Why is NTM in drinking water a danger?

Posted by tracestew @tracestew, May 7 9:07am

Can someone explain to me why I need to worry about NTM in my drinking water? I have BX and MAC, currently treating for the second time, and now my latest CT shows progression and active infection. So, I’ve been analyzing everything I do and don’t do. I don’t use bottled water, but I do filter our well water. It’s a community well that’s tested every year for the more prevalent bacteria.

My question is really, how would using the Lifestraw make a difference?

Thanks!!

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

mch (Marycarol) | @mch | May 7 4:05pm

From my reading when first diagnosed, using a filter capable of removing smallest bacteria, such as MAC (.02micron I believe), is important to minimize the amount of MAC bacteria that can get into the stomach. This is most relevant for anyone with acid reflux (and most adults have this at least occasionally, ofter getting worse with age). Some data suggests that acid reflux may be a contributing factor for MAC infections...not definitive, more anecdotal but seems to be a definite linkage based on numbers.. The mechanism is micro-aspirations into the lungs that may occur during acid reflux episodes, thereby introducing bacteria from the stomach into the lungs. As I have recurring acid reflux, using an adequate filter for my drinking water is a sensible precaution.

Even though your water is tested, apparently much of municipal testing does not include Mycobacteria as this class of bacteria is not widely recognized as problematic. Your filter may be good enough...check the filtering criteria against recommendations for capturing MAC.

blm1007blm1007 | @blm1007blm1007 | May 8 9:54pm

There are other areas on this Mayo Clinic Connect that speak of your concern.
They also mention Dr. Falkinham and his videos that address your question.
He has a video on waterborne bacteria.