Transplant anti-rejection medications. What's your advice?

A creatinine of 1.0 is excellent! Mine goes up and down between 1.4 and 1.7. My latest BUN is 31. But my doctor is fine with that. My problem is I don’t always drink enough water. They want 8-10 cups daily. My creatinine was never under 2.0 with my first transplant in 1994. And it lasted almost 25 years. So you never know. Everyone reacts differently to the transplant and the drugs.

Good morning @nimalw,

I’d like to invite you to our Transplant Culinary Arts Webinar Series -
https://connect.mayoclinic.org/discussion/transplant-culinary-arts-zoom-sessions/?pg=1#comment-635131
We discuss diet, health concerns, and cooking. Our next event is January 6. The announcement is posted in the discussion.

Also, here’s a blog I wrote that you might find informative on tips for transplant diet and nutrition - https://connect.mayoclinic.org/blog/transplant/newsfeed-post/whats-on-my-plate-a-transplant-recipient-perspective/

There are other blogs and discussions on nutrition and diet for transplant recipients. You can do a search and you’ll find a list.

Athena

Hi . 25 yrs with your 1st Transplant. That's amazing. Any advice on deit ?

A creatinine of 1.0 is excellent! Mine goes up and down between 1.4 and 1.7. My latest BUN is 31. But my doctor is fine with that. My problem is I don’t always drink enough water. They want 8-10 cups daily. My creatinine was never under 2.0 with my first transplant in 1994. And it lasted almost 25 years. So you never know. Everyone reacts differently to the transplant and the drugs.

Hi . I take cellcept 2mg . And prednisone 10mg and tacrolimus 4mg daily . Prednisone is a bother I get tremors from it and indian doctor said eat a Banana daily . Seems to help my potassium is 4.1 so I love the Banana but I have been always fit I was on the treadmill day before I went into Hospital with a creatnine of 8 .
But doctor's are extra cautious here they stick to the taper schedule as they dont want rejection episodes

@ninalw, Glad to hear that your nephrologist is looking into this. It sounds like you are getting good care. I understand, now why you are concerned about the tacrolimus dosages. I have my hopes up that you will have some answers on your next visit.
It sounds like you are doing very well after the transplant. I am amazed at you playing golf already! As for me, I had a lot of reconditioning to do because I was dependent on a wheelchair and walker prior to my transplant. I was able to go to my son's wedding at 4 months post transplant, and to go on some hiking trails at 9 months.

Is tacrolimus your only immunosuppressive medication?

A creatinine of 1.0 is excellent! Mine goes up and down between 1.4 and 1.7. My latest BUN is 31. But my doctor is fine with that. My problem is I don’t always drink enough water. They want 8-10 cups daily. My creatinine was never under 2.0 with my first transplant in 1994. And it lasted almost 25 years. So you never know. Everyone reacts differently to the transplant and the drugs.

Dear I am in Asia . Here we go direct to Nephrologist weekly visits now it's by weekly . I had a mild elevated creatnine in my last test scan was done kidney was fine but bladder retention was there so the doctor thinks it could be the retention that's causing the creatnine spike. He put me on urimax feel much better after taking it . Next test this Saturday. Hope it has settled down . I did pre emotive transplant never did dyalisis. I feel the drug dosage is high . I feel really good just finished golf. Hate creatnine spikes !!! I geuss who likes it !

Thank you so much for this very comforting information @tjdog ❤
Meeting you has made me very happy and very hopeful that I may get 20 years from my new kidney!! I just turned 61, so 25 years would super wonderful.
Question- Did you have a hemodialysis fistula in your arm before your transplant? My fistula is growing too large and I am planning on having surgery to shut it down. Do you have any experience or know anyone that had that surgery?

A creatinine of 1.0 is excellent! Mine goes up and down between 1.4 and 1.7. My latest BUN is 31. But my doctor is fine with that. My problem is I don’t always drink enough water. They want 8-10 cups daily. My creatinine was never under 2.0 with my first transplant in 1994. And it lasted almost 25 years. So you never know. Everyone reacts differently to the transplant and the drugs.