When to accept permanent long covid?

Jokean
So sorry for your suffering. Just had a nasty CFS episode today myself. Glad to hear you have a good attitude and coping skills. Always working on mine, it seems. Best wishes and good luck.

Probably "tincture of time," as one physician put it. And toward the time she recovered, she learned of a physician (neurologist/psychiatrist) who took a great deal of interest in working with CFS patients. She was, and still is, on a great many supplements. Perhaps they helped, perhaps not; I doubt that they did any harm. Little by little she got better. It was not a sudden recovery. She has been free from long term infections since then. She did get COVID in 2023, but it did not turn into Long-COVID.
The only way to keep from getting Long-COVID is to not get COVID.

Again, Gregorb, please don't use the term CFS as a synonym for chronic fatigue, as that refers to a specific syndrome, AKA Myelagic Encephalomylits, which is, as I've said, a sort of forerunner of LC, and goes back decades. It's just confusing, especially in a discussion where people are in fact discussing CFS/ME in addition to LC. Obviously chronic fatigue is a symptom that usually accompanies LC, but CFS is a whole constellation of symptoms, not unlike LC, as I've already described.

Not to appear too pedantic, but it does get somewhat confusing, thanks!

(to @gregorb)
We are both on the same timeline in terms of having LC. I had been on top of my vaccinations, but somehow came down with if for the first time last June.
I did NOT take Paxlovid, and you probably shouldn't undervalue it if it did indeed keep you out of the hospital. My acute Covid was quite mild.
However, and I had half-expected this, it did indeed transform into LC. My expectation was due to my previous encounter with CFS in the early 90's (and note that "CFS" is a separate Syndrome, that is, not merely a symptom as many of us experience it with LC).
Having parenthetically said that, I DO indeed think that CFS and LC might be largely the same phenomenon since they share so many (baffling) traits.
In my case, back then, as a young, strapping lad in my mid-40's, it hung around for close to two years, then finally lifted of its own accord. Perhaps I'm being overly optimistic, but I'm thinking, since this time around it feels pretty much identical (like you, I believe, pretty much confined to chronic fatigue), that it likely will just go away in hopefully not too much time. Of course, now I'm somewhat less young, and possibly a little less strapping, so maybe I'm being overly-optimistic, as unlikely as that would be given my otherwise curmudgeonly personality.
So the upshot is don't rush to any overly-dire conclusions Nobody can say it's "permanent"! Fight, fight, fight!
There's much that is still unknown about this syndrome/disease, despite DECADES of research with CFS ,and no less that a BILLION dollars of LC grant money that has been allocated in the U.S. (although much of that may well be clawed back by the Administration in the hopes of giving the .01% much-needed tax breaks...)
But perhaps I'm straying off-topic. Should I start a new thread? Like one about how these diseases are actually related to UFO abductions?

stay tuned, and stay well (as possible)

I'd be interested in a thread on UFO abductions and their connections to Big Pharma and the medical establishment. Of course, that might have to be conducted off this site as it might be too entertaining for some people.

Good luck at Dartmouth eval. I hope they give you support & actionable advice.

I've had it for a year...nasty cough, muscle aches, brain fog, fatigue...all rotating symptoms...some days better than others

I feel you're pain, it was 5 years since I woke up in the ICU. I have all of the symptoms, for me right now its the brain fog and fatigue. I do my shopping, and I'm in bed 2 sometimes 3 days. There are so many Dr's that don't understand or they have zero compassion. I'm seeing my last Dr on June 9th. If I get that same" let's to focus on the areas that plague you most". I'm 65 on Friday and I'm just so tired. I don't want to play anymore.

I am looking for some answer on how to get over this and any type of medication that I can take.please get back to me.Thank you.

I feel you're pain, it was 5 years since I woke up in the ICU. I have all of the symptoms, for me right now its the brain fog and fatigue. I do my shopping, and I'm in bed 2 sometimes 3 days. There are so many Dr's that don't understand or they have zero compassion. I'm seeing my last Dr on June 9th. If I get that same" let's to focus on the areas that plague you most". I'm 65 on Friday and I'm just so tired. I don't want to play anymore.