Wondering what to do in the future, concerned about fulltime care

Posted by markbrewer @markbrewer, Apr 18, 2023

my wife (65 yrs old) has either dementia or Alz. i believe she has only been in this less than 3 years. i do know for a fact that she has "gone down" considerably in the past 3 months or so. she has had hallucinations and wakes up in the morning with horrible delusions about her retirement money. she keeps having a dream or something in which i have taken all her money and bought a house trailer for a women i knew long ago. i have not spoken to or seen this woman in at least 12 years, she plays no part in our lives whatsoever. i have to spend 1-2 hours most days convincing her that this is not true

I was working a part time job but had to quit because i can't leave her alone. she was fine for awhile on that but not anymore. she can't remember how to answer the phone when i call to check on her.

it's frightening how fast she has gone down. but what i need to know about is what can i do about her care if the time comes that i can't care for her anymore. what is available for people without much money? my mother is in memory care - it costs over $6500 cash every month. we do not have that kind of money. my wife is on medicare. is there anything else for us?

my other question is about how do i know when put her in full time care? a very vague general sort of question, i know, but i just don't know how to find out anything.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

@ladytexan

There are a variety of government programs. Many government programs are based on need and income. The eligibility criteria may further vary based on age and disability. Additionally, Veteran's programs are available to those that served.
To learn more about the government programs, your area agency on aging may be able to help or possibly the health and human services department. Information on Veteran's programs are available at the Veteran's Service Office (VSO).

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i searched veterans services and care is provided to a veteran or spouse if the veteran served during a war period not a peace period.

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@jeanaustindanner

I am looking for ideas about how to find trustworthy private (non-agency) people to provide full-time in-home care for an elderly woman with Alzheimer’s disease. She is in Daytona Beach, FL but my question is really about the process. Thank you.

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@jeanaustindanner
There are pros and cons to both hiring an agency caregiver vs. a non-agency caregiver. Google search ideas could be Non-agency private duty caregiver for Alzheimer's patient or as we have here in Texas, http://www.care.com which are individuals that list themselves as available for caregiver assignments. The company does a basic screening and the caregivers list their rates and qualifications. A newspaper may have personal ads listing an RN or LVN looking for private duty care or you can place your own ad.
Or you could try the Eldercare Locator, phone number, 800-677-1116, which is funded by the Older Americans Act and can assist with finding services anywhere in the U.S.
Here in Texas and possibly elsewhere, we also have "A Place for Mom" which is a resource for families needing care for a patient. It is a free service to use.
Hoping you are able to locate the resources you need.

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Try searching on Care.com. They are an agency that puts you in touch with private caregivers. Then you have to do your own contacting, background checks, payment negotiations, etc. I’ve never used them but I see them advertised all the time. You could put in Daytona Beach, FL and see what’s available there.

Also, churches or other places of worship, senior centers or just word of mouth.

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