Mayo Clinic Connect
My faughter was just diagnosed. Any info would be great!
Here is some information about Wolff Parkinson White Syndrome from the Mayo Clinic http://www.mayoclinic.org/diseases-conditions/wolff-parkinson-white/basics/definition/con-20043508 and from the National Organization of Rare Diseases (NORD) http://rarediseases.org/rare-diseases/wolff-parkinson-white-syndrome/
I’d also like to introduce you to other Connect members @wymanjg @lizbets @billmichalski @judytru who had/have newborns and young children with heart disease. @judytru‘s daughter, for example, was born with coarctation of the aorta and aortic stenosis. She is now 27. @billmichalski‘s twin granddaughters were born with tetralogy of Fallot. Both 11 now, swim, gymnastics, dance, checkup every year at Children’s and everything going well.
You are not alone. How old is your daughter Meagan?
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Yes, hi. This is Judy Trudel and my daughter, Amy is now 28 years old anddoing well. We have some issues because of the artificial aortic valve theDrs. inserted over a year ago. She is now on Coumadin, and if we had it todo over again, I don’t think we would have made the choice for her toreceive an artificial valve. A homograft, natural valve would have beenbest.
Liked by Colleen Young, Connect Director
She is 9
Thank you for that info!!
Thank you for answering my “page” @judytru. It sure helps to here from another mom who’s been there.
Meagan, I hope the information helps. We’re here to accompany you on this new path. Please keep us posted.
Liked by Teresa, Volunteer Mentor
We go monday, thanks again, i will!!
Liked by Colleen Young, Connect Director, Teresa, Volunteer Mentor
Of course. Anytime!
Hi, Kristina Behnke.. my daughter was just diagnosed with Wolff Parkinson white syndrome.. they did all the tests for it. They made her do a stress test. The doctors said she did a great job . She’s a runner. Go ahead and put her in volleyball. Then 2 days later. I got a call from them saying we want to the surgery, we are very scared and confused. On what to do? Any help with oils be great. Thank you
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