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Bertolotti's Syndrome: Looking for a specialist

Posted by Casie Cox @casieann, Apr 6, 2015

Wondering if There are any Doctors that specialize in Bertolotti's Syndrome. I am moving to Florida and I desperately need to find someone who can relieve me of this pain.

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nlback22 | @nlback22 | Sep 4 9:14am

Here are the links that I mentioned:

Appointments at Mayo Clinic https://share.google/K8ezGQKCuEfgJGyP0

Jeremy L. Fogelson, M.D. https://share.google/mmJcG88JqdiBei1Xb

Benjamin D. Elder, M.D., Ph.D. - Doctors and Medical Staff - Mayo Clinic https://share.google/teXPBwmPPFAC3EIXt

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rangerraptor | @rangerraptor | Sep 4 9:20am
In reply to @bassetmom "@rangerraptor I had heard that Mayo no longer accepted other versions of Medicare but does accept..." + (show)
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@rangerraptor I had heard that Mayo no longer accepted other versions of Medicare but does accept regular Medicare. However, the neurosurgery spine center may have decided not to accept any more spine patients regardless of insurance for a while. I do not know about the ortho doctors. I do not know where you will be in Florida but there are other good neurosurgeons in other areas. Where will you be locating in Florida? Another option if you are willing to travel is Mayo in Rochester, Minn or a Dr. Tyler Koski at Northwestern Memorial Hospital in Chicago.

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@bassetmom
I'm in the process of gathering my info for them in Rochester but the entire process is inundating especially since all my scans and reports are slightly over a year old. Thanks for your help.

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rangerraptor | @rangerraptor | Sep 4 10:56am
In reply to @nlback22 "@rangerraptor This can be depressing, but know that you will get the help that you need.🙏🙏🙏..." + (show)
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@rangerraptor
This can be depressing, but know that you will get the help that you need.🙏🙏🙏

I suggest you contact Mayo Rochester, in Minnesota. They have a huge staff.

Going by my experience, a couple of years ago, when you call their appointment line they will recommend a specialist based upon your diagnoses. Also, you will want to confirm that they accept your insurance.

As part of the process, you will be asked to have
all recent imaging-- MRI's, Xrays, CT's and reports forwarded to the doctor.

My Bertolotti's was a minor aspect of my overall surgery and I don't think I had pain because of it, but everyone is different.

You mentioned that you have minor Scoliosis. Sometimes Adult Scoliosis can be caused from other spine conditions.

My surgeon at Mayo Rochester was Dr. Jeremy Fogelson. Another friend on this site had surgery performed by Dr. Benjamin Elder.

I wish you luck in your quest and hope that you get the help that you need soon.

I will forward the links for the appointment number at Mayo and the links to the doctors I mentioned.

🙏🙏🙏Nadine

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@nlback22
Thank you so much, all really good info. I'm in the process of getting my doctor to get updated imaging and give me a referral. Then I will call The Mayo Clinic in Rochester back.
Thanks again

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nlback22 | @nlback22 | Sep 4 12:26pm

You're welcome.
Good Luck!

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@lchop55 | @karentheo | Sep 8 9:52am

@lchop
Does anyone know a specialist for Bertolotti syndrome in the NYC area? I can't take the pain any longer. Already done PT and several injections which have done nothing. It's quite painful to function with everyday tasks. My sleep is also suffering, along with my emotional health, as it causes extreme limitations on daily living, limiting most social activities. The worse is that no one truly understands these limitations and trust me I push through everyday with this chronic pain. Standing, sitting and walking more that a block is excruciating, even using a cane. The pain makes me double over to try to relieve some of the pain. I try not to take 15mg of tramadol, since it's the only medication that takes the edge off. I also have one leg that is 1/2 inch. For reference, I did have a failed TLIFT fusion 5 years ago (L2-L5) for DDD, however, my multi level bilateral lumbar spinal stenosis was not addressed during this surgery and now how significant bilateral neuropathy, along with arthritis through the entire spine. I've seen several surgeons, however, most cannot give me a
hopeful potential success rate for a revision surgery. I just want to feel somewhat like a semi-normal 71 yr old person, who was so very active and now can only do minimal necessary daily activities. Can anyone help with possible referrals. I'm getting desperate at this point. Thank you!

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