Yesterday’s National Jewish Health NTM Pt Conference

Posted by becleartoday @becleartoday, Apr 28 5:29am

Yesterday's National Jewish Health's NTM conference offered invaluable insights. While bronchiectasis was discussed, the spotlight remained firmly on NTM and MAC.

Regardless of whether one is dealing solely with BE or battling it alongside infection, speakers emphasized the crucial role of maintaining a healthy weight and engaging in regular airway clearance. Notably, those not meeting weight criteria may be ineligible for certain clinical trials or surgical interventions.

Michelle MacDonald shared a wealth of strategies for weight management, drawing from her extensive experience showcased in numerous webinars for NTM Info & Research, accessible on their YouTube channel.

The most exhilarating aspect was the array of research initiatives on the horizon for both BE and NTM disease. Dr. Chuck Daley, whom I affectionately call Dr. NTM, typically exudes calm, yet his enthusiasm was palpable as he discussed forthcoming research endeavors.

While I'm unable to share specific research without Mayo's review board approval, individuals can explore ongoing studies by visiting clinicaltrials.gov and searching for relevant trials.

Let's persevere with our self-care routines, buoyed by the promise of upcoming advancements. New treatments are indeed within reach!

Once the recording is available, I'll promptly share it. Typically, editing takes approximately a month.

Happy Sunday,
Linda Esposito

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

Thanks Linda for sharing the conference information when available. I look forward to seeing the latest studies. Faye

REPLY

Thank you for keeping us up to date on anything happening related to our disease. I was diagnosed in Sept. of 23 but am still doing watch and wait. I see my Dr. on the 15th of this month and want to discuss starting the airway clearance etc. even though I don't have terrible symptoms yet. So happy I found this site and found people like you and Sue so willing to share as much information as possible.

REPLY

There are many knowledgeable people on this site. We are a community. We are all here to help you!
Best,
Linda Esposito

REPLY
Please sign in or register to post a reply.