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leora6 avatar

Why does my body keep trying to go into painful flare ups

Fibromyalgia | Last Active: Jun 30 8:41am | Replies (11)

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Profile picture for duvaldena @duvaldena

@minnesota10 @leora6 great advice. I built a symptom tracker that I filled out daily to understand the patterns and severity of symptoms. It’s very helpful when talking to doctors. I figured out that I’m in perimenopause, which is like throwing a grenade on fibro.

I would also recommend finding a traditional Pilates studio where you can do 1:1 sessions. Pain is no longer my primary fibro problem and I’m also hypermobile. The breath work with mild exercise is great for fibro.

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Replies to "@minnesota10 @leora6 great advice. I built a symptom tracker that I filled out daily to understand..."

@duvaldena your symptoms tracker is it just a basic check list of symptoms that you had and when you had them that day?

Fibro symptoms can be somewhat complex I always get lost trying to describe them all, one minute I’m having pain next pain with gas, and then brain fog so bad I can’t do anything for days. Feels like a wave hitting me over my head. My eyes dry out by the morning cause apparently while I’m sleeping my tears are flowing with the pain. Then when I wake up it’s like my body initiates sock of awake with “fight or flight” mode which hits me right into a flare. If I have to pee I try and make a bee line to the toilet be for the pain knocks me down. I have been locked down in the bathroom before and not made it back to my bed.

This pain sucks. I just got to MayoClinic today.