Transplant anti-rejection medications. What's your advice?

Thank you for sharing and congratulations on your 8 years! ❤️
Have you participated in the Breast Cancer Support Group?

No transplant. I had breast cancer and lost my hair from chemo and the pill
i take for 8 years causes hair to thin.

Hi, @splendrous. I had thinning hair during my time with liver disease and transplant. I can understand how you must have felt when you found a product that helped you!
I don’t know anything about the pill that you have suggested, but I want to remind everyone that a transplant recipient should always consult with the transplant provider before introducing any vitamin, supplement, medication because it could alter the strength of immunosuppressant medications.

@splendrous- Are you a transplant recipient? What organ? How long ago?

Something you can consider. Minoxidil 2..5mg is a pill I take daily for thinning hair which is both genetic and a result of Letrozole and other cancer treatments. It takes 6 months to a year for it to make a difference. Same ingredient that is in Rogaine. It has worked for me and no side effects.

@ronnorth, Iwant to add my Welcome to Connect and to say that I understand your concern about your current situation. I am so sorry to learn of your situation and the hospitalization, However, I feel confident that by being in the hospital, you are getting the best immediate care and treatment to protect your liver.

I had my transplant in 2009, so this touches me deeply and it is something that rings an alarm in my head whenever I hear the "R" word (rejection).
I have not had any rejection episodes, so I have located some Support Discussions that you might find interesting and where some other members have shared their experiences. I invite you to jump in anywhere with a question or comment.

- Transplant Rejection news
https://connect.mayoclinic.org/discussion/rejection-news/
- Liver Rejection after 15 years
https://connect.mayoclinic.org/discussion/liver-rejection-after-15-years/
- Prayer Request (this is from a patient who was actually going thru rejection at the time of the post)
https://connect.mayoclinic.org/discussion/prayer-request/
@ronnorth, Are you still having labs 2x week? What has your transplant team had to say about all of this? Do they know what is causing this? How do you feel?
Ron, Since using all upper case letters indicate anger, would you please check to be sure that you have turned off the Capital lock on your keyboard. Thanks.

Thank you. I had a kidney transplant 7/21/2020 at Jacksonville FL Mayo

@ronnorth welcome to Mayo Clinic Connect. Sorry that you experienced a rejection especially at the 1 year anniversary mark. It is good that everything turned out fine. I’m sorry that you’ve been having some other problems the past year and a half. I had a pancreas transplant and I’m not that familiar with specific liver transplant issues. Hopefully other members will chime in with ideas for you. You are not alone.

@skjones welcome to Mayo Clinic Connect. What organ did you have transplanted?

JUST FOUND THIS GROUP.
ON 04/09/2009, I RECEIVED A LIVER TRANSPLANT. ON THE ONE YEAR ANNIVERSARY, REJECTION OCCURRED. I WAS BOMBARDED WITH PREDNISONE. PILLS CONTINUED FOR AN EXTENDED PERIOD OF TIME. EVERYTHING TURNED OUT FINE. A YEAR AND A HALF AGO, MY ALK PHOSPHATASE BEGAN RUNNING IN THE 200s. IN FEBRUARY OF 2024, I GOT A TAVAR HEART VALVE INSTALLED. THIS INCLUDED USING A BLOOD THINNER. IN JUNE, PROBLEMS WITH MY LIVER SHOWED UP. HOSPITALIZED JUNE 30TH, RELEASED JULY 4TH, PUT ON 40MG PREDNISONE, INCREASED TACROLIMOUS 6MG. THROUGH THE MONTH OF JULY, BLOOD TESTS TWICE A WEEK. SO FAR WHITE BLOOD COUNTS UP, ENZYMES UP. ANY IDEAS? DON'T WANT TO LOSE THE LIVER

I just found this group. I am learning so many new things. Thank you everyone for sharing your thoughts and comments. Bless you all and God bless all of us who get to work with wonderful people at Mayo’s hospitals and their wonderful staffs. I hope you have a wonderful day!