Transplant anti-rejection medications. What's your advice?

Hi. I see ur post is older, are u doing ok with meds? I started on tacrolimus and have been as high as level was 13. I felt terrible. It was raised and lowered according to my numbers. Yes. Same side effects. I take imitrex for migraines, Zofran for nausea, med for vertigo,etc. Unfortunately we cannot be non compliant with our meds. I do have meds for my side effects. Hair loss is just about driving me crazy. I am starting a hair clinic at my dermatologist. Feel free to ask me anything. Good luck.

@janni1, Overnight surgery... that is interesting (and probably confusing). So, which date is in your transplant records? I never thought about overnight procedure. Mine was complete before midnight. Janni1, I like to suggest that patients honor their transplant anniversary date and I do hope that you will be feeling well enough to take a moment to relax and enjoy a peaceful moment.
I had a simultaneous liver and kidney transplant 1n 2009 at mayo Rochester, and i was very 'sick' and on dialysis before my transplant. I honestly don't know which symptoms were related to liver failure, and which were related to acute kidney failure. I hope that yoy feel better than I did.❤️
How are you feeling as you wait for your kidney transplant? Are you needing dialysis?

Hi how much do u take of your myfortic Prograf. after 11 years😊

Hi u had a LTP and now need kidney is that what I am understanding?

I am 2yrs post liver transplant on 13/14th January...overnight surgery.
Am now waiting for a kidney transplant.

@myfablife Im on Prograf - and have been since my kidney transplant - and had been on Imuran until this switch to Myfortic. At the time that they changed me to Myfortic, I also doubled my dose of amalodipine for blood pressure. Turns out the amalodipine was causing the swelling, etc. I have gone back to my old dosage and am hoping this will get me back to normal - whatever that is!

Did you have a kidney or LTP? Also interested after 11 yrs. How much meds do u have to take. I am on celcept Prograf.

I had been on Imuran since my transplant - 11 years ago - but switched to Myfortic 7 weeks ago. I also take Prograf. The reason for the switch was I was having so many skin cancers and Mohs procedures every year, get worse as the years went on. I think I’m having weird side effects: I’m feeling very spacey, having trouble finding words; my feet and ankles are swelling by mid afternoon; overall lethargy. Has anyone else experienced anything like this? I have sent a message to my team. Thanks and happy holidays!

I take mycophenolic acid 360mg twice daily and tacrolimus 1.5mg twice a day. I used to take 5mg of prednisone immediately post transplant, but I was, like you, developing diabetes as well as the start of a cataract in the right eye. Even though the dose of prednisone was small, they decided to take me off of that and that’s when I began the mycophenolic acid instead. I had a liver and kidney transplant and I am almost 9 years post transplant.

A frank discussion with your nephrologist and transplant team should lead to a solution for you. I hope all the best, and hang in there.

God is so good. I am almost 2yrs LT
Again I am so happy for u.😊🦋