Autoimmune Diseases Support Group

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Comments (464)

I’ve read that elderberry, as with other herbal immunity boosters, can interact with immunosuppressive medications. If...

https://connect.mayoclinic.org/comment/633801/

Discussion: No black Elderberry for autoimmune condition???

Support Group: Autoimmune Diseases

Posted: Sep 8, 2021

I was put on it as I have Rheumatoid Arthritis and Fibromyalgia but I also take...

https://connect.mayoclinic.org/comment/782489/

Discussion: Anyone have experience with Low Dose Naltrexone instead of prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 8, 2022

Hi @lisaangela I wanted to join @lioness and @johnbishop in welcoming you to Connect. You may...

https://connect.mayoclinic.org/comment/145402/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: May 1, 2019

I have OLP also. I also have LP on my skin and I unfortunately have Esophageal...

https://connect.mayoclinic.org/comment/1405047/

Discussion: Oral liken planus

Support Group: Autoimmune Diseases

Posted: Sep 30, 2025

Hi @lapiii, You may notice that I moved your discussion to this existing conversation about rheumatoid...

https://connect.mayoclinic.org/comment/145323/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Nov 11, 2018

I was told by my Rheumatologist that Sjogrens can be hereditary. ??? From what I’ve been...

https://connect.mayoclinic.org/comment/1048649/

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Apr 10, 2024

He gave me a print out of four different medications. I kinda blew up. Plus Dr....

https://connect.mayoclinic.org/comment/1047557/

Discussion: Does anyone have seronegative Sjogren's disease?

Support Group: Autoimmune Diseases

Posted: Apr 8, 2024

Hello, I also have this disease. Mine is secondary due to my Rheumatoid Arthritis. I found...

https://connect.mayoclinic.org/comment/1237049/

Discussion: Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

Support Group: Autoimmune Diseases

Posted: Feb 14, 2025

Hello Marj @mtrapp987, Welcome to Connect. Thank you for sharing your experience with what helps you...

https://connect.mayoclinic.org/comment/308771/

Discussion: Undifferentiated Connective Tissue Disease turning into Lupus?

Support Group: Autoimmune Diseases

Posted: Jul 13, 2020

The changes in hands and fingers described sound like those the occur with Mixed Connective Tissue...

https://connect.mayoclinic.org/comment/1514023/

Discussion: Is it Raynaud's or something else?

Support Group: Autoimmune Diseases

Posted: Feb 25 5:12am

I am like you. I have had sero negative rheumatoid arthritis for 30 years. And I...

https://connect.mayoclinic.org/comment/1505243/

Discussion: Multiple Arthritis issues - Is this unusual?

Support Group: Autoimmune Diseases

Posted: Feb 13 9:32pm

Does anyone take kineret? My husband has pseudo gout and pseudo rheumatoid arthritis. All other meds...

https://connect.mayoclinic.org/comment/1184592/

Discussion: Anyone elso had RA in their family (Genetic Rheumatoid Arthritis)?

Support Group: Autoimmune Diseases

Posted: Dec 4, 2024

@ln888 isn't the positive RF significant? Along with high sed rate and CRP? Mayo has this...

https://connect.mayoclinic.org/comment/1175242/

Discussion: New to Autoimmune Diseases, concerned blurry vision

Support Group: Autoimmune Diseases

Posted: Nov 18, 2024

Hydroxychloroquine doesn't require labs but I hope you have been told all about the annual eye...

https://connect.mayoclinic.org/comment/1512940/

Discussion: Hydroxychloroquine vs sulfasalazine vs methotrexate experiences?

Support Group: Autoimmune Diseases

Posted: Feb 23 2:51pm

My rheumatologist is calling it undifferentiated inflammatory arthritis at this point but thinks it could be...

https://connect.mayoclinic.org/comment/1116274/

Discussion: Methotrexate and Hydroxychloroquine

Support Group: Autoimmune Diseases

Posted: Aug 2, 2024

Cellcept worked wonders for ELP, and my case was severe. My esophagus shrunk to the side...

https://connect.mayoclinic.org/comment/1101908/

Discussion: Lichen planus

Support Group: Autoimmune Diseases

Posted: Jul 8, 2024

Hi @smallisland, I notice that you posted elsewhere about your daughter having repeat infections You posted...

https://connect.mayoclinic.org/comment/1012140/

Discussion: Can inflammatory arthritis cause TFCC tear?

Support Group: Autoimmune Diseases

Posted: Feb 8, 2024

I am deaf in my right ear from minear’s Desease. Last November i lost hearing in...

https://connect.mayoclinic.org/comment/1031946/

Discussion: Anyone out there with Autoimmune inner ear disease (AIED)?

Support Group: Autoimmune Diseases

Posted: Mar 11, 2024

Hi @maggie1960, Here's what Mayo Clinic has to say about the Rheumatoid factor test. " A...

https://connect.mayoclinic.org/comment/746932/

Discussion: What is considered a high level of R Factor in blood test?

Support Group: Autoimmune Diseases

Posted: Sep 8, 2022

I started on LDN in August this year. I'm having some very good results with rheumatoid...

https://connect.mayoclinic.org/comment/1422222/

Discussion: Success with low dose naltrexone for Autoimmune disorders

Support Group: Autoimmune Diseases

Posted: Oct 24, 2025