment/839018/

Discussion: Undifferentiated Connective Tissue Disease

Support Group: Autoimmune Diseases

Posted: Apr 7, 2023

Yea. There’s no cure whether one has your somewhat vague diagnosis or my rather specific one...

https://connect.mayoclinic.org/comment/979387/

Discussion: Worried about upcoming rheumatologist appointment

Support Group: Autoimmune Diseases

Posted: Dec 12, 2023

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