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Why does my body keep trying to go into painful flare ups
Fibromyalgia | Last Active: Jun 30 8:41am | Replies (11)Comment receiving replies
@duvaldena your symptoms tracker is it just a basic check list of symptoms that you had and when you had them that day?
Fibro symptoms can be somewhat complex I always get lost trying to describe them all, one minute I’m having pain next pain with gas, and then brain fog so bad I can’t do anything for days. Feels like a wave hitting me over my head. My eyes dry out by the morning cause apparently while I’m sleeping my tears are flowing with the pain. Then when I wake up it’s like my body initiates sock of awake with “fight or flight” mode which hits me right into a flare. If I have to pee I try and make a bee line to the toilet be for the pain knocks me down. I have been locked down in the bathroom before and not made it back to my bed.
This pain sucks. I just got to MayoClinic today.
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@paulcard Hi. is the peeing thing from interstitial cystitis? I’m struggling with that right now. Even small amounts of liquid makes for painful bladder/urgency, then burning when I go. Pain before during and after. Bladder and urinary tract, like UTI but it’s not UTI. So interrupts already bad sleep. Doctors haven’t been very helpful with the insurance I have now. I had it years ago and urologist did bladder installation treatments and then medication.
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@paulcard so glad you got in mayo…that will help. I work in analytics so it’s a little more than a basic check list. I recommend writing down symptoms you have in a day the way you experience it. Use your words and descriptions. Do this for 6 weeks to understand what’s happening and when. Once I understood my symptoms, I was able to determine which ones happen more frequently and how to group the symptoms. We tend to have a lot to track, but there are symptoms that happen more frequently and can be grouped together. Makes tracking easier…from there you can assign points to symptoms. The higher the score, the more you’re dealing with in a day. You need to prioritize what you treat so you don’t get burned out, which is easy to do at Mayo. Good luck!!