When to accept permanent long covid?

So very well said chuckstran. I ca relate to almost everything you said. We must always support each other and try not to forget to be grateful when we can. Best of luck to you and best wishes. Thanks so much for your thoughtful comments

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Debra. Sounds good. Would like to hear updates on your rehab. I'm currently only self treating because I'm still mostly functional at 72 and know, as per postings here most docs have no understanding of long covid or treatment options. But I'm always hopeful and looking. I'm also looking to join an in person local support group. Wishing you the very best.

Thank you Greg. I will let you know how my rehab goes. It's been so difficult having this heavy leg syndrome. I'm 75, and in relatively good health. Never hospitalized. And other than dealing with the unusual effects and lack of treatment options for long COVID, at 75, I am in pretty good health. It is important to always be looking at the latest treatments, stay in touch with others who hae this for their experiences and knowledge and to remain optimistic. We are in this together. Take care.

All I can say is don't give up. My daughter finally recovered completely from CFS after 18 years! At about 15 years she was able to start work half time in a quiet low key office. Little by little she improved and went back to get a MS degree. Now, some 20 years after recovering, she had hiked the Pacific Crest Trail through the state of Washington, 268 miles. She regularly walks up to 6 miles. She was able to get a full time job and rose to be a very responsible adult in every way imaginable. The only change she has found is she is now allergic to several common foods. You might work with a nutritionist or naturopath to check that out. Again, Don't Give Up! You can't predict what your body will do, just as you couldn't predict how your body would respond to COVID. Take good care of yourself and let your body heal.

(to @gregorb)
We are both on the same timeline in terms of having LC. I had been on top of my vaccinations, but somehow came down with if for the first time last June.
I did NOT take Paxlovid, and you probably shouldn't undervalue it if it did indeed keep you out of the hospital. My acute Covid was quite mild.
However, and I had half-expected this, it did indeed transform into LC. My expectation was due to my previous encounter with CFS in the early 90's (and note that "CFS" is a separate Syndrome, that is, not merely a symptom as many of us experience it with LC).
Having parenthetically said that, I DO indeed think that CFS and LC might be largely the same phenomenon since they share so many (baffling) traits.
In my case, back then, as a young, strapping lad in my mid-40's, it hung around for close to two years, then finally lifted of its own accord. Perhaps I'm being overly optimistic, but I'm thinking, since this time around it feels pretty much identical (like you, I believe, pretty much confined to chronic fatigue), that it likely will just go away in hopefully not too much time. Of course, now I'm somewhat less young, and possibly a little less strapping, so maybe I'm being overly-optimistic, as unlikely as that would be given my otherwise curmudgeonly personality.
So the upshot is don't rush to any overly-dire conclusions Nobody can say it's "permanent"! Fight, fight, fight!
There's much that is still unknown about this syndrome/disease, despite DECADES of research with CFS ,and no less that a BILLION dollars of LC grant money that has been allocated in the U.S. (although much of that may well be clawed back by the Administration in the hopes of giving the .01% much-needed tax breaks...)
But perhaps I'm straying off-topic. Should I start a new thread? Like one about how these diseases are actually related to UFO abductions?

stay tuned, and stay well (as possible)

So your daughter came down with CFS in the mid-late 80's?
What does she credit her recovery to, or was it just the passage of time?

I had COVID for the first time in 3/2020 and I’ve had long Covid ever since. It’s affected my breathing; I now have severe asthma which I can deal with but dealing with the constant fatigue is harder. My husband and I are both retired and hoped to do some traveling but that’s on hold for now. I do have a positive, optimistic personality so I’m able to cope pretty well.
Wishing healing for all my fellow sufferers!

Probably "tincture of time," as one physician put it. And toward the time she recovered, she learned of a physician (neurologist/psychiatrist) who took a great deal of interest in working with CFS patients. She was, and still is, on a great many supplements. Perhaps they helped, perhaps not; I doubt that they did any harm. Little by little she got better. It was not a sudden recovery. She has been free from long term infections since then. She did get COVID in 2023, but it did not turn into Long-COVID.
The only way to keep from getting Long-COVID is to not get COVID.