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When to accept permanent long covid?

Posted by gregorb @gregorb, May 8 12:33pm

Had Long Covid for 11 months. Is there still a chance it could go away or is it time to accept as permanent. Have heard give it anywhere from 1 to 2 years. Any feedback on that?

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joanland | @joanland | Jun 5 4:14pm
In reply to @sandguy "Wow, "virus X"! Sounds so sci-fi. Ties in with my own personal, soon-to-be viral (in the..." + (show)
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Wow, "virus X"! Sounds so sci-fi.
Ties in with my own personal, soon-to-be viral (in the digital sense) conspiracy theory about ties between CFS/LC corresponding to alien/UFO/UAP sightings and, yes, actual abductions!
(Need to create a TikTok account, lemmee see...)
But do I have your permission to use your term "Virus X"?
(I think I'll have to incorporate the song "Planet Claire" in there somehow, as it just sprang to mind).

But, seriously (for me), apparently "Virus X" was coined (or adopted) more recently in the 80's by the WHO to refer to a hypothetical virus that might appear and cause a world-wide pandemic. It seems to be used that way currently.

What you had then might have been referred to, as far back as the 19th century, as "neurasthenia"! Makes me think of terms such as "a rheumy catarrh" (for a bad cold).
Worth looking at this Wiki page:
https://en.wikipedia.org/wiki/History_of_ME/CFS.
It's a great look back, and reminded me of stuff I had looked up and researched back in the early 90's. It also mentions the apt phrase "Raggedy Doll Syndrome", which is rather delightfully and whimsically descriptive of how many of us sometimes feel.

But, yes, you're correct that this (or some manifestation of this) has indeed been around for a long time, and thank you for that lovely bit of personal history!

p.s. So impressed that you're 85 years young!

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Yes, you may certainly use the term Virus X. I heard it from Dr. Merkel, who was the County Public Health officer in Jackson Co., OR, back 1948. He was the doctor I was taken to, so the term isn't mine, it is his. I, too, had heard the term neurasthenia, but I didn't realize it might apply to something now being called "Post viral infection syndrome." I look forward to seeing your post relating your research into the relationship between these unknown and lingering illnesses and alien/UFO sightings. That brought a smile to my face!

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anonymous620 | @anonymous620 | Jun 8 8:27am
In reply to @gregorb "Well said joanland. We are probably pretty much on our own at this point. But we..." + (show)
Profile picture for gregorb @gregorb

Well said joanland. We are probably pretty much on our own at this point. But we do have one another. And we understand. The support is so helpful to me. My wife has no interest, acknowledgement or understanding of long covid, even though I've always been there for her and her medical issues. Cancer, brain surgery, etc. Disappointing.

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If she's had brain surgery this could be a factor in her lack of empathic response. Terrifying. Lonely. I would feel resentful, nevertheless plus seek counseling.

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