Transplant anti-rejection medications. What's your advice?

I"m a liver transplant patient 15 years out. 3 years ago my transplant doctors in NY said I could try no anti rejection meds and to this day I have not rejected and no longer have side effects of meds. Slowly weaned down. I am lucky because I was a good match." I don't recommend trying this without your Drs. approval" . The liver is the largest organ in the body and has the best chance of not rejecting after at least 10 yrs on immunosuppressive drugs!

Hi. Jackie here. My liver transplant was 10/20/20
Went thru the mill with medication.i too dropped tacrolimus I am on sirolimus 3 mg a day, just in morning my level is good I had to watch my creatine levels
But as today now I have to worry about my GFR numbers for the kidneys
I need to see a kidney Dr my last number was 43.....anyone else??? What the f....now I have to do research. I am not diabetic and b/p is under control it is ok.when I came home from my surgery I was in hospital 2 months my hair also acted up but I started taking biotin and it helped. I don't look like Farrah Faycett but it is ok not bad ..well any info someone can add always appreciate. Kisses to all

The only problem I have had with my liver transplant is my kidneys. They are still hanging on so hoping for the best. I am 38 years post transplant.

Wow 38 years!!! Amazing.
I was getting g tested with CT N MRI every 3-4 months. In October I will be 5 years since my transplant..so I now have to get tested 6 months then 1 year. .I am going to a kidney dr. Keep looking at my GFR and creatinine levels...oh boy as Rosanna Danna use to say ",it's always something!!!!!.feel good. Just don't want to run out of steam!!!! Still o. My sirolimus pills two a day ..
Nx thing taking with no meds at all . Is prayers

I still take .5 mg of Tacrolimus 2x a day. Also 5mg of prednisone and 500mg of cellcept 2x a day. I have never been able to go off of all my medications. Hoping for the best for you.

Kisses...kisses...to u. It shows what a strong person u r!!!congratulations for that. We all know the hospitals we r affiliated with saved our lives. But for sure never told us the bumpy road we will go down later. Accept the good with the bad .g I d bless us all. We r a group that has been thru a lot
And we r still standing....we r amazing.....

I had a bleed 2 years before my transplant. That is why I had to have the transplant when I did. I was 35 years old. When I was going through all this stuff my only prayer was that I could live long enough so my boys could graduate from high school. Now I have 4 great grandchildren. Life can surprise you.

@rachel5239 - I want to welcome you to Connect! Wow!!! 38 years...can you hear me cheering? I am going to celebrate 16 years next month with a liver and kidney and people like you are an inspiration for me.
I am in awe of you being number 90 and 98! I don't know what number I was, but it is surely much much higher than yours. I also got my transplant at Mayo in Rochester and I'll bet that it was much different when you were there.
Do you live near Mayo, or do you go back for any medical care? Does Mayo still follow your liver transplant health?

Yes I still go to Mayo. I live in southeastern Minnesota so I am about 75 miles away. I am lucky I am so close. I love all my doctors at Mayo.

I also had my transplant almost 38 years ago. I was number 90 and 98. Still doing really well. I think my mayo doctors are even a little shocked.