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My experience with zonisamide for seizures (a sulfa drug)

Posted by lsittll @lsittll, Apr 12, 2020

I have uncontrolled seizures for 53 years. I have taken almost every medication possible. I almost died from a rare side effect of a newer drug. My doctor is very understanding about this. She has added zonisamide to the Lamcital and Depakote I take. It has done miracles! What once was 6 or 8 seizures monthly is now 1 a month. Zonisamide (a sulfa drug) for seizures?

Interested in more discussions like this? Go to the Epilepsy & Seizures group.

lsittll | @lsittll | May 23 5:56pm
In reply to @laneyh "I take Zonegran and Depekote and after 42years I’m seizure free for 10 now! Unfortunately menopause..." + (show)
@laneyh

I take Zonegran and Depekote and after 42years I’m seizure free for 10 now! Unfortunately menopause has Depekote levels all over the place, keeping fingers crossed!

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Hello @laneyh
Great to know the Zonegran has been so GREAT for you.
I just passed my one year of being seizure-free. No seizures since I've taken it.
I' hope it remains that way until eternity.

Laurie

REPLY
1 reply
lsittll | @lsittll | Jun 25 1:28pm
In reply to @colleenyoung "I'm tagging fellow members @lady35 @dhramsey @lmcquade and @searching71, who will be interested in your experience..." + (show)
@colleenyoung

I'm tagging fellow members @lady35 @dhramsey @lmcquade and @searching71, who will be interested in your experience with zonisamide (Zonegran),

@lsittll, how long have you been taking the combination of Lamcital, Depakote and zonisamide? Any side effects?

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Hello @ colleen young

I have been on the combination of Lamotrigine, Depakote and Zonisamide for about one and a half years now. There have been no side effects. The only thing that has been seen is miraculous results.

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Leonard | @jakedduck1 | Jun 25 2:08pm
In reply to @lsittll "Hello @laneyh Great to know the Zonegran has been so GREAT for you. I just passed..." + (show)
@lsittll

Hello @laneyh
Great to know the Zonegran has been so GREAT for you.
I just passed my one year of being seizure-free. No seizures since I've taken it.
I' hope it remains that way until eternity.

Laurie

Jump to this post

@Isittll
There was a podcast a while back and one thing they said was it's not so much the combination of drugs but the last one added that usually helps decrease seizures.
definitely some truth to that statement because I know a man in Africa who is on multiple convulsing and I suggested he talk to his doctor about phenobarbital which he did. The doctor stopped his other drugs and put him on phenobarbital only and he hasn’t had a seizure since.
I believe that the Mayoclinic podcasts are with watching. I don't have a link to the podcast I referred to earlier.
🎉Congrats🎉!!!
Jake

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