My faughter was just diagnosed. Any info would be great!
Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.
Here is some information about Wolff Parkinson White Syndrome from the Mayo Clinic http://www.mayoclinic.org/diseases-conditions/wolff-parkinson-white/basics/definition/con-20043508 and from the National Organization of Rare Diseases (NORD) http://rarediseases.org/rare-diseases/wolff-parkinson-white-syndrome/
I’d also like to introduce you to other Connect members @wymanjg @lizbets @billmichalski @judytru who had/have newborns and young children with heart disease. @judytru‘s daughter, for example, was born with coarctation of the aorta and aortic stenosis. She is now 27. @billmichalski‘s twin granddaughters were born with tetralogy of Fallot. Both 11 now, swim, gymnastics, dance, checkup every year at Children’s and everything going well.
You are not alone. How old is your daughter Meagan?
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Yes, hi. This is Judy Trudel and my daughter, Amy is now 28 years old anddoing well. We have some issues because of the artificial aortic valve theDrs. inserted over a year ago. She is now on Coumadin, and if we had it todo over again, I don’t think we would have made the choice for her toreceive an artificial valve. A homograft, natural valve would have beenbest.
She is 9
Thank you for that info!!
Thank you for answering my “page” @judytru. It sure helps to here from another mom who’s been there.
Meagan, I hope the information helps. We’re here to accompany you on this new path. Please keep us posted.
We go monday, thanks again, i will!!
Of course. Anytime!
Hello fellow Heartbeats!My 15 year old son was diagnosed with WPW syndrome last year. He is scheduled for his ablation Later this month. It seems like an easy procedure and recovery. He wears a heart monitor to keep tracking of episodes of WPW. His episodes seem to be more frequent so we’re happy he’s scheduled for this correction. My reason for reaching out is to maybe get feedback on other WPW experiences after the ablation procedure. Also to ask for a quick prayer for my son. Thanks and take care!
@erixfam, welcome to Connect. I'm hoping that I can bring @601meagan into this conversation about Wolff Parkinson White. Her daughter was diagnosed a few years ago. You can read a bit more here:
* Wolff-parkinson-white syndrome https://connect.mayoclinic.org/discussion/wolff-parkinson-white-syndrome/
Erixfam, how is your son feeling about getting the ablation soon?
Doesn’t seem to phase him. Everyone else is more on edge. Albeit it appears to be an easy procedure. July 30th is his scheduled operation, so we have some time still. He more upset he has to take a break from Lacrosse.
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