Y-90 liver cancer treatment

Posted by mudshark @mudshark, Dec 8, 2019

I recently was treated with y-90 on a tumor in my liver. I am interested in knowing of others that have had experiences good, or bad, and of long term results. I have had prior resection of the liver to remove a tumor but a new tumor surfaced in a different section. I am hoping the y-90 will prove to be a more permanent solution. Thanks

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My husband had Y90 in September and what followed was pain in abdomen, weight loss, no appetite, so we went in for a celiac plexus block. He was off chemo since June 26, and the oncologist and nurse oractioner did not address his stomach pain which started in July, take Pepcid, gasX etc. Finally family doctor said stool sample diagnosis hpylori. Antibiotics and admitted for 5 days…that issue resolved. Now on Tuesday Y90 on right lobe. Oncologist put him on Lonsurf for five days on off two, five on off till October 29. Anyone had experience with lonsurf and Y90. Somehow I do not like the idea of nurse practioners dealing with patients.
What are your thoughts. Need some good sound advice. I am on top of everything they say and do, and I constantly keep them informed…which they do not appreciate.

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@yannis

My spouse is having his second y90 on Tuesday October 26 and oncologist has not ordered the aft tumor blood work, why? Am curious all we have done is cea, cbc, camp and inr for the procedure. What other labs should be done? Please write

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I just looked back and my Interventional Radiologist ordered hepatic function panel, CBC, INR, and basic metabolic panel. Good luck on the Y90 shoot. My tumors (had 2 shot) are dying after the second shoot.

Let us know how it goes.

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@digibson

I just looked back and my Interventional Radiologist ordered hepatic function panel, CBC, INR, and basic metabolic panel. Good luck on the Y90 shoot. My tumors (had 2 shot) are dying after the second shoot.

Let us know how it goes.

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Thanks for the encouragement our IR doctor is the finest and most caring at Hopkins we have seen and his department is top notch and well run. My concern is that he has lost a lot of weight, and am giving him whatever he wants to eat with protein and calories.
Tuesday is the second right lobe. How long before you saw results in your Y90 I am top of his labs, cea, cbc,, cmp, Inr , and will ask oncology about AFB lab to be done and if shows results.
I just read about a study done at Hunter college about the impact of olive oil high quality in cancer . Does anyone have any thoughts about this. Of course we use it in food preparation natural food

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If you have a top doc at Hopkins you’re probably in great hands. I have problems with weight, i just don’t like to eat. I supplement with Ensure Plus that helps a lot. Each bottle has 350 calories and other stuff that’s healthy, i drink a couple a day.

In my case they shoot then do a CT in a month. If that looks good it moves to every three months. I’m up again for CT on the 24th of November but just had labs and my IFP Tumor Markers were in the normal range.

What kind of liver cancer does he have? I had three cancerous carcinomas. Does he have them or cancer in his liver?

Have not heard about olive oil but its good for everything. I have read studies about coffee, supposed to be really good for liver cancer. I also drink and ounce and a half of lemon juice mixed with a little hot water and honey before i eat of drink anything else. It’s a powerful liver cleanser.

Good luck tomorrow! Let us know how it goes. Diane

REPLY
@digibson

If you have a top doc at Hopkins you’re probably in great hands. I have problems with weight, i just don’t like to eat. I supplement with Ensure Plus that helps a lot. Each bottle has 350 calories and other stuff that’s healthy, i drink a couple a day.

In my case they shoot then do a CT in a month. If that looks good it moves to every three months. I’m up again for CT on the 24th of November but just had labs and my IFP Tumor Markers were in the normal range.

What kind of liver cancer does he have? I had three cancerous carcinomas. Does he have them or cancer in his liver?

Have not heard about olive oil but its good for everything. I have read studies about coffee, supposed to be really good for liver cancer. I also drink and ounce and a half of lemon juice mixed with a little hot water and honey before i eat of drink anything else. It’s a powerful liver cleanser.

Good luck tomorrow! Let us know how it goes. Diane

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Just a little note to let know a prayer 🙏 just went up for you guys tonight that everything goes swimmingly well
tomorrow.

REPLY
@digibson

If you have a top doc at Hopkins you’re probably in great hands. I have problems with weight, i just don’t like to eat. I supplement with Ensure Plus that helps a lot. Each bottle has 350 calories and other stuff that’s healthy, i drink a couple a day.

In my case they shoot then do a CT in a month. If that looks good it moves to every three months. I’m up again for CT on the 24th of November but just had labs and my IFP Tumor Markers were in the normal range.

What kind of liver cancer does he have? I had three cancerous carcinomas. Does he have them or cancer in his liver?

Have not heard about olive oil but its good for everything. I have read studies about coffee, supposed to be really good for liver cancer. I also drink and ounce and a half of lemon juice mixed with a little hot water and honey before i eat of drink anything else. It’s a powerful liver cleanser.

Good luck tomorrow! Let us know how it goes. Diane

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He has colon cancer with liver metastasis removed right crack mass jan2019 and started chemo feb 2019 last chemo June 26 then oncologist stopped and later in sept recommended y90 I believe oncologist is at fault. Our IR doctor and team at Hopkins are the best. Did left lobe and today right lobe
Oncologist yesterday was basically saying to us just enjoy your life the remaining time
I was pissed off at her approach
Her ratings may not be good

REPLY
@digibson

Just a little note to let know a prayer 🙏 just went up for you guys tonight that everything goes swimmingly well
tomorrow.

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I saw prayers everyday for healing and guiding hands of the doctors. Prayers for everyone. Thanks for your thinking of us and your prayers
With all our love

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Yesterday my husband got his second Y 90 therapy. He did well and the IR doctor a gem of a doctor said he did very well.
However on Monday we had an oncologist meeting and she basically said we have limited therapies for you. Where do you want to live happily in your home country or her.
I was so upset that she took two things away and am still upset.HOPE can never be taken away! And this was the day before his Y90 therapy. He is also on Lonsurf.
I am so upset with her I explained to the nurses of IR this and they said you never take HOPE away and he is doing the treatment Y90 and lonsurf. Time to have a long chat with oncology team. Too many gaffs made.
Please help someone with your thoughts

REPLY
@yannis

Yesterday my husband got his second Y 90 therapy. He did well and the IR doctor a gem of a doctor said he did very well.
However on Monday we had an oncologist meeting and she basically said we have limited therapies for you. Where do you want to live happily in your home country or her.
I was so upset that she took two things away and am still upset.HOPE can never be taken away! And this was the day before his Y90 therapy. He is also on Lonsurf.
I am so upset with her I explained to the nurses of IR this and they said you never take HOPE away and he is doing the treatment Y90 and lonsurf. Time to have a long chat with oncology team. Too many gaffs made.
Please help someone with your thoughts

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Gosh I hate that for you. Should you get another opinion from a different oncologist? She says they have limited therapies for you, ok, what are they? Is there anyone else on the oncology team you trust that you can talk to? Sure doesn't seem hopeless to me if they went to the extent of doing the Y90 treatment.

Let me say this strongly. Where there is life there is always hope, miracles happen everyday. He's made it through this for a long time so there's no reason to give up now. Being a strong Christian I always take faith over fear and don't let a person in a white coat decide who lives or dies. That doesn't mean you have to be Christian to get help from above. We are all God's children.

How is he handling the side effects from this last Y90 shoot?

Keep posting!

Diane

REPLY
@digibson

Gosh I hate that for you. Should you get another opinion from a different oncologist? She says they have limited therapies for you, ok, what are they? Is there anyone else on the oncology team you trust that you can talk to? Sure doesn't seem hopeless to me if they went to the extent of doing the Y90 treatment.

Let me say this strongly. Where there is life there is always hope, miracles happen everyday. He's made it through this for a long time so there's no reason to give up now. Being a strong Christian I always take faith over fear and don't let a person in a white coat decide who lives or dies. That doesn't mean you have to be Christian to get help from above. We are all God's children.

How is he handling the side effects from this last Y90 shoot?

Keep posting!

Diane

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Diane thanks for your response. I agree with you and first and foremost my daily prayers do not stop yes I will look for another oncologist elsewhere or another team there
The Y90 yesterdsy went very well. Recovery good and kept him lying flat for four hours to make sure no bleeding. IR doctor a sweetheart came before and after to see us. We stayed close to hospital overnight in case of need and came home today
So far so good tired perky no nausea eating lightly resting well so hope tonight is good. Tomorrow labs and Friday start cycle 2 of lonsurf.
If the white labs do this again I will be upfront that they do not have crystal ball.
HOPE and treatments we still have
Btw look up hunter college and research on olive oil for colorectal cancer and what they found. Beginnings of hope something important.
Keep in touch
Yiannis

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I looked up an article at hopkinsmedicine.org entitled Treating Colon Cancer That Has Spread to the Liver; A Team Approach that makes it sound like you have lots of options! Has he thought about having his colon removed? Pretty serious step but loads better than what the oncologist was saying. Is he doing ok with Y90 side effects today.

REPLY
@digibson

I looked up an article at hopkinsmedicine.org entitled Treating Colon Cancer That Has Spread to the Liver; A Team Approach that makes it sound like you have lots of options! Has he thought about having his colon removed? Pretty serious step but loads better than what the oncologist was saying. Is he doing ok with Y90 side effects today.

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REPLY
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