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firelady
@firelady

Posts: 2
Joined: Sep 02, 2012

Lichen planus

Posted by @firelady, Sep 2, 2012

I was diagnosed about two yrs ago with lichen planus an auto imune disease they say it is very rare and not contagious yet my younger brother has it also. I have the skin lichen planus as well as oral lichen planus which affects my gums, cheeks, and tongue. It is very , very painful. I had a very large back surgery in April and I got lichen planus sores on my back as a result of the trauma from surgery my incision that is twenty inches long healed but my sores from lichen planus are still open. I don’t know how to get them to heal and right now I have just developed an outbreak in my mouth. The pain is so deep in the nerves that I feel like my teeth are going to explode and I can feel my pulse under my teeth. I can’t explain the pain and I am begging for someone to tell me if they found anything that helps with the pain. Also I never heard of lichen planus , what can I expect from this disease? How often will I have outbreaks? will it ever go away? Should I have my teeth pulled out or will dentures make it even worse? Not too many doctors seem to know much if anything about this auto imune disease.

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mouser
@mouser

Posts: 55
Joined: Sep 09, 2012
Posted by @mouser, Sep 10, 2012

My mom has it, and yes autoimmune diseases can be hereditary. My mom has oral lichens planus. She uses “Magic Mouthwash” which is prescribed and made special for her. It has hydrocortisone for Inflammation, lidocaine for pain (numbs) and something else in it. She uses only natural tooth pastes- regular ones are too harsh. Tom’s of Maine is a good one, otherwise she is currently using a Biotene toothpaste I think. She gets the absolute softest toothbrushes she can find. Uses reach gentle care dental floss. And has found a dentist that knows what it is and knows how painful it is and to be careful. She has to go in every 4 months instead of 6 for cleanings because her gums cannot handle any plaque buildup.
Bottom line- when she is stressed her lichens planus is terrible. She has learned to manage her stress to keep it to a minimum. It takes a long time for her sores to heal.
She also has a dermatologist she sees that knows how to treat it.

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mouser
@mouser

Posts: 55
Joined: Sep 09, 2012
Posted by @mouser, Sep 10, 2012

Oh,
she avoids any mouthwashes- especially those with alcohol. And doesn’t eat hard crackers or chips that will irritate her mouth


firelady
@firelady

Posts: 2
Joined: Sep 02, 2012
Posted by @firelady, Sep 10, 2012

Thanks mouser I am using the magic mouthwash , it does help a little. Be kind to your mom, she is in a lot of pain, a lot more than she can probably explain to you. This disease is horrible.


mouser
@mouser

Posts: 55
Joined: Sep 09, 2012
Posted by @mouser, Sep 11, 2012

Yes, thanks, I will. Best of luck to you

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