Y-90 liver cancer treatment

Posted by mudshark @mudshark, Dec 8, 2019

I recently was treated with y-90 on a tumor in my liver. I am interested in knowing of others that have had experiences good, or bad, and of long term results. I have had prior resection of the liver to remove a tumor but a new tumor surfaced in a different section. I am hoping the y-90 will prove to be a more permanent solution. Thanks

@hopeful33250

Hello @buddbugg

I appreciate you sharing your remarkable story about radioembolization. Could you share a bit more about the type of doctor who recommended this procedure? Was it your oncologist?

If you are comfortable sharing more, could you talk about what the procedure was like? Were you given anesthesia, was it similar to an MRI? Were there any side effects to the treatment, like nausea, etc.?

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Hi Teresa, I. Have liver damage from hep c so my Hepatologist recommended me to the interventional radiologist at the same hospital. I’m glad to say the procedure was a breeze. Light anesthesia because they cant cant put you under completely as you have to hold your breath etc while they’re taking X-rays but enough you’re not worried about the procedure. There was no pain during or after the procedure a little fatigue but I went to work the next day. I thank God for this procedure, before it the options just weren’t all that good. This procedure just continues to become more refined with all the medical research. I had it in July and a CT a month later that showed the little devils had shrunk and another in November that showed them even smaller.

It’s not similar to an MRI because they actually go into your groin with a needle to shoot the. Beads, They’ll do a mapping in the weeks prior first which is kind of a dry run so they know exactly where to shoot the beads. It didn’t hurt or have much in the way of after effects either.

Hope this takes some of the of the fear out of it for you. Really, i dreaded it to too but like so many things the dread is worse than the deed, it really wasn’t bad.

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@hypatia

Hello everyone. I am new here. I just had my mapping done on the 16th, and tomorrow is another surgery. I was diagnosed non alcoholic auto immune hepatitis 3 years ago, but last summer spots appeared on my liver, and after MRI , CT, blood work and ultrasound, here I am. /The doctor who did the mapping said they want to go slow in inserting the 'seeds' so not to trigger liver failure. I'm being treated in San Francisco. This is all new to me. I'm alone without support.

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Stay on here, we’ll support you. THe procedure isn’t much different than the mapping These guys are so good at what they do and have had so much training not much should go wrong. As i said in the prior post its pretty successful. Research I’ve done states in studies its 95 percent effective.

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@buddbugg

I was diagnosed with stage 4 liver cancer, with 2 large tumors, plus… I was given 1 month and no possibility of a 'fix'. A week later, a doc approached me to suggest radioembolization. The first treatment halved the size of both tumors. A second treatment killed both tumors. This was 4 years and 2 grandchildren ago. It works! Obamacare payed 90%; since my income was small, the hospital paid the last 10%. I am blessed. We are blessed.

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Great to hear budbugg! If I may ask what were the size of your tumors and were they in your liver or attached to the outside? I’d do it again if i have to but hope now that mine continue to shrink. I had one 17x14cm and another a little smaller.

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@hopeful33250

Hello @mudshark,

I understand the feeling of a recurrence of cancer after you feel it is "behind me." I have had three surgeries for a rare form of cancer, neuroendocrine tumors/carcinoid cancer. My third surgery was 11 years after the second surgery.

Is your lymphoma in remission now?

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I too have have been diagnosed with this rare cancer as well. My first diagnosis (November 2017) with a tumor on my parotid gland, I had to have the gland removed and several lymphoids removed, followed with 36 radiation treatments and chemo. I had a recurrence of this cancer in November of this year on my liver and spine. They treated the liver with an ablation and the spine with 2 treatments of radiation. I pray this is end of the rare cancer.

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@digibson

Great to hear budbugg! If I may ask what were the size of your tumors and were they in your liver or attached to the outside? I’d do it again if i have to but hope now that mine continue to shrink. I had one 17x14cm and another a little smaller.

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Oops, the size of the carcinomas were 1.7 x 1.4 centimeters not 17 x 14. Sorry for the misinformation.

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@denisebrown67

I too have have been diagnosed with this rare cancer as well. My first diagnosis (November 2017) with a tumor on my parotid gland, I had to have the gland removed and several lymphoids removed, followed with 36 radiation treatments and chemo. I had a recurrence of this cancer in November of this year on my liver and spine. They treated the liver with an ablation and the spine with 2 treatments of radiation. I pray this is end of the rare cancer.

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Hello @denisebrown67 and welcome to Mayo Clinic Connect! I appreciate you sharing your story about your cancer treatment with the members of Connect who are just starting down this road.

If you are comfortable sharing more will you tell us a bit about your original diagnosis in 2017? For example, what diagnostic testing was used to discover this cancer; what type of symptoms were you having at that time?

Once again, welcome to Connect. I look forward to getting to know you.

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@hypatia

Hello everyone. I am new here. I just had my mapping done on the 16th, and tomorrow is another surgery. I was diagnosed non alcoholic auto immune hepatitis 3 years ago, but last summer spots appeared on my liver, and after MRI , CT, blood work and ultrasound, here I am. /The doctor who did the mapping said they want to go slow in inserting the 'seeds' so not to trigger liver failure. I'm being treated in San Francisco. This is all new to me. I'm alone without support.

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Hello @hypatia and welcome to Mayo Connect! I appreciate you joining in this discussion. I hope that we can be a support and encouragement to you as you go through this process. I hope that your surgery went well.

When you feel up to it, please share with us how you are feeling. Also, if you are comfortable sharing more, please share your original symptoms and any treatment that you had before the spots appeared on your liver.

I look forward to hearing from you!

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I would like to share some of my symptoms I experienced when I was first diagnosed with High Grade Neuroendocrine Carcinoma in my parotid gland. I experienced pain on the left side of my face in the jaw area. My jaw felt like it was locking up, it was difficult to open my mouth to eat, yawn or speak. I also found a small lump right below my ear lobe. My mouth hurt on the left side. I first thought it was a root canal that went bad. So my first step was to go to the dentist. I went there and they found an abscess on my upper part of my gum above my tooth 14. They removed it and said come back in a year. 2 weeks later the pain got even worse in my jaw area, so I went to my medical doctor. His first thought was parotid gland infection, so he put me on strong antibiotics for the weekend, and of course they didn't make any difference. So I went back on Tuesday and he ordered a CT scan of the area. It came back with a tumor on the parotid gland. He sent me to an ENT, they ordered a biopsy of the tumor. It was the "rare" cancer High grade Neuroendocrine Carcinoma. They referred me right away to Mayo Clinic in Rochester MN, within a month I had surgery to remove the tumor. The tumor was 2.5 centimeters. The facial nerve was sacrificed, so I suffer facial paralyzes, similar to that of someone who has has had a stroke. Fortunately, there was no spread of the cancer, the lymph nodes were clear. I endured 36 radiation (proton) treatments, and 4 rounds of chemo. The pain from the treatment and nerve damage has been severe. I continued to go back every 3 months for MRI's.

Sept.2020 I had pain in my upper spine. I never have back pain. I am a huge gardener, so I went for massage, chiropractic care and then my primary care physician. She did an xray and did see a cloudy area in my spine. With my history of cancer she ordered a CT scan, that is when they found the 2 spots on my liver and on my spine – V9. This is 3 years after my first diagnosis. She had me do a PET Scan to confirm and it showed up there as well. I was once again referred to Mayo. With an MRI they also confirmed the cancer. Next step was an ablation to the liver for the tumors, and radiation to the spine, focused cancer treatments. The ablation went fine, the radiation was rough. They planned to do 3 treatments, but I had too much pain so they did 2 instead. The oncologist feels with the severe reaction from the 2 treatment the tumor will be gone. So I go back in February for the PET Scan and MRI of my face.

If you have an unexplained pain….go get it checked. It is so important to detect the cancer early.

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@denisebrown67

I would like to share some of my symptoms I experienced when I was first diagnosed with High Grade Neuroendocrine Carcinoma in my parotid gland. I experienced pain on the left side of my face in the jaw area. My jaw felt like it was locking up, it was difficult to open my mouth to eat, yawn or speak. I also found a small lump right below my ear lobe. My mouth hurt on the left side. I first thought it was a root canal that went bad. So my first step was to go to the dentist. I went there and they found an abscess on my upper part of my gum above my tooth 14. They removed it and said come back in a year. 2 weeks later the pain got even worse in my jaw area, so I went to my medical doctor. His first thought was parotid gland infection, so he put me on strong antibiotics for the weekend, and of course they didn't make any difference. So I went back on Tuesday and he ordered a CT scan of the area. It came back with a tumor on the parotid gland. He sent me to an ENT, they ordered a biopsy of the tumor. It was the "rare" cancer High grade Neuroendocrine Carcinoma. They referred me right away to Mayo Clinic in Rochester MN, within a month I had surgery to remove the tumor. The tumor was 2.5 centimeters. The facial nerve was sacrificed, so I suffer facial paralyzes, similar to that of someone who has has had a stroke. Fortunately, there was no spread of the cancer, the lymph nodes were clear. I endured 36 radiation (proton) treatments, and 4 rounds of chemo. The pain from the treatment and nerve damage has been severe. I continued to go back every 3 months for MRI's.

Sept.2020 I had pain in my upper spine. I never have back pain. I am a huge gardener, so I went for massage, chiropractic care and then my primary care physician. She did an xray and did see a cloudy area in my spine. With my history of cancer she ordered a CT scan, that is when they found the 2 spots on my liver and on my spine – V9. This is 3 years after my first diagnosis. She had me do a PET Scan to confirm and it showed up there as well. I was once again referred to Mayo. With an MRI they also confirmed the cancer. Next step was an ablation to the liver for the tumors, and radiation to the spine, focused cancer treatments. The ablation went fine, the radiation was rough. They planned to do 3 treatments, but I had too much pain so they did 2 instead. The oncologist feels with the severe reaction from the 2 treatment the tumor will be gone. So I go back in February for the PET Scan and MRI of my face.

If you have an unexplained pain….go get it checked. It is so important to detect the cancer early.

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Hello @denisebrown67

I so appreciate you sharing your story about your High-Grade Neuroendocrine Carcinoma. It sounds as if you have had quite a journey to get a diagnosis and appropriate treatment.

I have also had three surgeries for NETs, however, they were not high-grade as was yours. They were in the upper digestive tract. I appreciate that you encourage others to check out pain wherever it occurs.

I would also like to invite you to post in the NETs discussion group. Here is the link, https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/.

I hope that your scan in February goes well. How are you feeling now? Any continuing problems with pain and/or fatigue?

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Hello, how did your Y90 go? Have you had a follow up scan yet? Hopefully it revealed destroyed tumors. I have breast cancer tumors that presented in my liver. I had Y90 left lobe on 3/10 with right lobe scheduled for 4/16. Please respond with an update. Thanks

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@rraw

Hello, how did your Y90 go? Have you had a follow up scan yet? Hopefully it revealed destroyed tumors. I have breast cancer tumors that presented in my liver. I had Y90 left lobe on 3/10 with right lobe scheduled for 4/16. Please respond with an update. Thanks

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Hi! I had a great experience with Y90. The mapping was a piece of cake, worked the next day and the shoot went great. No pain at all with the shoot, a little tired the next day but was back at work the following day.

I guess the most important question is did it work? Great response. I had two cancerous carcinomas on my liver. Months one and two they shrank then my radiologist reported after month three ct that the big one was dead and the image of the little one was kind of cloudy but he thought all that was left was the bed it was laying in and at least for now i had no viable disease. Will continue to scan every three months for now, next one April 26th. Will fill you in.

My tumor markers went from 60 something down to 8.1. I'm not really sure what the tumor marker numbers mean and have read they are not always to heavily relied of for the diagnosis or cure of cancer. Maybe someone would chime in on that. I would so highly recommend the Y90 to anyone. I heard someone else call it "The Mighty Y90." Diane

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thank you so much for the Y90 Information, it is new to me. Is there an article (s) that you can refer me too so I can research the Y90? Thanks.

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