Why does my body keep trying to go into painful flare ups

I understand what you’re going through. I’ve been there done that.
Do a diary and you might think I’m going over a board, but this diary needs to be of the following. What you eat and drink during the day, Lotions soaps, you use anything that your body come in contact with.. Also, laundry soap, perfumes, fresh sense are not your friend
By doing a diary, you will be able to track what you’re doing what you ate what you used when you have a flare
And yeah, I think you’ll be able to figure it out
When you go to the doctor, Take a list of your questions and things are not comfortable with. You could also take your diary of your life
For me, chemicals are not my friend so the least in my life the better I feel
I hope you can figure this out

@leora6, I have had Fibro for almost 31 years. I find it has gotten worse as I have gotten older. I

Things that cause flares for me:

Hot & humid weather or extreme weather change
Having surgery
Not sleeping
Trying to do to much
COVID (I have Long Covid) and it really ramped up the Fibro
Chemicals & Perfumes
Having any kind of upper respiratory issues
Thyroid Disease has worsened Fibro, along with having arthritis....I personally think they go hand in hand.

Praying for you. Blessings....

@leora6 , As soon as I saw the title asking why, my warped sense of humor wanted me to respond, “because it can”.
Forgive me.
I’ve had fibromyalgia for at least 50 years. (I’m 77) however I don’t experience pain that is debilitating.

I think the answer to your question may be stress. We all have stressors that cause our body to become overwhelmed. Those of us with a delicate constitution are susceptible to overload and physical “crashing”.

I have terrible, uncontrollable anxiety that causes a neurological disorder I have to get worse. I’m taking meds and starting treatment this week.

Wishing you well.
Susan

@minnesota10 @leora6 great advice. I built a symptom tracker that I filled out daily to understand the patterns and severity of symptoms. It’s very helpful when talking to doctors. I figured out that I’m in perimenopause, which is like throwing a grenade on fibro.

I would also recommend finding a traditional Pilates studio where you can do 1:1 sessions. Pain is no longer my primary fibro problem and I’m also hypermobile. The breath work with mild exercise is great for fibro.

I’ve been also having a hefty flare up for the last couple of weeks. Seeing all these responses makes 3 things stand out. I’ve had a STRESSFUL situation with my son’s health, haven’t been SLEEPING great and the WEATHER has changed (it’s up to high 90’s here, started recently). So difficult to really guess which it is. Of course it could be something I haven’t even considered. I had been so much better since LDN kicked in and I thought it would stay that way. I’d like to have my thyroid checked too.

@duvaldena your symptoms tracker is it just a basic check list of symptoms that you had and when you had them that day?

Fibro symptoms can be somewhat complex I always get lost trying to describe them all, one minute I’m having pain next pain with gas, and then brain fog so bad I can’t do anything for days. Feels like a wave hitting me over my head. My eyes dry out by the morning cause apparently while I’m sleeping my tears are flowing with the pain. Then when I wake up it’s like my body initiates sock of awake with “fight or flight” mode which hits me right into a flare. If I have to pee I try and make a bee line to the toilet be for the pain knocks me down. I have been locked down in the bathroom before and not made it back to my bed.

This pain sucks. I just got to MayoClinic today.

@paulcard so glad you got in mayo…that will help. I work in analytics so it’s a little more than a basic check list. I recommend writing down symptoms you have in a day the way you experience it. Use your words and descriptions. Do this for 6 weeks to understand what’s happening and when. Once I understood my symptoms, I was able to determine which ones happen more frequently and how to group the symptoms. We tend to have a lot to track, but there are symptoms that happen more frequently and can be grouped together. Makes tracking easier…from there you can assign points to symptoms. The higher the score, the more you’re dealing with in a day. You need to prioritize what you treat so you don’t get burned out, which is easy to do at Mayo. Good luck!!

@paulcard Hi. is the peeing thing from interstitial cystitis? I’m struggling with that right now. Even small amounts of liquid makes for painful bladder/urgency, then burning when I go. Pain before during and after. Bladder and urinary tract, like UTI but it’s not UTI. So interrupts already bad sleep. Doctors haven’t been very helpful with the insurance I have now. I had it years ago and urologist did bladder installation treatments and then medication.

@leora6 I'll guess you have GOUT. I was misdiagnosed for 30 years. Try Zazzee https://a.co/d/0ekfUx5d
Ask your doc for a uric acid level test. If it is high - even in bounds, I'll bet money you have gout. @paulcard you too! My IC is in remission with the gout med Allopurinol.
Great diet for LOW INFLAMMATION: https://pmc.ncbi.nlm.nih.gov/articles/PMC11643512/

@jeannesf1
I had a similar issue w feeling like I’m getting a UTI anytime I was dehydrated or tired, which was often a daily feeling. I started drinking organic milk thistle tea and it really helped a lot. I buy the ones made by Tozzy in the pyramid tea bags on Amazon